Lmst

Secular anniversary of Mom's death today, from #ALS (#MND, #ELA, #SLA — same awful disease, same fatal outcome, different languages). I miss her. Miss the conversations we had, miss the ones we'll never have. Miss seeing her enjoy her grandchildren and seeing them enjoy being doted on by her. Lots to miss. And lots of great memories. Yesterday would have been Mom's and Dad's 70th wedding anniversary. She was tenacious and hung on for one last celebration.

Be kind, people. Share love.

Photo looking east before sunrise. Dark silhouettes of trees with a golden-red glow just over the horizon. The crescent moon is faintly visible low in the sky between the split trunks of a large, bare deciduous tree.

ALS -To The Moon And Back
I'm Lisa Wright, and with me is Portia Turbo. We talk honestly about friendship, joy, and my recent diagnosis of ALS — and what it means to face something big with humour, love, and the people who hold you up...

Great Australian Pods Podcast Directory: https://www.greataustralianpods.com/als-to-the-moon-and-back/

#AusPods #Podcasts #Podcasting #Australia #Society #Culture #Health #Wellness #PersonalStories #ALS

ALS -To The Moon And Back
Screenshot of the podcast listing on the Great Australian Pods website

Jamie-Lynn Sigler Was “Thrilled” For Eric Dane’s ‘Brilliant Minds’ Role Amid ALS Diagnosis: “That’s A Gift”
#News #ALS #BrilliantMinds #EricDane #GreysAnatomy #Health #JamieLynnSigler

https://deadline.com/2026/01/jamie-lynn-sigler-thrilled-eric-dane-brilliant-minds-als-1236683276/

#ALS is killing our son-in-law, David. I'm taking the #ALS50MileChallenge to raise money to find a cure. So far I'm at 26.26 miles in January. It will be too late for David, but may give hope to others.

My FB fundraiser:
https://www.facebook.com/share/17iK2HA464/

Or donate directly?
https://www.a

#ALS is killing our son-in-law, David. I'm taking the #ALS50MileChallenge to raise money to find a cure. So far I'm at 26.26 miles in January. It will be too late for David, but may give hope to others. My FB fundraiser: www.facebook.com/share/17iK2H... Or donate directly? www.als.org/association

David (right) with our younger son on a camping trip when their boys were little.

#ALSPodcast #39: 🌱 #Cannabinoide bei #ALS mit Prof. Dr. #MarkusWeber

https://www.youtube.com/watch?v=Wty54gWJQb4

Jul 7, 2024 Gespräche zur #Erforschung & #Behandlung der #AmyotrophenLateralsklerose und zum #LebenmitALS.
#CannabishaltigeMedikamente („Cannabinoide“) sind eine Form der symptomatischen Therapie bei der ALS, die bei #Muskelkrämpfen, #Faszikulationen, #Spastik, #Appetitminderung, #Schlafstörungen und anderen #Symptomen zum Einsatz kommen, die schwer zu behandeln sind. #Cannabis #Medizin #Gesundheit

Video zu Behandlung von ALS mit Cannabis.

05:00 Idee der THC-Therapie durch die Selbsterfahrung eines ALS-Patienten
07:00 placebo-kontrollierte Studie mit THC bei Muskelkrämpfen
10:00 Langzeiteffekt von THC (lange Halbwertzeit)
12:00 Cannabinoide und andere Medikamente bei Muskelkrämpfen (Ranexa/Ranolazin und Chininsulfat)
19:00 Faszikulationen – Einsatz von THC-CBD
21:00 Spastik – Einsatz von THC-CBD und anderen symptomatischen Medikamenten
23:00 verschiedene Anwendungsformen von THC-CBD (alkoholhaltiges Mundspray oder ölige Lösungen)
28:00 Spasmen – bevorzugte Anwendung von Cannabinoiden
31:00 Appetitverlust bei der ALS und Therapie durch Cannabinoide (und Olanzapin)
37:00 Schlafstörung bei der ALS – Ursachen & Faktoren
41:00 Cannabinoide zur Behandlung des Speichelflusses (Sialorrhoe)
43:00 THC-CBD als „Breitbandmedikament“ der symptomatischen Therapie bei der ALS
44:00 Endocannabinoid-System
46:00 Hypothese von zellschützenden (neuroprotektiven) Eigenschaften von Cannabinoiden
48:00 Erforschung des Endocannabinoid-Systems durch Positronenemissionstomographie (PET)
51:00 Vergleich der ALS-Versorgung zwischen Schweiz und Deutschland (Kritik an Pauschalen, Querfinanzierung durch Drittmittel, Pflegeversicherung)
59:00 Europäische Behandlungsleitlinien (Vorteile und Limitationen)
1:03:00 ALS-Forschung in der Arbeitsgruppe von Prof. Weber am ALS-Zentrum in St. Gallen

I’m raising money for @alsassociation.bsky.social@bsky.brid.gy on behalf of my son-in-law. (See ALT TEXT for what’s happening in the photos.) I have to walk 50 miles this month. I’m on track. 😅 My FB fundraiser is here: www.facebook.com/share/16dVj8... And the #ALS website: www.als.org/get-involved...

A technician demonstrates how the Hoyer Lift works when David can no longer walk to the bathroom.

David’s wheelchair can be operated by his foot. When he can no longer move his feet, he can use his eyes and a special iPad. He still needs a ramp at the front door to go outside, but there’s still snow on the ground anyway.

Cai Lei, người vận động cho nghiên cứu ALS, vừa chia sẻ thư chúc năm mới cập nhật tình hình sức khỏe và tiến bộ trong nghiên cứu. Dù đang ở giai đoạn cuối của bệnh, ông vẫn kiên trì làm việc 10 giờ/ngày với hy vọng tìm ra phương pháp điều trị hiệu quả. #ALS #CaiLei #NghiênCứuYtế https://ift.tt/tJOVQ6E

Find out more about #ALS here: www.als.org

The ALS Association: Dedicated...

When David is gone, these devices will go back to the ALS organization to help someone else who has this debilitating condition. #ALS

Our son, setting up our son-in-law’s eye mouse, so he can use his phone. 🧵 #ALS

A representative demonstrates the lift, that will lift David from his chair to his toilet after he loses his ability to walk. #ALS

Once our daughter gets a ramp built, she should be able to get David out of the house, where he can (hopefully) move himself in a motorized wheelchair, operated by foot, and later with his eyes. #ALS

The actor, best known for his roles in Grey's Anatomy and Euphoria, now requires round-the-clock nursing care as his battle with amyotrophic lateral sclerosis (ALS) intensifies, according to a deeply personal account shared by his estranged wife.

#ALS #GreysAnatomy

Câu chuyện cảm động về cặp vợ chồng Trung Quốc đối mặt với ALS đã truyền cảm hứng cho nhiều người. Họ không chỉ kiên cường trong từng khoảnh khắc mà còn hy vọng vào tương lai. Tình yêu và quyết tâm giúp họ vượt lên trên mọi thử thách. #ALS #KiênCường #TìnhYêu #SứcKhỏe [Video thật ý nghĩa](https://ift.tt/CnApQW2) https://ift.tt/CnApQW2

Vrij als een Vogel: Het Verhaal van onze Bevrijding

Hallo lieve kinderen! Ik ben Schildje, de Schildpad, en vandaag ga ik jullie meenemen op een rustige reis door de tijd, naar een bijzonder moment in onze geschiedenis. Bereid je voor op een avontu...

🌞 Leer verder: https://leeralles.nl/vrij-als-een-vogel-het-verhaal-van-onze-bevrijding/?feed_id=18215

#ALS #BEVRIJDING #EEN #HET #ONZE #VAN #VERHAAL #VOGEL #VRIJ

First ALS Reversal Reported Using Brain Temperature Therapy

https://ground.news/article/first-als-reversal-reported-using-brain-temperature-therapy_d97b00?utm_source=mobile-app&utm_medium=newsroom-share

This is an exciting piece of research from the US!

#neurodegenerative #disease #als #alzheimers

New #DiggingUpPositivity ft. @cosmik.bsky.social & charity numbers of #East #ALS ( @kijani.bsky.social , @joebear67.bsky.social ) #BLFC @confuror.bsky.social @furpocalypse.org And #Zootopia2 #MousePIForHire + @slofluffcon.bsky.social

https://www.youtube.com/watch?v=X_cHeb5Zifc
#Furry #Youtube #FurryFandom

The thumbnail of the new digging up positivity, showing cosmik with a k playing the piano while Thabo meerkat is having is scarf stuck in the same piano

"Those who are happiest are those who do the most for others." - Booker T. Washington
#GivingTuesday
1/7
By no means a complete list, here are some orgs you might want to consider on this #GivingTuesday. To begin, one of my favorites, #GoatsOfAnarchy which is located in NJ. They rescue and rehab #animals who are sick, injured, abused, or disabled & give them a forever home. https://www.goatsofanarchy.org/
2/7
#HeroInitiative - helping comic creators in need! There's no retirement or nest egg for more creators. #GivingTuesday https://heroinitiative.org/ #comics
3/7
#MobyKitRescue - fostering and saving the lives of bottle #kittens and older #cats looking for forever homes. You can donate once, monthly, buy from the Wish List, foster, or sponsor. https://www.mobykitrescue.org/ #GivingTuesday #animals
4/7
#WoodlandsWildlifeRescue takes on the patients that ordinary vets wouldn't be able to help. They receive no state, local, or federal funding. They save raccoons, skunks, opossums, rabbits, woodchucks, foxes, coyotes, bears, bobcats & more. https://woodlandswildlife.org/donate/ #GivingTuesday #animals
5/7
Friends of #ComicFusion have never stopped fundraising for #ALS in honor of Stacy Korn. Stacy & I ran the annual NJ Wonder Woman Day fundraiser for charities. After she passed, our focus is to help ALS find a cure. https://secure2.convio.net/alsa/site/TR/DIY/NationalOffice?pg=personal&px=7810103&fr_id=16212 #GivingTuesday
6/7
#WorldCentralKitchen provides #food around the world during crisis events from fires to hurricanes to war. https://wck.org/donate/ #GivingTuesday #ChefsForGaza #ChefsForUkraine #ChefCorps #ChefsForJamaica
7/7

Goats of Anarchy - taking care of special needs animals costs a lot. photo of one of the disabled goats living in a loving environment now for the rest of its life.

comic page style
Kirby Heroes, Helping comic creators in need, an artist's hand drawing
https://heroinitiative.org/

Friends of #ComicFusion have never stopped fundraising for #ALS in honor of Stacy Korn. Stacy & I ran the annual NJ Wonder Woman Day fundraiser for charities. After she passed, our focus is to help ALS find a cure. https://secure2.convio.net/alsa/site/TR/DIY/NationalOffice?pg=personal&px=7810103&fr_id=16212 #GivingTuesday
6/7

#ALS

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