#CerebralPalsy

2025-06-05

Christy Brown was born on 5 June 1932 in Crumlin, Dublin. He had 22 siblings of whom 9 died in infancy. He was an Irish writer and painter who had cerebral palsy and was able to write or type only with the toes of one foot.

His most recognised work is an autobiography, My Left Foot (1954). It was later made into a 1989 film of the same name, starring Daniel Day-Lewis as Brown.

#Ireland #IrishHistory #IrishLiterature #ChristyBrown #Dublin #CerebralPalsy #DanielDayLewis #OnThisDay

Christy Brown sitting in front of a pint of stout with a straw.
2025-05-21

We're having a fundraiser to help pay for our disabled son's care home. I would appreciate any donation, and if you're broke, I would appreciate it even more if you repost and help spread the word. #cerebralpalsy #autism #scoliosis

gofundme.com/f/support-phillip

His #Dream was to become an #Ironman. Despite having #CerebralPalsy , his helped make his dream come true. #BeingHuman

2025-05-01

Starting a fundraiser to assist with our son Phillip's medical care. #cerebralpalsy #autism #scoliosis gofundme.com/f/support-phillip Even if you can't donate, spreading the word would help.

2025-03-10

Day 6 of dealing with back pain; at least I can walk today.
The pain is below my spine, between my sides.. my best guesss is I pulled a mustle, and due to my #CerebralPalsy and #Scoleosis I heal from these things slower.
Took a bubble bath yesterday and used Dr. Teals Hemp bubble bath which first of all smelt way better than I expected, and it releaved SO much of my discomfort. I wish I remembered Hemp also makes one sleepy; took this bath in the afternoon and then took mini naps through the evening LOL.
Thankfully I have the day off work, and it will be a lo key day. Maybe work on my #LEGO Friends Mobile Bakery Cart build, and clean the house.

Raccoon🏳️‍🌈Raccoon@techhub.social
2025-02-05

#PSA about some #misinformation...

#CerebralPalsy is a #PhysicalDisability, not a #MentalDisability, the same as any other #NerveDamage, #NervousSystemDisorder, or #MobilityImpairment. Just because someone is in a wheelchair and has trouble talking does not mean they are "nonverbal" or have any issue with thinking. In fact, the number one stressor of people with cerebral palsy is the widespread misconception that they have a mental disorder: they are not, they have normally functioning brains with malfunctioning connections.

Regardless, #Disabled people, mental or otherwise, can still be #queer, and are still able to make decisions about their own lives for themselves. Even a severe mental impairment is not going to make someone believe they are #gay or #transgender when they are not.

This is simply a fact of reality, and it is the case whether the president of the United States, the owner of Twitter, or the moderators of Instagram accepted as true.

- TechHub #Moderation

(Context in reply)

thomas yager-maddentym@tilde.zone
2025-02-04

A little over 10 years ago, I had to drive home from Minnesota while my wife and daughter stayed behind at Gillette Children's hospital where the girl had a six-week inpatient rehab stay following neurosurgery to reduce the spasticity in her legs. I discovered on that drive that this tape possesses magical healing properties, and I am downloading a copy before I hit the road out of NYC today. (Also, I will be stopping over on the way home to spend the night with dear old friends very near Cleveland (hi @robhelpychalk!) so it is doubly appropos this time)

Bruce Springsteen - 1978-08-09, The Agora, Cleveland, OH

archive.org/details/bs1978-08-

#CerebralPalsy #CPTSD #Springsteen #MusicIsHealing

thomas yager-maddentym@tilde.zone
2025-02-03

I am weeping in Central Park
and church bells are ringing
#MarymountManhattanCollege #abilism #cerebralPalsy #cerebralPalsyAdvocacy #ableism

thomas yager-maddentym@tilde.zone
2025-02-03

I guess the slightly more optimistic and less swear-y addendum I want to put here also serves as a summary:

The saddest most angering/frustrating thing is it really is a great school that she worked her butt off to get into and I know she loves the training that she’s getting there and the people she’s working with. But she’s simply not able to enjoy any of it, because of the isolation and honestly pain of all the interalized stigma that she doesn’t easily shake off. She’s living her dream of studying acting in the top city in the world for it and she just feels bad all the time and it’s so unfair.

And I really want to be able to say to her, “This is a beautiful place for you and represents an incredible accomplishment requiring enormous reserves of strength and courage for you to even be standing where you are. And you deserve every good thing and feeling that should come along with that accomplishment. Please do not let the ableist bastards nor the bastard systemic ableism of this sick society take that away from you by ever believing for a second that you are less than anyone because of your disability nor any other reason. The reason your legs get so tired is because of all the asses you are kicking”

But the thing is, she’s an 18yo kid. She needs to hear this message from someone who isn’t her dad. And I don’t know where to find them and that makes me feel horribly discouraged

#MarymountManhattanCollege #abilism #cerebralPalsy #cerebralPalsyAdvocacy #ableism

thomas yager-maddentym@tilde.zone
2025-02-03

My kid is on the struggle bus today and every day it seems, even believing that she can make it through another semester of college (this is a kid with straight As full of a quadruple helping of Midwestern nice living in the naked city who everyone likes on sight) and it makes me want Ableism to become incarnate right in front of me so I can punch it right in the fucking face

Assholes on the bus telling her that her walker is in the way are pretty much ruining the whole thing for her. I mean it’s not quite that simple, but almost. Add in scores of similar microaggressions, and the enormous horrible fact the toll of spoons that bullshit takes on the daily exhausts her so she ends up isolated and missing out on social life and feeling isolated. Plus she NEEDs the time to sit quietly in her room and decompress, and I’m glad she knows to take it, but again that comes with missed opportunities to get out and be a student in New York and form friendships and alliances with her peers. She paid her fucking $2.90 and deserves to take up space just like any human. “your walker is in the way” == “people like you should go to the back of the bus” plain and fucking simple as that.

And while I sincerely believe that the college as an institution intends to be inclusive and the people in disability services specifically and the admin in general are all kind and well-meaning people, they have been contributing approximately zero in the way of creative ways to help her confront and cope with this offensive and dehumanizing bullshit that she has to deal with on the daily simply to commute to class. Although to be fair, I don’t know what the fuck to do to help either. God DAMN it

#MarymountManhattanCollege #abilism #cerebralPalsy #cerebralPalsyAdvocacy #ableism

Annette C. Boehmferngirl@det.social
2025-01-22

Listen to Latif Askia Ba's poem "22 septembre" here: soundcloud.com/brooklynpoets/l
His collection The Choreic Period is out now in Milkweed Editions' exciting new Multiverse series.
#disabilityPoetics #poetry #literature #cerebralPalsy #reading #contemporaryPoetry #brooklynPoetry @writingcommunity

22 septembre (poem by Latif Askia Ba)

In the six o'clock evening. I am waiting 
outsidesun. Someday my prince. Inflected.
The man lifts me. With a crank. Into
the accessaride. A brand new room. Full
of sitting down. 
Sometime in college
I started reading
myself. In beautiful compiler code.
Hooking my chair into place. In case
we flipover. I can dangle from the roof. 
Like a monkey. I watch
as he takes three dollars
out of my wallet. 
He counts each
one out loud.
2024-12-07

Hello, thanks for finding me here! 👀 My Intro: youtu.be/XuLUVT4Zs6E?... Mutual Aid Program & Kofi: https//Ko-Fi.com/ccaera #Methylation #POTs, #MCAS, #hEDS, #CerebralPalsy #AuDHD #CovidSafeProvider #Hello

Hello Bluesky!

Dr. Marie McNeelyPhDMarie@qoto.org
2024-12-03

Physical activity can provide many benefits, but cerebral palsy and other disabilities can affect how a person engages in physical activity and what activities they should do to maximize their benefits. We discuss new research on exercise in people with cerebral palsy in our latest episode!

cparf.org/cwp-s3-ep22/

#cerebralpalsy #disabilities #exercise #physicalactivity #research #science #scicomm #podcast #podcasts

On the left side of the image, there are three stacked text blocks. The top one reads, "New Podcast Episode!" in white on a dark green background. The middle block reads, "Season 3, Episode 22, Research Roundup:" in dark gray on a white background, and the lower block reads, "Expanding Our Understanding of Physical Activity in Individuals with Cerebral Palsy" in white text on a light green background. On the right side of the image, the cover art for the podcast is displayed. The text reads, "Changing What's Possible: The Disability Innovation Podcast. There are lines in different shades of green running horizontally across the cover art, resembling a circuit. The logo for Cerebral Palsy Alliance Research Foundation appears in the bottom left corner.
Dr. Marie McNeelyPhDMarie@qoto.org
2024-11-14

The separate parts of our body are connected, and problems in one area can affect other aspects of our physical and mental health. Our latest episode discusses new research on relationships between posture and other aspects of CP like pain, balance, and quality of life. These studies provide valuable insights to inform treatment approaches and future research.

cparf.org/cwp-s3-ep20/

#podcast #podcasts #science #research #cerebralpalsy #disability #disabilities

On the left side of the image, the cover art for the podcast is displayed. The text reads, "Changing What's Possible: The Disability Innovation Podcast. There are lines in different shades of green running horizontally across the cover art, resembling a circuit. The logo for Cerebral Palsy Alliance Research Foundation appears in the bottom left corner. On the right side of the image, there are three stacked text blocks. The top one reads, "New Podcast Episode!" in white on a dark green background. The middle block reads, "Season 3, Episode 20, Research Roundup:" in dark gray on a white background, and the lower block reads, "Postural Differences  May Impact Pain and Other Aspects of CP" in white text on a light green background.
Dr. Marie McNeelyPhDMarie@qoto.org
2024-10-31

The impacts of cerebral palsy span a person's whole lifetime and will likely change with age. Our latest podcast episode explores new research aimed at better understanding important issues related to managing cerebral palsy throughout adulthood.

cparf.org/cwp-s3-ep18/

#cerebralpalsy #research #science #disability #disabilities

On the left side of the image, the cover art for the podcast is displayed. The text reads "Changing What's Possible: The Disability Innovation Podcast." There are lines going across the cover art in various shades of green that mimic a circuit. In the lower left corner, the logo for Cerebral Palsy Alliance Research Foundation appears. On the right side of the image, there are three colored blocks stacked vertically. The first block is dark green, and the text reads, "New Episode!". Underneath, there is a white block with text that reads, "Season 3, Episode 18, Research Roundup:". The final block is light green, and the text reads, "New Studies to Support Lifelong Management of CP".

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