Finally - an actual PKU post!
I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.
As someone who loves rice, I'm going to give this a try later on!
You can buy the packet of rice online here: https://prominpku.com/product/echigo-low-protein-pre-cooked-rice/
#phenylketonuria #phenylcetonurie #pcu #pku #lowprotein #lowproteindiet
The brilliant @poconnor has shared a PKU friendly recipe - Fennel and Orange salad (with clearly detailed ingredients that have protein, so you know where to skip):
https://www.pigpen.page/fennel-and-orange-salad/
#pku #lowprotein #phenylketonuria #pcu #phenylcetonurie #food #recipes #lowproteinrecipes #diet #lowproteindiet
Two of the greatest things in life.
#pasta #lowprotein #lowproteindiet #thinkpad #lenovothinkpad #spaghetti #phenylketonuria #pku #phenylcetonurie #pcu
🦃🎄New blog for the festive season:
Tips and links to help with a low protein Christmas or Thanksgiving.
I’ve included PKU and low protein menu suggestions & recipes.
Plus, links to low protein shopping websites.
https://www.pigpen.page/pku-at-christmas/
#pku #pcu #lowprotein #phenylketonuria #phenylcetonurie #LivingWithPKU #ClassicalPKU #EasyPKU #thanksgiving #Christmas #metabolicdiet #lowproteindiet
Made some stir fry rice with Mevalia rice.
It's the first time I've eaten low protein rice and it doesn't blatantly taste like pasta in a rice shape.
#pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet #lowproteinfood #lowproteinmeals
Getting ready for my December newsletter with low protein ideas for Christmas. Here's a sneak peek.
If you would like more:
➡️ sign up on the link in bio, and
🎁 get your free copy of Mental Health & PKU
#PKU #LowProtein #LowProteinDiet #ChristmasIdeas #LowProteinFood #LowProtein
Just some PKU fun - decided to get worcestershire sauce a few weeks ago to add a little kick to my toast and hash browns with cheese in the morning.
My recent levels are about 100umol/L higher than usual.
I checked the ingredients, and worcestershire sauce has anchovies... 🤦♂️
#pku #phenylketonuria #pcu #phenylcetonuria #lowprotein #lowproteindiet #lowproteinfood
There was a great panel talk by @poconnor about living with PKU and sapropterin.
One of the questions was "are you doing well with phe levels", and one of the points was that how life changes do have a severe impact on phe levels.
As someone who moved house quite recently *AND* had a job change, I am proof that big life changes as well as changes to routine absolutely do mess up phe levels.
#pku #LivingWithPKU #ClassicalPKU #diet #lowProteinDiet #LowProtein #phenylketonuria #phenylcetonurie
Also in more PKU news (it's all kicking off in the PKU community!!) @pcublogue has released a new blog post for Low Protein Nachos...
NACHOS!
Give it a read/watch, and for goodness sakes, please do subscribe via RSS/email to @pcublogue's newsletter!!
https://phenylcetonurie.ca/2024/05/01/product-low-protein-nachos/
#PKU #Nachos #Phenylketonuria #phenylcetonurie #lowProtein #food #diet #lowProteinDiet
This is a really good post for my fellow PKUers - give it a read!
#pku #phenylcetonurie #phenylcetonurie #phenylkeotnuria #lowprotein #lowproteindiet #motivation
Didn’t do them last week as I had a cold, so didn’t see the point of being scolded for high phe levels which I had no control over.
#bloodspot #blood #bloodtest #phenylketonuria #phenylcetonurie #phenylalanine #lowprotein #lowproteindiet #nhs
I really loved watching this presentation given by our very own @pcublogue! It's about his experiences with PKU. Goes to show no matter the language/nationality/culture difference, there are some things we all share the same, and @pcublogue put it brilliantly! Well worth a watch:
https://videos.pkutalk.com/w/343pZ7gFhvhrN39QGAbQmH?subtitle=en
#Phenylketonuria #phenylcetonurie #Phenylalanine #PKU #ClassicPKU #LivingWithPKU #LowProtein #LowProteinDiet
Made myself some stir fry noodles the other day!
It was actually quite nice!
#PKU #ClassicalPKU #LivingWithPKU #Phenylketonuria #Phenylalanine #phenylcetonurie #LowProtein #LowProteinDiet
Hello PKU friends! Our very own @truthaboutlifewithpku has wrote another blog entry about PKU! Give it a read, will ya?
https://thetruthaboutlifewithpku.home.blog/2023/12/05/wishing-you-a-very-merry-pku-christmas/
#PKU #Phenylketonuria #Phenylalanine #LowProtein #LowProteinDiet #Food #MentalHealth
Made myself some low protein burgers using the Promin burger/bun mixture. They both tasted great! I think it would be better with a leaf of lettuce, some tomatoes, and some vegan cheese though...
#PKU #Phenylketonuria #Phenylalanine #LowProtein #LowProteinDiet #Food #Burgers
