Lmst

House of Councilors lawmaker Yasuhiko Funago, who has amyotrophic lateral sclerosis, or ALS, on Tuesday announced his intention not to seek another term in this summer's Upper House election and to retire from politics. https://www.japantimes.co.jp/news/2025/06/18/japan/politics/als-lawmaker-retirement/?utm_medium=Social&utm_source=mastodon #japan #politics #yasuhikofunago #disability #diet #upperhouse #reiwashinsengumi #als

📰 Eric Dane heeft door ALS nog maar één functionerende arm

https://nieuwsjunkies.nl/artikel/19LA

🕔 17:00 | RTL Nieuws
🔸 #Progressief #ALS #Diagnose #USA #Ziekte

𝗘𝗿𝗶𝗰 𝗗𝗮𝗻𝗲 𝗵𝗲𝗲𝗳𝘁 𝗱𝗼𝗼𝗿 𝗔𝗟𝗦 𝗻𝗼𝗴 𝗺𝗮𝗮𝗿 éé𝗻 𝗳𝘂𝗻𝗰𝘁𝗶𝗼𝗻𝗲𝗿𝗲𝗻𝗱𝗲 𝗮𝗿𝗺

Eric Dane heeft momenteel nog maar één werkende arm. Dat zei de 52-jarige Amerikaan tijdens een interview in het tv-programma Good Morning America. De acteur, bekend van series als Grey's Anatomy en Euphoria, kreeg in april de diagnose ALS. Dit is een progressieve en ongeneeslijke zenuwziekte.

https://www.rtl.nl/boulevard/artikel/5514102/eric-dane-heeft-door-als-nog-maar-een-functionerende-arm

#EricDane #ALS #functionerendeArm

A Man Lost His Voice to #ALS. A Brain Implant Helped Him Sing Again https://www.zmescience.com/medicine/a-man-lost-his-voice-to-als-a-brain-implant-helped-him-sing-again/ #Science #Medicine

doing a little pharma research on mast cell stabilizers as my allergy season ramps up, and found out that cromolyn sodium was tested in combination with ibuprofen in a Phase III clinical trial for preventing or delaying Alzheimer disease (!) whose results are now a year and a half overdue.. keywords: ALZT-OP1, NCT02547818, COGNITE

they were also trialing this for #ALS, that trial is also overdue

#alzheimers #alzheimer #dementia

📰 Eric Dane geeft eerste tv-interview sinds diagnose ALS

https://nieuwsjunkies.nl/artikel/19xj

🕕 17:51 | RTL Nieuws
🔸 #ALS #Diagnose #USA #Ziekte #Interview

𝗚𝗿𝗲𝘆'𝘀 𝗔𝗻𝗮𝘁𝗼𝗺𝘆-𝗮𝗰𝘁𝗲𝘂𝗿 𝗘𝗿𝗶𝗰 𝗗𝗮𝗻𝗲 𝗲𝗺𝗼𝘁𝗶𝗼𝗻𝗲𝗲𝗹 𝗼𝘃𝗲𝗿 𝗔𝗟𝗦-𝗱𝗶𝗮𝗴𝗻𝗼𝘀𝗲

In een aankomende aflevering van de talkshow 'Good Morning America' spreekt Eric Dane (52) voor het eerst over zijn ALS-diagnose. In het interview blikt hij terug op hoe zijn leven plotseling volledig veranderde en is hij zichtbaar geëmotioneerd over de impact die de ziekte op hem en zijn...

https://www.rtl.nl/boulevard/entertainment/artikel/5513719/greys-anatomy-eric-dane-emotioneel-als-diagnose

#EricDane #ALS #Grey'sAnatomy

Mingus

In 1979 Joni Mitchell collaborated with jazz legend Charles Mingus who was dying of Lou Gehrig’s disease, otherwise known as #ALS. The Chirp released Mingus on June 13, 1979. Listen to Mingus by Joni Mitchell on Amazon Music ... #mingus #jonimitchell #70smusic #music #musicsky #musiciansky

http://robinbannks.com/2025/06/13/mingus/

Eric Dane Emotionally Unpacks ALS Diagnosis: “It’s Not A Dream”
#News #ALS #EricDane #Health

https://deadline.com/2025/06/eric-dane-emotionally-unpacks-als-diagnosis-1236432664/

Que el #Gobierno cumpla la #LeyELA: basta de vulnerar derechos fundamentales - ¡Firma la petición! https://chng.it/z8b2HSd6r7 a través de @change_es #ELA #ALS

https://x.com/pons_sabate/status/1933138394550616375
¿Cuántas vidas de personas enfermas de #ELA #ALS se hubieran podido salvar con las presuntas comisiones a Santos Cerdán?

#LeyELA

https://x.com/i/status/1933217810747981940
48 horas han pasado desde que @Monica_Garcia_G
hiciese unas muy desafortunadas declaraciones relativas a los afectados #ELA, en las que además de mentir, se refería a nosotros como "pobrecitos" con mucha sorna y muy poco respeto.
Ni #un atisbo de arrepentimiento y cero disculpas. #ALS

Currently 435km into the Pieterpad! Looks like we'll end up maybe closer to 560km of the expected 505.

This comes down to things like detours for lunch and dinner food and "side quests" to get to the hotel and back to the trail.

Support #als research!

https://x.com/YolandaDn44/status/1932472836188479687
Mientras el Gobierno anuncia 120 millones para que los jóvenes viajen con descuento este verano, las personas con #ELA #ALS seguimos esperando que se cumpla nuestra Ley.

La puerta sigue cerrada.
La enfermedad no espera.
Los derechos no se piden, se ejecutan.

#LeyELA #DemandaLeyELA

Tin vui cho bệnh nhân ALS! Biogen đã triển khai Tofersen, liệu pháp nhắm trực tiếp vào gen SOD1 tại Trung Quốc, mở ra hy vọng mới trong điều trị. Mũi tiêm đầu tiên đã được thực hiện tại Bệnh viện Tam Hiệp, đánh dấu bước tiến quan trọng. #ALS #Tofersen #GenTherapy #Biogen #Yhoc https://ift.tt/XcnHhtD

Phillies Make $800,000 Announcement During Win Over Cubs https://www.rawchili.com/mlb/93569/ #ALS #Asplundh #Baseball #BrandonMarsh #BrysonStott #Chicago #ChicagoCubs #ChicagoCubs #CitizensBankPark #Cubs #J.T.Realmuto #JohnMiddleton #MajorLeagueBaseball #MLB #PhiladelphiaPhillies #ScottAsplundh

https://twitter.com/Phillies/status/1932209483515863111
#ALS #MND #ELA #SLA

Yeah maybe society shouldn’t push psych meds on people who are having trouble existing in this capitalist hellscape because of systematic problems.

Why should people be forced to take psychiatric medication just so they can more calmly except the systematic problems? Especially if they’re going to get #ALS from them? (And listen I am pro medication, Adderall changed my life. But I remember being prescribed SSRI’s in the early 2000s because I was having trouble affording life after the price gouging that never went down after 9/11. Prozac wouldn’t make my previously $400 now $700 rent more affordable.)

“Question Is there an association between prescribed use of common psychiatric medications and the risk and progression of amyotrophic lateral sclerosis (ALS)?
Findings In this case-control study including nearly 9000 individuals, prescribed use of #anxiolytics, #hypnotics and #sedatives, or #antidepressants was associated with a 34%, 21%, and 26% higher future risk of ALS. Prediagnostic use of such medications was also associated with poor prognosis after ALS diagnosis.
Meaning These findings suggest a potential link between psychiatric medications, or their indications (ie, psychiatric disorders), and the risk and progression of ALS.”
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2834877

#JAMA #study #psychiatry

(Edited to fix “health scape” (hellscape)

Officially over halfway into the Pieterpad!

286.6km logged so far!

#ALS consider donating to the underfunded field of ALS research.