#LifewithMS

GirlCroosh but in 2026pseudonymsupreme@pnw.zone
2025-04-07

MRI is done. Valium is in full effect. Time to read on the couch til I fall asleep. #MultipleSclerosis #LifewithMS

MS Sucks 🎗mssucks
2025-01-20

Living with MS is like playing a rigged game of bingo where all the prizes suck. From brain fog to doctors who don’t know shit, here are 10 things I’ve learned the hard way about this rollercoaster of a disease.

itreallydoes.com/10-things

I survived my #MRI! Hopefully this means I don’t need another for a year or two. Now I’m going to sleep off the #valium and wait for my results. #multiplesclerosis #ms #lifewithms

2022-11-18
2022-11-18

Hello #PWMS, #Researchers #FediScience #Neuros

UPDATE UPDATE UPDATE

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we use

👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat

for #MS related stuff

AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.

I hoping we get some #researchers, #scientists, and #neuros in the loop.

Thank for boosting.

❤️Anne

2022-11-17

Hello #PWMS.

UPDATE UPDATE UPDATE

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we use

👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat

for #MS related stuff

AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.

I hoping we get some #researchers, #scientists, and #neuros in the loop.

Thank for for your suggestions, past boosts of my posts and following me.

❤️Anne

2022-11-17

Hello #PWMS

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we try consolidating under #MultipleSclerosis AND #MSChat For all things #MultipleSclerosis related

AND still use a subtopic hashtag to introduce folks to the wide variety?

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

2022-11-14

Hello!

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #MSRunner. Etc.

Can we try consolidating under #MSChat For all things #MultipleSclerosis related.

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

2022-11-14

I’ve been increasingly struggling with books for a while now thanks to cognitive issues related to my MS. Particularly with fiction. It’s hard to follow a narrative when a character does something in Monday’s chapter and you’ve forgotten it by Tuesday. So I decided to try graphic novels and I’m hooked. My favourite so far has been Two Heads but I also really enjoyed Graphic Science and Mental Load. Any #graphicNovel recommendations?

#lifeWithMS #multipleSclerosis #chronicIllness #amReading

2019-05-29

As per the WHO multiple sclerosis affects around 2.3 million people globally.

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