In case it was missed in the post above, this is my updated article:

👉 https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

My doctor predicts I will die if I don’t leave soon.

I need a solid, safe, home I can go to and recover to at least a stable baseline. It’s not full recovery, but it’s better than a slow death.

Help please 🙏

#PwME #LongCovid #MECFS #Hypothyroidism #ChronicIllness #Neisvoid #Abuse #Housing #Dysautonomia #SocialWork #MedMastodon #PWLC #MutualAid
#HumanRights #Press #Housing #Journalism #MECFS #SevereME #Abuse #Neglect #MutualAid #Narcissist #Psychopath #MCAS #MCAD #Endometriosis #ChronicPain #CostOfLivingCrisis #Melbourne #Australia #DomesticAbuse #DV

@chronicillness @longcovid @neisvoid
@disabilityjustice
@disability @socialwork
@dysautonomia @mutualaid
@mecfs
@chronicpain
@mcas
@australia
@melbourne

New research from EDS Chiari Center!

#EDS linked to multiple disabling syndromes like Chiari Malformation, Tethered Cord, #POTS and Dysautonomia, Mast Cell Activation Disorder #MCAD, Styloid Hypertrophy, Myalgic Encephalomyelitis-Chronic Fatigue Syndrome #MECFS

https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1484504/full

“Recent data suggest therapy with KIT-targeting drugs may lead to partial or even complete eradication of the [mast cell] lineage in patients with MC diseases. Some TKIs can also suppress IgE-dependent activation of MCs and basophils.” 👀 I’m listening! #MCAS #MCAD #Mastocytosis https://t.co/rxJCHkFSrS

DeadFish (2024) [2 min] by Ekrix | #USA

https://www.youtube.com/watch?v=uLyOEWFMfB0

#2D #2DAnimation #AnimatedShort #AnimatedShortOfTheDay #Animation #MinneapolisCollegeOfArtAndDesign #MCAD #Horror #Fish #Fishmonger #FishMarket

Мир после BIM. Переход к данным и процессам и нужны ли в строительной отрасли семантика, форматы и интероперабельность

С появлением цифровых данных в 90-е годы строительная отрасль начала активно трансформироваться. Компьютерные технологии стали внедряться в процессы проектирования, управления и строительства, что привело к появлению таких концепций, как САПР (системы автоматизированного проектирования), PLM (управление жизненным циклом) и, позже, BIM (информационное моделирование зданий). Однако, как и любые инновации, они не являются конечной точкой развития. Концепции вроде BIM стали важным этапом в истории строительной отрасли, но рано или поздно они уступят место более совершенным инструментам и подходам, которые будут лучше отвечать вызовам будущего.

https://habr.com/ru/articles/868186/

#cad_системы #revit #ifc #строительство #bim #bimсистемы #autodesk #mcad

This week, celebrate Red Balloon Bookshop's 40th Anniversary, catch the Dragon Ball Daima tour at #MallOfAmerica, pick up new decor at #MCAD's annual art sale, and more! #MNastodon https://twincitiesgeek.com/2024/11/this-week-in-geek-11-18-2024-11-24-2024/

Wheee! Look at me! I figured out how to get two hinges and a door to move in sync. (Revolute joints for each hinge pin, rigid joints between the pieces, then let F360 figure out the rest.) Anyway, the LACK printer enclosure continues slowly.

#Fusion360 #MCAD

Yeah, so I started over. Now I'm tying components together with rigid joints and tying them to points on sketches whose measurements use parameters. This is the measurement I tweaked that blew my model up last time...

Maybe I should hashtag this thread. #Fusion360 #MCAD

@Yurgo @counternotions *grin*

#MCAD #MastcellActivationDisorder

Looking for a weekend read? Want to better understand the population disabled by a hereditary connective tissue disorder (#HDCT)--such as #EDS, #MCAD, #POTS, #HSD, #MECFS? There are a lot of them out there, but they're mostly invisible because when not going to medical appointments they’re stuck lying on the couch or bed at home.

The National Academies (#NASEM) delivered a report to #SSA on these disorders last year, I found it educational:
https://doi.org/10.17226/26431
--
#NEISvoid #disability

⚓ L'université de sciences appliquées NHL Stenden a réussi une belle opération de communication autour de sa base de données #MCAD sur les #cyberattaques ayant touché le domaine #maritime. 👏 à eux.
Mais... saviez-vous qu'il y avait déjà au moins aussi bien ?
Permettez-moi de vous présenter la base de données #ADMIRAL.
Made in 🇫🇷 complètement #open, née du travail de Olivier JACQ, et désormais portée par France Cyber Maritime.

Pour en savoir plus sur France Cyber Maritime : https://www.lemagit.fr/actualites/366538748/Le-domaine-maritime-zone-de-risques-cyber

Pour la base de données #ADMIRAL : https://gitlab.com/m-cert/admiral

Pour la base de données #MCAD : https://maritimecybersecurity.nl

Heaven on Earth (2023) [2 min] by El Starcher | #USA

https://www.youtube.com/watch?v=RHQ44pmD4g4

#2D #2DAnimation #AnimatedShort #AnimatedShortOfTheDay #Animation #Minneapolis #ToonBoom #MCAD

Mast Cell and Histamine Safe Forms of Magnesium: What to Know When You Have Mast Cell Activation Syndrome or Histamine Intolerance via Mast Cell 360

https://mastcell360.com/mast-cell-and-histamine-safe-forms-of-magnesium-what-to-know-when-you-have-mast-cell-activation-syndrome-or-histamine-intolerance/

#MCD #MCAS #MCAD #MastCell #MastCells #Mastocytosis #EDS #hEDS #HSD #Fibro #Fibromyalgia #allergy #allergies #MedEd #NEISvoid #spoonies #MCS

“Our data support the view that mast cells may promote development of certain malignancies. These findings indicate a need for increased surveillance of cancers more frequently seen in Mast Cell Activation Syndrome patients.

Treatment of MCAS may reduce risk for neoplasia… [and] may favorably influence the course of the cancer, similar to favorable effects often seen when Systemic Mastocytosis is treated in the setting of associated hematologic neoplasia.” #MCAS #MCAD

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5710302/

@tomkindlon

"Urinary excretion of particular acyl glycines is also altered by disorders linked to fatty acid β-oxidation in the mitochondria, including medium-chain acyl-coenzyme A (CoA) dehydrogenase (MCAD) deficiency [54]."

My daughter & I are carriers for #MCAD deficiency.

Imposter syndrome of the day: Being a not-very-old man going for a bone density scan & filling out the questionnaire.

Mast Cell Disease causes a lot of osteoporosis / osteopenia. I seem to remember it's around 85% of MCADs in *men* are thought to have bone issues. Which is a LOT different from the typical population.

Out of an online group I'm on, I'm the only guy who hasn't had a scan yet. All others have osteoporosis or osteopenia.

(It's even higher for women, IIRC?)

#MCAS #MCAD #NEISvoid

Check out my updated list of Recommend Books here, including of course the EDS specific ones, and a few on chronic illness in general...

It's great to see the list growing!

https://ohtwist.com/eds-resources/recommended-books

#EhlersDanlos #EDS #MedEd #Medicine #Doctors #Hypermobility #Fibro #Fibromyalgia #NEISvoid #zebras #Resources #MCAS #MCAD #POTS #Dysautonomia #Spoonies #ChronicIllness #Pain

Sixteen artists at MCAD helped create a Gif of Ernie Bushmiller's Nancy, (including John Porcellino, Lilli Carre & Jaime Hernandez).

#nancy #nancycomics #erniebushmiller #mcad #nancyremix #mcadnancy https://twitter.com/i/web/status/1617569933352747011

@bookwyrm Hello there, I’m in US & we’ve found the best way to get a diagnosis is to get a Neuro referral & they can do autonomic testing. It’s a series of tests; tilt table, sweat tests, muscle tests etc. Since #ME primarily affects the autonomic nervous system. Most #ME pts also have #MCAD so an allergist/immunologist helps. But Neuro is best for Dx. I hope this helps. We see Dr Oakley st UW Seattle if you are on the West coast. May you find what you need. ✨

I diagnosed with #hypermobility #HypermobilitySpectrumDisorder but my sibling just got an #EDS diagnosis so now I’m suddenly eligible…I believe I have the trifecta or pentad and am still learning about this complex genetic condition. Searching for others with my hashtags #EhlersDanlos RCCX #MCAD #ADHD etc.