Well, day 2 of being home after an exhausting, over-stimulating week down South, and I'm still struggling with headaches.

I haven't even tried to use my PC today. I know what the pain would be like.

I don't know what's going on with my #ChronicPain, or how it's going to affect/disrupt/dictate my digital life.

But it's been rough for 3 months. I hope I don't have to make drastic decisions.

Went digging in my medical files today to check a few things and realized that I have been trying to get answers with no progress for over a decade. No wonder I'm so worn out and cynical.

#ChronicPain #ChronicIllness

i have been in excruciating pain all day btw

great start to the year

#fibromyalgia #chronicpain

Is Mindfulness Risky or Even Dangerous? My latest article franticworld.com/is-mindfulne... #anxiety #stress #depression #deepermindfulness #vedana #feelingtone #headspace #ArtOfBreathing #opiods #PTSD #pain #chronicpain

franticworld.com/is-mindfulness...

Patienten haben künftig Anspruch auf eine kostenfreie Kopie ihrer Behandlungsakte. Arztpraxen und Kliniken müssen Patienten auf Wunsch die erste Kopie unentgeltlich zur Verfügung stellen, es sei denn, therapeutische Gründe oder Rechte Dritter sprechen dagegen.
https://bit.ly/4pQ005o

#crpsselbsthilfe #CRPSgehtallean #chronischeschmerzen #Nervenentgleisung #morbussudeck #ehrenamt #selbsthilfe #gemeinsamstark #chronicpain #pain #crpsawareness #ColorTheWorldOrange #CRPSOrangeDay #reflexdystrophie

Hi Fediverse!! 👋😊

My name is Kian (Kee-ahn).

I'm #Persian, an #Angelino (#LosAngeles), and sometimes #sassy. I'm here to discuss #technology, #society, and #queerness; complain about #politics, #AI (or whatever the current exploitative fad is), and my #PetPeeves; share #knowledge, #truth, and my greatest #fears; and also #procrastinate.

I'm always listening, learning, and growing. I try to speak from my experiences (including my privilege), and make many mistakes along the way. I invite you to challenge my thoughts, share your perspectives, agree or disagree, and otherwise interact with me; and maybe together we can grow as individuals and strengthen this community.

#Equity #Justice #SocialJustice #Community #Sustainability #Accessibility #Health #ChronicPain #Anxiety #Healing #DeathPositive #SexPositive #Queer #Gay #LGBT #Love #Peace #Growth #Reflection

#Science #DataScience #Biochemistry #BoardGames #DadJokes #Privacy #FLOSS #Linux #Sweet #Sour #Pop #Alt #DarkPop #Mystery #Fantasy

#Introduction

(Not ME-specific)

"Cost-of-disability payment a priority for 2026, says social protection minister"

"Dara Calleary said he wanted to see a budget proposal provided to him before the summer"

https://www.irishexaminer.com/news/politics/arid-41767685.html

#Disabled
#Disability
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Anyone have an office chair they can sit in for prolonged periods (ideally more than an hour)? Also open to non-conventional options. My current option really aggravates my lumbar pain. :meow_pain:

#hEDS #ehlersdanlos #hypermobility #disabled #disability #chronicillness #chronicpain

My doctor has straight out said I’m going to die if I stay here and I’m declining fast.

Even if you can’t help financially, please share my chuffed & other links: https://chuffed.org/project/161937-help-anna-escape
BMaC: https://www.buymeacoffee.com/Halcionandon
Beem: Halcionandon

Everyone is scattered on so many apps it’s hard to get any traction.

Thanks. 🙏

#MutualAidRequest #MutualAid #Narcissist #NarcissisticAbuse #Crowdfund #Neglect
@crowdfunding
@mutualaid
#LongCovid #NewYear #PWLc
@longcovid
#MECFS #PWME #SevereME #ChronicPain
@mecfs

Help me escape abuse and finally get out of here this #NewYear 🎉🥳

Please help by hitting 🔄 BOOST , 📝QUOTE & 💸 GIVE if you can. Share on all social media platforms.

https://chuffed.org/project/161937-help-anna-escape

### Urgent Appeal: Help Anna #Escape #Abuse – Time is Running Out!

🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from Abuse and Neglect!

Anna, an Australian woman battling severe #MyalgicEncephalomyelitis (#ME) for over 20 years, is trapped in a toxic home with abusive family members. Bedbound and forced to stay in a dark room, she is vulnerable and that vulnerability is taken advantage of. She is not allowed access to #disability aids or workers and needs approval for all mailed items including food, which may be binned or sold regardless. There are no steady rules, just excuses for her abuse. She faces deliberate exposure to sensory overload, days without food, constant yelling, stolen belongings, and three #COVID infections in 15 months due to unmasked family members. She now has #LongCovid as well. Compounded by #endometriosis, #hypothyroidism, #POTS, #chronicpain, and more - her health is deteriorating rapidly.

** Her doctor fears that staying in this environment will kill her.**

#Australia's #healthcare, #disability, and #domesticviolence systems have failed her catastrophically,. This systemic neglect has created a life-threatening crisis – and for Anna, it's already too late to wait.

**Anna's Critical Needs – Your Support Can Save Her:**

- **Safe Housing ASAP:** Anna desperately needs a quiet room in a COVID-conscious (masking) home in #Melbourne. She can pay rent $250 per week, with funded meals and limited care hours; long-term help may qualify for Carer's Allowance. She has indicated she may need incidental help.

- **Secure Relocation:** Specialized transport to reduce infection risks and suit her ME. Funds needed for moving costs and aids until #NDIS access.

- **Expert Advocacy:** A #DisabilityAdvocate for complex cases to navigate the system with her. Even a friend just willing to help. She can’t do this alone.

- **Communication Aid (#Australia, preferably #Victoria):** Someone to handle phone tasks – all documents provided. Brain injury has made phone use impossible.

-**This is a Shameful Failure – But You Can Help** In a resource-rich nation, no one should rot in abuse while services ignore them. Don't let Anna become a statistic.

Please #donate, #share, or offer direct #help now!

If you can provide #housing, #advocacy, or calls, contact immediately at -

Halcionandon at gmail dot com

If Chuffed is not your thing, you can donate at:
BMaC- https://www.buymeacoffee.com/Halcionandon
Beem: Halcionandon

Thanks so much for reading. Please share!

Read more about Anna's story:
https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

#MutualAidRequest #MutualAid #Narcissist #NarcissisticAbuse #Crowdfund #Neglect
@crowdfunding
@mutualaid
#LongCovid #NewYear #PWLc
@longcovid
#MECFS #PWME #SevereME #ChronicPain
@mecfs

#satire #chronicpain #pain #chronicpainmemes #chronicillnessmemes #chronicillnesshumor #chronicillness #chronicallyill

Share a strategy (any kind) you use to calm yourself down when you are catastrophizing, and why you think it works for you.

#MentalHealth #AuDHD #ADHD #ActuallyAutistic @autistics #ChronicIllness #Disability #AskFedi #Boost4Reach #ChronicPain

A Surprising Treatment for Chronic Lower Back Pain: Cannabis. Two new drug trials find a THC-based cannabis extract could help with a condition that affects millions

https://www.wsj.com/health/wellness/lower-back-pain-treatment-cannabis-fcf22d0e?st=w1EiGG&reflink=desktopwebshare_permalink#research #thc #chronicpain

A Surprising Treatment for Chronic Lower Back Pain: Cannabis. Two new drug trials find a THC-based cannabis extract could help with a condition that affects millions https://s.faithcollapsing.com/p8cg8#research #thc #chronicpain

https://s.faithcollapsing.com/...

How to do mindful walking. www.tiktok.com/@drdannypenm... #mindfulwalking #gratitude #presence #deepermindfulness #vedana #feelingtone #mindfulness #stress #headspace #artofbreathing #anxiety #depression #PTSD #pain #chronicpain

tiktok.com/@drdannypenman...

Der Bundesrat hat am 19.12.2025 ein Steueränderungsgesetz beschlossen, das ab 2026 Ehrenamtliche und Vereine durch höhere Freibeträge, mehr Haftungsschutz und weniger Bürokratie spürbar entlastet. Zudem werden E-Sport als gemeinnützig anerkannt und Photovoltaikanlagen vereinfacht ermöglicht.

https://bit.ly/3Lm7PAP

#crpsselbsthilfe #CRPSgehtallean #chronischeschmerzen #Nervenentgleisung #morbussudeck #ehrenamt #selbsthilfe #gemeinsamstark #chronicpain #pain #crpsawareness

UPDATE GOAL REACHED! THANK YOU EVERYONE

Hey folks, im out of pain management consumables. Please help so I can spend as little time in the new year in pain as possible?

hey friends, I know times are tough but im running low on consumable pain management tools (ie, medical weed, over the counter pain meds, CBD topicals).

Any chance folks could help me out with like $100CAD so I can restock?

https://paypal.me/arianagiroux

#transmutualaid #disabilitymutualaid #chronicpain

We’re about to have a 40ish degree (Fahrenheit) temperature drop, so tonight I took pain meds just so I could finish unpacking my suitcase. Fuck #ChronicPain.