I have reached the stage of my current dose of #Crohns meds where my body is letting me know the med is low and starting to rumble.
I'm due tomorrow.
Thank the stars.
I have reached the stage of my current dose of #Crohns meds where my body is letting me know the med is low and starting to rumble.
I'm due tomorrow.
Thank the stars.
Good god I am back on the steroids and am starting to feel more normal than I have done in about six weeks. #crohns can do one.
Time to play my least favorite game: Why is my stomach being a bitch
#chronicillnesshumor #chronicillnessmemes #ibshumor #ibsmemes #crohnsmemes #crohnshumor #crohns #ibs #gastritis #gerd #stomach #stomachproblems #stomachache
This brought to you by learning today that I'll have four weeks to potentially find and see a new care team, get them to issue a new script to a new pharmacy benefit provider, get pre-approval for Skyrizi from said pharmacy provider, and get the med delivered by a new specialty pharmacy.
But I can't even find out yet if my doctors are in network with the new plan or if the benefits will even consider covering Skyrizi. So that's exciting.
No anemia! Iron infusions FTW!! Awaiting B12 results…
It's #skyrizi injection day.
I missed the morning appointment on my calendar and just happened to have a mental spark of "isn't that supposed to happen today?"
So I clearly need to do something better with my reminders/appointments/thingamajigs.
Anyway, it's out and coming to room temperature.
Still better than having to drive 2 hours for a 3 hour IV infusion, then 2 hours back (and after Benadryl!) like I was doing for Inflectra.
Aren't bodies fun?
I just created a team for the Crohn's & Colitis Foundation Take Steps walk in DC on 17 May 2025!
Please Join me, donate or even just cheer us on (can be virtually)!
I have created the team...
Wizard of IBD!
https://takesteps.crohnscolitisfoundation.org/participant/Ryan-Stapleton
This is a cause that has impacted me personally as someone with Crohn's disease and have had it over 30 years at this point! Wow I can't believe it has been so long.
Scientists at our university and LMU University Hospital Munich combine dietary therapy with fecal microbiome transfer to improve long-term treatment for #Crohns disease. By reshaping the #gutmicrobiome, they aim to sustain remission and reduce #inflammation: http://go.tum.de/395259
📷 A.Eckert
Wow!
Linking a particular bacteria of the gut microbiome in a chain that could potentially be a source of major depression. Follow up research could also show how environmental contaminants combined with the metabolism of the gut microbiome could be linked to autoimmune and other conditions.
Science is amazing!
Can't wait to see where this drives other future research and, eventually, treatments.
https://hms.harvard.edu/news/drawing-line-gut-microbiome-inflammation-depression
This explains A LOT in my medical history, how about you? The research going on in this field right now is super exciting. Hopefully it continues 😕.
#inflammatoryboweldisease
#chronicillness
#medsky #healthygut
#mentalhealth #type2diabetes
#inflammatoryillness
#disability #crohns #Ulcerativecolitis
https://hms.harvard.edu/news/drawing-line-gut-microbiome-inflammation-depression
That would certainly explain it.
#crohns #crohnsDisease
Skyrizi injection done.
A five minute process is so much easier than a three hour infusion. Or the one hour infusion at a facility two hours away that the initial Skyrizi startup process involved.