Today is the 1st of May, which means it's the start of Ehlers Danlos Syndrome and Hypermobile Spectrum Disorder Awareness Month!
Hello and solidarity to all of my zebra siblings 🦓
#hypermobilesyndrome #Hypermobilespectrum #hypermobilespectrumdisorder #HSD #EDS #vEDS #hEDS #ehlersdanlos #ehlersdanlossyndrome #hypermobility #hypermobile #hsd #chronicillness #chronicpain
Windows and back door open cos Spring is summering and it’s hecking hot at 6am. Body fed up of lying down and also aching. I’m seeing my therapist again and it’s helping, I’m able to go with the reason for everything of “autism, huh” cos it’s pure acceptance at this point, though fucking hell, I get bored of fatigue, who wouldn’t. She’s very informed on #autism and adamant I have #EhlersDanlosSyndrome. I’m stiff but apparently also hypermobile. Fingers bend back a bit, is that not normal?
https://www.lovenhl.com/1356970/ Chaz Lucius Retires at 21: The Heartbreaking Story Behind His Decision #AthleteHealth #CentralDivision #ChazLucius #EDSAwareness #EhlersDanlosSyndrome #HealthStruggles #HockeyRetirement #NHL #ProfessionalHockey #SportsNews #WesternConference #WinnipegJets
@emptyfortress I boosted it ⬆️ but you could get more visibility using the hashtag #EhlersDanlosSyndrome - and even find people with the syndrome there.
Condition that led to Jets prospect’s retirement causes fragility, instability, expert says
The rare medical condition that has led to the retirement of a Winnipeg Jets prospect at 21 is unfamiliar to the general public, the head of an advocacy organization says.
#medical #sports #retirement #Winnipeg #Health #EhlersDanlosSyndrome
https://globalnews.ca/news/11123329/winnipeg-jets-chaz-lucius-ehlers-danlos-experts/
Condition that led to Jets prospect’s retirement causes fragility, instability, expert says
The rare medical condition that has led to the retirement of a Winnipeg Jets prospect at 21 is unfamiliar to the general public, the head of an advocacy organization says.
#medical #sports #retirement #Winnipeg #Health #EhlersDanlosSyndrome
https://globalnews.ca/news/11123329/winnipeg-jets-chaz-lucius-ehlers-danlos-experts/
Zebra shadows 🦓 🖤🤍🖤🤍🖤
#monochrome #blackandwhite #trees #shadows #zebra #eds
#ehlersdanlos #ehlersdanlossyndrome
Well, I'm sick AGAIN. According to my calculations, I've been healthy for three weeks and two days this entire year so far. It seems I have no immune system left anymore.
I'm going to have to rethink how/if I leave the house.
I never stopped masking, btw.
Apparently, I'm a gremlin - do not feed me after midnight. In my case, I get dysautonomia-induced high blood sugar.
I love chronic illness!
I have to keep reminding myself that I'm allowed to rest even when crazy shit is going on around me. The movement will go on, and when I am able to come back, someone else can take a break.
But right now I have bronchitis, so I need to sit the fuck down and shut the fuck up.
Today I need to:
Clean common spaces for a guest
Make some more bujo pages
Sort amazon returns
Find UV lamp
Do self-tan
Yesterday I was too fatigued to do much more than breathe, and at times even that was a struggle. #chronicillness is such a pain in my ass, literally and figuratively.
From The Ehlers-Danlos Society: ✨We’re thrilled to announce the release of a dedicated volume in Frontiers in Neurology titled “Neurology and Connective Tissue”, featuring the outstanding contributions of members from The International Consortium on the Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) and the @ehlers.danlos CORE Network of Excellence.
Read: https://www.frontiersin.org/research-topics/58193/neurology-and-connective-tissue/articles #EhlersDanlosSyndrome
According to my friend, I have many symptoms in line with EDS.
..,
Yayy another thing to research. People with EDS if you have advice for navigating this I’d be indebted 🙏
#EDS #ehlersdanlossyndrome
