🌼“You don’t have to earn your rest.
You don’t need to justify your limits.
Your body is healing—and that matters. 🌼

https://breathebloom.co/f/what-it-means-to-be-a-spoonie
#breathebloom #chronicfatigue #restisproductive #spoonielife

🌼 “You are not lazy. You’re managing a body that needs rest and rhythm. 💛

https://breathebloom.co/f/what-it-means-to-be-a-spoonie
#breathebloom #chronicfatigue #restisproductive #spoonielife

Find the Cause Behind Your Chronic Symptoms | AAI Clinics

Fatigue, brain fog, or poor sleep? These could be signs of hormonal issues. Get tested and treated by experts at AAI Clinics.

#ChronicFatigue #BrainFog #HormoneTesting #AAICare

https://www.aaiclinics.com/symptoms/

#chronicillness #autoimmune #chronicallyill #chronicillnesshumor #chronicillnessmemes #autoimmunememes #fibromemes #fibromyalgia #spoonie #chronicillnesslife
#fatigue #cfs #mecfs #chronicfatigue

“Rest recharges my energy”; experiences and perceptions of rest in adults with long-term conditions and fatigue in rehabilitation: a qualitative study
https://www.tandfonline.com/doi/full/10.1080/09638288.2025.2512587

"Lived-experience participants noted physical symptoms, while HCPs highlighted “all-or-nothing” thinking as a significant barrier."

#longcovid @longcovid #fatigue #chronicfatigue #fibromyalgia @fibromyalgia #multiplesclerosis @multiplesclerosis #arthritis #Sjogren #Sjögrens

7.7: Ariel & Christina Discuss Living with a Disability as a Solarpunk

Today Christina talks to Ariel about what it's been like to live as a solarpunk with a visible - and then invisible - disability. Science fiction has spent decades dreaming of how future tech will make disabled people able to function as if they were fully abled. Now solarpunk has arrived on the scene to ask why should disabled bodies have to always be the ones to adapt? It can be uncomfortable, intrusive - not to mention expensive. Solarpunk wonders why can't cities, society, workplaces, and the like be the ones to use the tech to make themselves more accessible to and inclusive of disabled people?

Tune in as Ariel and Christina discuss the portrayal of disability in science fiction and solarpunk and how having to suddenly live with a disability opens your eyes to many of the ways cities fail people with disabilities.

https://youtu.be/nITURrKfwvI

#solarpunk #SolarpunkPresentsPodcast #Episode #SeasonSeven #disability #spoony #SpoonTheory #spoonies #ChronicPain #ChronicFatigue #SolarpunkAndDisability #Ableism #InvisibleDisability #ScienceFiction #SciFiAndDisability

*June Update*

(Ty to everyone who donated and shared last month. Unhealthy air quality lately from wildfires. Shavuot שבועות was the 1st to 3rd this month. )

Pain leaves me in bed
Struggling financially
No vehicle
HVAC and insulation leaks bad
Busted electrical outlets
Busted plumbing
Leaking roof
Water damaged floors
Mom's recovering
Struggling to get disability
Need food delivered

Still need to pay for:

  active goal 🌡️
  goal met ✅
  to be determined ⬜

• transit - $72/200 month 🌡️
• food - $0/100 month 🌡️
• medications - $12/100 month 🌡️
• medical masks - $10/10 month ✅
• home supplies - $0/50 month 🌡️
• braces - $0/7000 🌡️
• transition $0/50000 ⬜
• phone $0/350 ⬜
• computer $0/1000 ⬜
• etc

Anything helps. Please boost / share 🔁

https://venmo.com/u/Phoenix-Elektra

https://www.paypal.me/anonymous356

https://cash.app/$PhoenixElektra

#trans #enby #disabled #wheelchairuser #neurodivergent #mutualaid #MutualAidRequest #aid #donate #crowdfund #ocart #chronicpain #chronicillness #chronicfatigue #bunny

#ChronicFatigue #CFS #MyalgicEncephalomyelitis #MEcfs #InvisibleIllness #ChronicIllnessAwareness #SpoonieLife #PacingNotPushing #PostExertionalMalaise #ChronicFatigueSyndrome #MEAwareness #SpoonieSupport

#pots #longcovid #ChronicFatigue #CogFog #disability. Gathered up my spoons to have a shower. By the time I started to get dizzy I was pleased with myself thinking I had done all of the things. I got out of the shower to find, I had conditioner still in my hair, & had shaved same armpit twice!

busybee: fluffy rambles: May is/was ME/CFS awareness month https://beesbuzz.biz/blog/5177-May-is-was-ME-CFS-awareness-month #ChronicFatigue #Fibromyalgia #Disability #LongCOVID #MECFS #Blog

May is/was ME/CFS awareness month

https://fed.brid.gy/r/https://beesbuzz.biz/blog/5177-May-is-was-ME-CFS-awareness-month

After a lot of reflection, I’ve left the Master of Educational Neuroscience. A few things pushed the decision. Poor admin was a factor, but more importantly, I realised I hate doing research and I’ve had to face some fears I’ve avoided for a long time. I’ve gone back to the Master of Counselling I started a few years ago.

The neuroscience knowledge is still incredibly valuable and will shape how I practise, but I need something that gives me practical skills to work with people now. I’m not sure a PhD is something I want to pursue, and I don’t want to put all my eggs in one basket.

Now I have to decide where to finish the course. I’m enrolled at a private counselling college that has offered me a partial scholarship. They specialise in counselling, which is a strength, but classes run from 5:30 to 9 pm twice a week, which is when I function least well. The other option is returning to the same university where I started. I’ve already completed two units there, and while there’s no scholarship, the structure might suit me better.

Decision fatigue is real.

#neurodivergent #audhd #academiclife #counselling #careerchange #chronicfatigue #realworldskills #neuroscience #highered #wellbeing #accessibility #actuallyautistic

#chronicillness #autoimmune #chronicallyill #chronicillnesshumor #chronicillnessmemes #autoimmunememes #fibromemes #fibromyalgia #spoonie
#cfs #mecfs #chronicfatigue #fatigue #sotired #tiredmemes #funnytexts

Artist: @dear_fragile_body on Insta

#chronicillness #chronicfatigue #cfs #mecfs #autoimmune #chronicallyill #fatigue #spoonie #spoonielife #chronicillnesslife

[3] Secondly, I had a case of mild COVID. At the time I was in my late 20's, otherwise completely healthy. My life was completely flipped in a matter of weeks and months. COVID-19 infection complications for me include POTS (4), #brainfog (5), #migraines, debilitating increase in ADHD symptoms, and #cfs (6). I personally know several others like me. Mild != no consequences

#infection #PosturalOrthostaticTachycardiaSyndrome #chronicfatigue #chronicfatiguesyndrome

Fellow ME/CFS havers, are you monitoring any physiological stats (heart rate, sleep, calories etc.) to control your energy levels? What kind of information do you get from that?

#Disability #MECFS #ME #CFS #ChronicFatigue

Nothing hurts more than being called lazy when you are struggling to even get out of bed.

#chronicillness #mentalhealth #depression #chronicallyill #autoimmune #chronichealth #chronicdisorder #chronicfatigue #mecfs #cfs

Chronic Fatigue Syndrome or whatever it's called these days. How do you know when it's not just regular tiredness?

#chronicfatigue

#chronicpain #fibromyalgia #longcovid #chronicfatigue #mecfs #healthcare