Out of their pain, Lauren Miller Rogen and Seth Rogen have given us such a gift. #HFC, a foundation created in honor of Lauren's mother, Adele, who died of early-onset Alzheimer's. I am so glad to see their work recognized by Time Health 2025.
#EndAlz
The memoir I wrote with #UCSF #neurologist, Dr. Bruce Miller, Finding the Right Words: A Story of Literature, Grief, and the Brain is now available through the HFC website. Please check out the bookshop and see the other books on #caregiving and #brain health. Thank you to #LaurenMillerRogen and #SethRogen for your advocacy and profound generosity.
"#Alzheimers is relentless, and we as advocates, must be as well."
1. Seth Rogen spoke up for science to the techbros whose $ supports an autocracy dedicated to the evisceration of research that makes our lives better by alleviating suffering. Zuckerberg, Bezos et al were there to celebrate the Breakthrough Prize, & Rogen called them out on their bad, bad faith. #Hero
2. I moderated a grief support group for the Rogens' foundation, HFC. The meeting helped some people who were having a hard time. #EndAlz
3. This bougainvillea #Bloomscrolling
My #website went live yesterday and I want to share it (again) because I'm so pleased with how it came out. There are links to some of the #dementia outreach presentations I've done, as well as some very pretty images. Hope you take a look and like!
As part of Dowder’s Caps Care Community Award, @MSEFndn@twitter.com and Dowd’s Crowd will be donating $10,000 to both @ALZNCA@twitter.com and @sokidssoar@twitter.com.
The donation will continue to help make the sport more inclusive, and honor his dad, Alan, who was diagnosed with Alzheimer’s in 2020.
The "prodromal" phase of #Alzheimer's can last 15-20 years; that is, the brain is being invaded -- slowly -- before clinical presentations appear (for example, word-finding; memory; spatial disorientation). Check out this explanation of a new blood test whose predictive accuracy seems extraordinary. @erictopol also discusses the benefits of intervening early and addressing #modifiableriskfactors .
Thank you @cobalt for directing me to this article.
https://erictopol.substack.com/p/the-breakthrough-blood-test-for-alzheimers
Keeping Each Other Company is the monthly grief support group I lead, thanks to #HFC (Lauren Miller Rogen and Seth Rogen's foundation established in honor of Lauren's mother who died of early-onset Alzheimer's). We meet next week. If you are or were a #caregiver to someone w/#dementia & would like a space to share your feelings &/or hear others' share theirs, please use this google doc & HFC will match you with the group that fits your needs best.
https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform
Keeping Each Other Company is the monthly grief support group I lead, thanks to #HFC (Lauren Miller Rogen and Seth Rogen's foundation established in honor of Lauren's mother who died of early-onset Alzheimer's). We meet next week. If you are or were a #caregiver to someone w/#dementia & would like a space to share your feelings &/or hear others' share theirs, please use this google doc & HFC will match you with the group that fits your needs best.
https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform
Today's cuts to #Alzheimers research coming up in Booker's filibuster. -- Thank you Senator #Cortez-Masto of Nevada for sharing the story of your grandmother who died of Alzheimer's. As you say, this is personal.
Today's cuts to #Alzheimers research coming up in Booker's filibuster. -- Thank you Senator #Cortez-Masto of Nevada for sharing the story of your grandmother who died of Alzheimer's. As you say, this is personal.
Beautiful, gut-wrenching #poetry.
I am leading a monthly grief support group "Keeping Each Other Company: #Caregiving and #Grief" over Zoom for #HFC, the foundation established by Lauren Miller Rogen & Seth Rogen in honor of Lauren's mother, Adele, who died of early-onset #Alzheimer's. If this is something you think might be helpful, just fill out the the form below & and someone from HFC will reach out. If the group I am moderating isn't the right fit, you will see many other options. 💜
I am leading a monthly grief support group "Keeping Each Other Company: #Caregiving and #Grief" over Zoom for #HFC, the foundation established by Lauren Miller Rogen & Seth Rogen in honor of Lauren's mother, Adele, who died of early-onset #Alzheimer's. If this is something you think might be helpful, just fill out the the form below & and someone from HFC will reach out. If the group I am moderating isn't the right fit, you will see many other options. 💜
It was an honor to be a panelist on #Dementia Stories for Impact: Dementia Life Course and Storytelling, sponsored by the #AlzheimersAssociation and #UCSF. My fellow authors and colleagues talked about the importance of #narrative, #empathy, #brain health, and Dr. Bruce Miller and I talked about our work together on my #memoir, Finding the Right Words: A Story of Literature, Grief, and the Brain. I hope you find this discussion helpful.
It was an honor to be a panelist on #Dementia Stories for Impact: Dementia Life Course and Storytelling, sponsored by the #AlzheimersAssociation and #UCSF. My fellow authors and colleagues talked about the importance of #narrative, #empathy, #brain health, and Dr. Bruce Miller and I talked about our work together on my #memoir, Finding the Right Words: A Story of Literature, Grief, and the Brain. I hope you find this discussion helpful.
The Alzheimer's Association has uploaded the video of the "Narrative Showcase: Dementia, Life Course, and Storytelling." Here is the link. You just need to register and it is free to watch. I hope you find it valuable.
https://training.alz.org/products/4871/narrative-showcase-dementia-life-course-and-storytelling
The Alzheimer's Association has uploaded the video of the "Narrative Showcase: Dementia, Life Course, and Storytelling." Here is the link. You just need to register and it is free to watch. I hope you find it valuable.
https://training.alz.org/products/4871/narrative-showcase-dementia-life-course-and-storytelling
If you are a #caregiver to someone w/ #dementia & are feeling sad, feeling nothing at all, feeling like a sympathetic ear might help, please come to "Keeping Each Other Company: #Caregiving and #Grief" today at 11 am PT, 2 pm ET. HFC has given me the opportunity to help by leading this monthly support group. Today is our 1st meeting.
Please fill out the form below and someone will be in touch once you've submitted it.
https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform
If you are a #caregiver to someone w/ #dementia & are feeling sad, feeling nothing at all, feeling like a sympathetic ear might help, please come to "Keeping Each Other Company: #Caregiving and #Grief" today at 11 am PT, 2 pm ET. HFC has given me the opportunity to help by leading this monthly support group. Today is our 1st meeting.
Please fill out the form below and someone will be in touch once you've submitted it.
https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform
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