Deathtrap. Marine Theatre. #tickets #lyme-regis #uktheatre #play #theatre https://www.uktw.co.uk/L1784058176/
#Lyme
Watching this now.
From the description: "In this film, five medical doctors open up about living with #PAIS/#IACC conditions like #me #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands but possibly worldwide!
They speak candidly about their experiences with #illness, what they were taught (or not taught) in medical school, and how that shaped their own treatment decisions—sometimes even leading to harm. They reflect on how becoming patients themselves radically changed their views on #medicine, #science, and what needs to change in #healthcare. It’s raw, honest, and incredibly insightful—for medical professionals, researchers, politicians, and #patients alike.
This project was a true labor of love. We had zero budget. Three amazing cameramen, a few behind-the-scenes heroes, the MDs themselves, and those from the community who shared material for the film—all volunteered their time and energy. It wasn’t easy: illness and #PEM often got in the way, but we somehow made it."
Documentary: Doctors as Patients
https://youtu.be/J0ywwLIfH_w?si=hZv0mzlGtnLzpwim
Screenshot is from the latest Science for ME weekly update
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#LymeDisease #lyme
A new film from @anilvanderzee. Made in The Netherlands and with English subtitles.
"In this film, five medical doctors open up about living with #PAIS / #IACC conditions like ME, #longCOVID, and chronic #Lyme.”
"They speak candidly about their experiences with illness, what they were taught (or not taught) in medical school, and how that shaped their own treatment decisions—sometimes even leading to harm. They reflect on how becoming patients themselves radically changed their views on medicine, science, and what needs to change in healthcare. It’s raw, honest, and incredibly insightful—for medical professionals, researchers, politicians, and patients alike.”
It's already had over 6000 views in less than a day, which should inform decision makers of the urgent demand required of #medicine to take conditions like #MECFS seriously, professionally and ethically.
In a Compelling Documentary, Five Doctors Discuss Being Sick
By David Tuller, DrPH
*This is a crowdfunding period at University of California, Berkeley. If you appreciate my work and would like to make a donation (tax-deductible to US taxpayers) to the university in support of my position, here’s the link: https://crowdfund.berkeley.edu/project/46120
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I first connected with Anil van der Zee, a severe ME patient in Amsterdam, when he reached out almost ten years ago to invite me to talk at an event he was organizing in Amsterdam. In his former life, Anil was a ballet dancer. Now, from his bed, he creates compelling and often visually stunning videos about various aspects of life with ME, and related issues.
In this new documentary, Anil talks with five doctors about living with ME and other chronic illnesses–and about how their personal experiences have altered their perspectives on the medical field and the provision of health care. I have posted it below, along with Anil’s introduction. (I wrote a story about doctors with Long Covid for Codastory.com in 2022.)
**********
Doctors as Patients…Anil van der Zee
In this film, five medical doctors open up about living with #PAIS/#IACC, conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands but possibly worldwide!
They speak candidly about their experiences with illness, what they were taught (or not taught) in medical school, and how that shaped their own treatment decisions—sometimes even leading to harm. They reflect on how becoming patients themselves radically changed their views on medicine, science, and what needs to change in healthcare. It’s raw, honest, and incredibly insightful—for medical professionals, researchers, politicians, and patients alike.
This project was a true labor of love. We had zero budget. Three amazing cameramen, a few behind-the-scenes heroes, the MDs themselves, and those from the community who shared material for the film—all volunteered their time and energy. It wasn’t easy: illness and #PEM often got in the way, but we somehow made it.
We’re amateur filmmakers (and I’m definitely the biggest one!), so don’t expect a slick Hollywood production. The real professionals here are the doctors—whose powerful voices, shaped by both medical training and lived experience, definitely need to be heard.
I invite you to watch, leave a like, drop a comment on YouTube to help boost the algorithm, and share it far and wide. This is more than a film—it’s a message the world needs to hear and see!!!
Their stories will hopefully change how you think about medicine—don’t miss it. Watch it, feel it, and let it shift your perspective, especially now that PAIS/IACC conditions have become an even more urgent health issue since the pandemic. Their voices matter more than ever!
The film has English and Dutch subtitles. If you want to translate it to another language let me know.
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Anil Van der zee
OMG we did it‼️‼️
In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands
https://m.youtube.com/watch?v=J0
From Jaime Seltzer
Some bad news for people living with #MECFS
Under the 2026 "passback", the "reorganization" of HHS and CDC would cut all ME/CFS funding from CDC
I think this is a 'scoop', since I'm unaware of anyone having reported on it, yet
More:
https://skywriter.blue/pages/did:plc:fxzd5277so73zk3uxvlpzrg6/post/3lmzhncnyzs2m
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #lyme
"Some 35 to 48 million pheasants are released into the UK countryside each year to be shot for sport."
So basically humans are more at risk of getting #Lyme because some people love to kill animals for sport.
https://theferret.scot/releasing-pheasants-boosts-lyme-disease-risk-study/
(USA)
Maine State Legislature H.P. 1123
https://legislature.maine.gov/legis/bills/getPDF.asp?paper=HP1123&item=1&snum=132
“An Act to Encourage Continuing Education Relating to Certain Infection-associated Chronic Conditions for Physicians and Nurses”
#LongCovid #MEcfs #POTS #Lyme #Dysautonomia @longcovid @mecfs @lyme @pots @dysautonomia
Nature is a language. Can't you read?
#thesmiths #lyrics #lymedisease #ticks #lyme #bodyhorror
EDIT FOR UPDATE:
I went to my doctor's office today. Thankfully, my doctor agreed that we need to wait and retest, thank you all for responding that my test may have been too early! My doctor was not certain whether the vertigo is due to a tick disease or something else, she says the physical therapy I'm doing will take some time, even if it's vertigo not related to an illness.
original post:
I think it is the case that there isn't adequate testing to always diagnose Lyme disease? I was bitten by a tick a couple weeks ago, and most of the Lyme blood tests have returned Negative. Most, except for one of the categories under IgM which returned as Equivocal. The lab says at least two categories need to be positive in order to consider a Lyme diagnosis, so my doctor says it is a Negative result.
I have had vertigo for almost two weeks now, which started a few days after the bite. My doctor gave me physical therapy exercises, which haven't helped.
I am seeing my doctor again tomorrow. Is there anything that someone experienced with Lyme would suggest that I ask? Does it seem possible that the vertigo could be a result of the bite? Yes, I know asking for medical advice online is dicey. Just checking in on thoughts for me to consider before I see the doctor tomorrow, as I have been misdiagnosed multiple times with other things by doctors, and I don't know enough about Lyme testing to know if the IgG and IgM tests are adequate.
Virax Biolabs, UK:
Evaluation of T cell dysfunction in Post Acute Infection Syndromes [ME/CFS, long COVID, post treatment Lyme]
https://viraxbiolabs.com/wp-content/uploads/2025/03/WIRMposter_printing.pdf
Results of only 10 participants reported here but 150 are being studied
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #Lyme #LymeDisease
RFK Jr was directly asked in Long Covid research would be a priority, and he immediately pivots into vaccine injury research.
By the end of the 60 second clip, he’s calling long covid and Lyme disease “injuries”
This man is exceedingly dangerous to the chronically ill AND those who still have their health.
He’s sowing distrust in vaccines which will lead to preventable death and disability, while also trying to blame the vaccines for many chronic illness.
While vaccine injuries do happen, they’re thankfully rare.
You know what’s not rare? Long Covid. 1 in 10 will develop LC after a Covid infection, with many experts saying the number is probably closer to 1 in 5.
Measles are on the rise due to declining vaccination rates. 2-3 children will die for every 1000 measles cases, and many more will be left disabled.
Get your boosters while you still can!
#hhs #rfkjr #uspoli #longcovid #lyme #vaccines #chronicillness #disability
Currently in a double blind study for a new #Lyme vaccine. Received the fourth and last round today. Like every other time, I’m exhausted and sore. Either they throw a little something special in with the fake dosage or I’m getting the real thing.
Only 5 hours until this #Clinician roundtable! Registration link below 👇
✅️ Today! March 14 #Clinician's webinar with Tania Dempsey, MD. Join us for a 45-minute lecture on #vector borne #illnesses often seen with #MECFS and #longCovid, followed by a 15-minute Q&A.
https://us06web.zoom.us/webinar/register/2117347281730/WN_qDphjDHhQa-OXwLpvxgEAw#/registration
#webinar #lyme #bartonella #iaci #clinicians #MD #nurse #caregiver
Communiqué de presse du 3 mars, RBP HAS : maladie de Lyme, la HAS ferme la porte aux traitements, l’INSERM coupe les fonds …
Appel des malades au Ministère de la Santé
#lyme #maladiedelyme #lymelong #psychosomatique #onehealth #maladiechronique
Les missions de l'association
#lyme #lymedisease #maladiedelyme #notjustlyme
@VivienneMatthiesBoon op X schreef:
Offline, in person, participation during our Postviral Ethics conference is closing soon. So if you want to be there in person, rather than online, make sure to register soon! HEPA & FFP2 masks provided of course. #LongCovid #PAIS #HIV #MECFS #lyme #qfever
https://www.ru.nl/en/about-us/events/postviral-ethics-rcps-pcnn
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