Lmst

#chronicillness #chronicallyill #autoimmune #autoimmunedisorder #spoonie #spoonielife #chronicillnesslife #invisibleillness

@theinvisible81 - When one 'beats' Illness we applaud their strength When one dies from Illness we mourn their death When one has #Chroniclllness, we blame their lack of willpower to make themselves better. Their loss is never mourned, their their daily fight never applauded

On International Day of #People with #Disabilities, please note some disabilities are #invisible

#invisibleillness #disabled #disabledpeople #DisabilityRights #DisabilityRightsAreHumanRights
#IDPD #IDPD2025 #IDPD25 #IDPWD #IDPWD25 #IDPWD2025 #Disability
@mecfs @longcovid @pots
#LongCovid #MEcfs #CFS #PwME #hiddenillness #chronicillness #Invisibledisability

5 stick images of people. In the first 4, the person has a disability aid but the fifth one does not.

Text:
some disabilities look like this

#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

#ChronicIllnessMemes

Chronic illness awareness Dear Santa, This Christmas I would like a doctor that understands my Chronic Illness Image of Santa

Opinion piece on the word "journey" as a problematic euphemism for chronic illness.

"Sugarcoating my bitter pill, a chronic disease, by calling it a “journey” might sweeten it for you, but not for me."

https://www.statnews.com/2025/11/25/chronic-disease-journey-long-covid/

Screenshot from latest Science for ME weekly update

#LongCovid @longcovid #neisvoid
#chronicillness
#chroniclife
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

STATNews I have long Covid. Don't call my chronic disease a 'journey'
Opinion piece by professor emeritus Peter Swensson on the word "journey" as a problematic euphemism for chronic illness.
"Sugarcoating my bitter pill, a chronic disease, by calling it a “journey” might sweeten it for you, but not for me."

#chronicillness #chronicallyill #chronicillnesshumor #chronicillnessfunny #autoimmune #invisibleillness #invisibledisability #chronicpain #doctorsappointments

@annakatarinaz - The pressure to be a credible patient is intense. You can't look too well (not sick enough), or too poorly (faking it for attention). You can't argue back ("difficult" pt), or break down (head case), or seem too interested in medication (addict). Any others? #chronicpain

#invisibleillness #invisibledisability #chronicillness #chronicallyill #autoimmune #spoonie #spoonielife #doctorsappointments

@chronicnotebook - Me to myself at the doctor's: Ok smile but not much or you'll look too happy, stand up for yourself but not too hard or you'll seem rude, convey how bad this is but don't get emotional or they'll think it's in your head and don't use medical terms, they'll think you Googled it...

#invisibledisability #invisibledisabilities #invisibleillness #autoimmune #autoimmunedisorder #chronicillness #chronicallyill

@misaonwheels -

eople with visible disabilities at a medical appointment: "Gotta make sure I'm dressed up and presentable so I'm taken seriously."

People with invisible disabilities at a medical appointment: "Gotta make sure I'm not too dressed up and healthy-looking so I'm taken seriously."

"Medical Gaslighting"

https://www.youtube.com/watch?v=Kwp_CI7ZgLI

A light-hearted 3-minute song with a serious message, with which many may sadly be able to relate

#MedicalGaslighting #chronicillness #hiddenillness
#invisibleillness #Gaslighting #ChronicallyIll #ChronicPain @mecfs
#MEcfs @longcovid
#LongCovid #POTS @pots

Case Report: The intersection of psychiatry and medicine: diagnostic and ethical insights from case studies

https://pubmed.ncbi.nlm.nih.gov/40330647/

Screenshot from November AMMES newsletter

#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Photo of Sigmund Freud

Case Report: The intersection of psychiatry and medicine: diagnostic and ethical insights from case studies
Accurate diagnosis requires clearly defined signs and symptoms consistent with established diagnostic criteria. A comprehensive clinical examination, including medical history, systems review, psychiatric assessment, and clinical judgment, is more reliable than relying solely on diagnostic tests. The absence of diagnostic findings should not automatically imply a psychiatric condition. Instead, the diagnosis of psychosomatic conditions requires a psychodynamic explanation, not exclusion due to the inability to identify another cause. Furthermore, the presence of a psychiatric diagnosis does not preclude the possibility of coexisting or causative somatic conditions.
Read more here>>

#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#ChronicIllnessMemes
#Disabled
#Disability

compassionatereminders Follow
I hate how people will hold you to higher standards as a disabled person than they would if you were abled. I mean literally no one will expect your average abled person to exercise every day and give up alcohol and only eat vegetables, but as soon as you got a chronic illness or a mental disorder suddenly everyone is holding you to health standards literally no one else is expected to actually meet- and if you don't do xyz, then they will insist that's why you're ill. Even though THEY aren't doing it either
Bendy Bunny

#mecfs #longcovid #pots @mecfs @longcovid @pots #chronicillness
#chroniclife #Spoonielife #hiddenillness
#invisibleillness #ChronicIllnesses
#Spoonies #Spoonie #ChronicallyIll

3 photos of a man and woman in a car Photo #1: Man: Ready to go shopping? Photo #2: Woman: Yeah, I'm wearing my compression socks, I have my neck fan, my bottle of electrolytes and my foldable stool. What are we buying again? Photo #3: Man looks shocked

I saw this posted to a private FB group but I'm not sure who the creator was?

Hashtags:
#neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#ChronicIllnessMemes
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #POTS @pots

SPIRIT
The Gaslighting
Doctor
Includes:
-Prescription for anxiety medication
-Extra large ego
-Close mindedness
Empathy not included.
ADULT
Size Costume
ONE SIZE FITS MOST

The Cripping Cultural Work residency at Showroom MaMA (Rotterdam) is past halfway and ends this year. We opened the space on the 11th; I’m showing work made these past months. Mid-residency, it gathers small growths, stray thoughts, and swings between rage and tenderness. I live parallel lives: needing care, giving care, working, applying. Here I try to dissolve that split, to come out as sick, and treat CV gaps as work, practice, resistance. Not to be defined by them, but to let them in and learn crip time.
I wanted to try how sound can be felt next to heard, so I built an armchair as a sensory object for embodied listening: narration travels through the body via bone conduction and other transducers.
Behind it, a textile fort stitched from common Bulgarian embroideries passed down in my family. Perfect domestic scenes with no mess, illness, or care work. Like a CV. I add my own embroidery at the pace of crip time, threading in what’s missing: gaps, breakdowns, stops and starts.
My son calls our forts “places to go and cry.” This one isn’t spectacle. It’s an architecture of care, a space to pause and refuse the usual tempo. Made for children, a space owned by them in the gallery; adults are welcome too.
If in Rotterdam, pass by MaMA
#crip #chronicillness #invisibleillness #accessibility

Close up photo of embroideries stitched together. One is of a little child, with a polka dot dress and a rake, made with dark blue thread, on the right corner next to her leg, text is stitched, writing 'weeding grief' in caps. Below her is another child, a little older, with ski on their legs, stitched in blue, red and pink, on the right corner the words 'medical guideline' are stitched in caps. On the left of the skier, we see embroidered flower bouquets, above them, the words 'no grants' are stitched in caps, curved along the corner of the embroidery. The flowers are stitched in blue, green and purple, the text in dark blue.

A close up of the entrance of a textile children's fort, extending from the back of an armchair. The entrance of the fort is a little open and we see the bottom is soft, covered with a large orange cushion, similar to a mattress. The fort is stitched of white embroidered pieces of textile, The ones we see are of a woman holing her face in her palms, handwrite text above writes 'what does the body remember, that the biography forgets?' On its left is another embroidery in dark blue, flowers, mixed up with the words 'Hold. Then hold again.' On the bottom is another embroidery of a decorative frame with geometrical and flower motifs, framing the words 'watchful waiting', stitched in caps and in red.

A gallery space with lots of curtains in brick red and light blue. On a dark blue wall is a big video screen, playing a video work, across it is an armchair to sit and watch the video. On the back of the armchair extends a children's textile fort, made of embroidered pieces of cloth stitched together. The textile is white, the embroideries are outline embroideries, in mostly dark blue and red.

The inside of a children's white textile fort. A person is lying in it, the photo is taken from their point of view. Their legs are visible, wearing beige jeans and brown shoes with blue shoelaces. In the inside of the textile you can see the back side of embroideries, where the stitches have been finished and knotted. Most embroideries are done in dark blue and red. There is a white light bulb with red fitting and a red string hanging in the middle of the fort.

Find New Meaning
https://cfsselfhelp.org/library/10-find-new-meaning

"In sum, we experience the loss of the person we used to be. The pervasiveness of loss presents us with one of our biggest tasks: finding meaning when so much has been taken from us"

A little bit of what might be called psychobabble near the start but interesting topic

@mecfs
#MyalgicEncephalomyelitis #MEcfs #CFS #PwME @longcovid
#LongCovid #POTS @pots #chroniclife
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie

Key 10: Find New Meaning
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(From the series Ten Keys to Successful Coping: 2001)

By Bruce Campbell

One of the greatest challenges of chronic illness is coming to terms with grief. While grief is usually associated with the death of a loved one, it can occur after any loss. And chronic illness brings with it many serious losses.

We may be forced to give up our job, may lose friends and feel abandoned by family, and may experience loss of control over our bodies and our lives. In sum, we experience the loss of the person we used to be. The pervasiveness of loss presents us with one of our biggest tasks: finding meaning when so much has been taken from us.

2/

"Akin to the ideal victim, the ideal claimant of hidden disability must navigate a system built by (and from the perspective of) those with specific preconceived notions of what it means to be a person with a disability and to present as one."

#MEcfs #invisibleillness #hiddenillness #spoonie @mecfs #hiddendisability #invisibledisabilityawareness #invisibledisability #invisibledisabilities

Seeing is Believing:Identifying the “Ideal Manifestation of Hidden Disability” in Ontario’s & Quebec’s Social Benefits Tribunals

https://digitalcommons.schulichlaw.dal.ca/dlj/vol48/iss2/1/

"advocating for a shift away from entrenched stereotypes towards a more inclusive & equitable system"

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #chronicillness
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#Disabled
#Disability

Seeing is Believing: Identifying the “Ideal Manifestation of Hidden Disability” in Ontario’s and Quebec’s Social Benefits Tribunals
Authors
Pascale Malenfant, McGill University Faculty of Law

Keywords
disability, hidden disability, health law, social benefits, administrative law, ideal victim

Abstract
The phenomenon of disability skepticism, especially in relation to “hidden” disabilities like chronic fatigue syndrome (CFS), has fostered a culture of doubt among medical, legal, and public entities. This paper explores the intersection of such skepticism with the social benefits adjudication processes in Ontario and Quebec. In drawing parallels to feminist critiques of the “ideal victim” in sexual assault cases, it argues that the tribunals’ biased framework for believability is based on a claimant’s conformity to stereotypical expectations of what an “ideal” claimant with a hidden disability looks like. By comparatively examining 10 years worth of Ontario and Quebec tribunal decisions featuring claimants with CFS, this study highlights how those with hidden disabilities are evaluated based on visible manifestations of their disability/emotion, medical/expert evidence, and the apparent credibility of themselves or others as witnesses. This research not only addresses a significant gap in the literature but also calls for reforms in the legal treatment of hidden disabilities, advocating for a shift away from entrenched stereotypes towards a more inclusive and equitable system

World Arthritis Day .

#arthritis #chronicpain #chronicillness #jointpain #rheumatoidarthritis #fibromyalgia #invisibleillness #pain #painrelief #osteoarthritis #autoimmunedisease #health #kneepain #backpain #lupus #arthritisrelief #diabetes #painmanagement #arthritisawareness #spoonie #mentalhealth #cancer #autoimmune #ankylosingspondylitis #wellness #anxiety #cbd #inflammation #chronicfatigue #endometriosis Today is World Arthritis Day. Arthritis is a disease that…

https://itsmostamazingindia.wordpress.com/2025/10/12/world-arthritis-day/

(US)
"Medicaid Work Requirements Will Devastate People With Invisible Disabilities — ME/CFS & #longCOVID patients must qualify as 'medically frail'" (October 7 2025) by Laurie Jones

https://www.medpagetoday.com/opinion/second-opinions/117839

3 min read

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#PASC #PwLC #postcovid #POTS @pots #postcovid19 #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll