Lmst

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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

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Day #5

#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #chronicfatiguesyndrome
@mecfs

Myalgic Encephalomyelitis (ME) What is behind the illness with the hard to pronounce name? in some countries as Chronic Fatigue Syndrome Can't stand 25% of sufferers are housebound, wheelchair-bound or bedbound PAIN muscle pain INSOMNIA NEUROIMMUNE DISEASE joint pain disordered sleep muscle cognitive weakness problems unable to read sometimes concentrate. watch TV FATAL www.facebook.com/ MEAwarenessPics RESEARCH INTO THE BIOLOGY OF THE ILLNESS IS NEEDED TO FIND TREATMENTS invisible illness nausea headaches chronic flu-like symptoms DISORDERED IMMUNE SYSTEM debilitating severe CHILDREN fatigue and get it too exhaustion NO CURE the sickest are paralyzed endocrine irregularities and tubefed millions around the world suffer in painful isolation ALL SYMPTOMS

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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this this image.

Day #4
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

ME is also known as Chronic Fatigue Syndrome in some countries REPEATED INFECTIONS HEADACHES FEVER Myalgic CHRONIC SORE THROAT MEMORY PROBLEMS encephalomyelitis INSOMNIA PAIN dozens of everchanging symptoms on a daily basis www.facebook.com/ MEAwarenessPics PLEASE JOIN US! ALLERGIES AND INTOLERANCES SENSORY OVER-LOAD BLURRED Vision HEART PALPITATIONS BRAINFOG MUSCLE WEAKNESS DIZZINESS PROBLEMS DIGESTIVE

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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by reposting and/or liking this image.

Day #3
#myalgicencephalomyelitis #myalgice #mecfs
@mecfs

MUSCLE Myalgic Encephalomyelitis BRAIN PAIN SPINAL CORD INFLAMMATION- (GETS SHORTENED TO "ME") in some countries also known as Chronic Fatigue Syndrome www.pinterest.com/MEAwarenessPics

The Daily Mirror, UK. 9th April 1998.

An article about a book that was about to be released by Simon Wessely.

#myalgicencephalomyelitis #cfsme #myalgice #mecfs

@rfh1955

he Daily Mirror, UK. 9th April 1998.

An article about a book that was about to be released by Simon Wessely.

#myalgicencephalomyelitis #cfsme #myalgice #mecfs

2/

Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath

#MyalgicE #MEeps #CFSME #LongCovid #NeuroME #mecfs
@mecfs #longcovid @longcovid

It's 8-year anniversary of this paper of mine. It could be useful if somebody feels coerced into doing graded activity or exercise programmes; also to counter claims that the #PACEtrial showed graded activity programs are safe.

https://journals.sagepub.com/doi/full/10.1177/1359105317697323

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CBT

Do graded activity therapies cause harm in chronic fatigue syndrome?
Tom Kindlon 1
Affiliations expand
PMID: 28805516 DOI: 10.1177/1359105317697323
Abstract
Reporting of harms was much better in the PACE (Pacing, graded Activity, and Cognitive behavioural therapy: a randomised Evaluation) trial than earlier chronic fatigue syndrome trials of graded exercise therapy and cognitive behavioural therapy. However, some issues remain. The trial's poor results on objective measures of fitness suggest a lack of adherence to the activity component of these therapies. Therefore, the safety findings may not apply in other clinical contexts. Outside of clinical trials, many patients report deterioration with cognitive behavioural therapy and particularly graded exercise therapy. Also, exercise physiology studies reveal abnormalities in chronic fatigue syndrome patients' responses to exertion. Given these considerations, one cannot conclude that these interventions are safe and risk-free.

Keywords:

Remembering ME activist (& my friend) Robert "Bob" Courtney, who passed away on March 7, 2018.

This is from the @MEAssociation magazine

One can read about some of the specifics of Bob's work here: http://me-pedia.org/wiki/Robert_Courtney

#MyalgicEncephalomyelitis #MEcfs #CFS #MyalgicE #PwME #ME @mecfs

Screenshot of ME Association article/obituary on Robert Courtney

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From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf

#MyalgicE #MEeps #CFSME #CFIDS #SEID #PwLC
#PostCovidSyndrome #postcovid @mecfs #MEcfs #CFS #PwME @longcovid
#LongCovid

"A suicide note was found in the back of her parents' car".

The Daily Echo, Bournemouth, England. 18th February 2016.
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
@rfh1955

‪Royal Free 1955‬ ‪@rfh1955.bsky.social‬

The Sunday Mercury, Birmingham, England. 15th February 1998. #cfsme #mecfs #myalgicencephalomyelitis #myalgice

The Los Angeles Times. 12th February 1970. Another paper carrying the Alfred Friendly piece on 'Reconsideration'. Interesting that only one UK paper (Sunday Times) carried an article on Beard/McEvedy.
#rfh1955
#myalgicencephalomyelitis #cfsme #myalgice #mecfs

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“ME is a neurological condition, it is a fluctuating life limiting condition that affects every part of the patient’s life.”

#MyalgicEncephalomyelitis #MyalgicE
@mecfs #mecfs

Long COVID patients show brain swelling linked to memory and concentration problems, study finds - ABC News
#MyalgicE #LongCovid #MoreThanFatigue https://www.abc.net.au/news/2025-02-11/long-covid-brain-swelling-memory-problems-research-queensland/104917572?utm_source=abc_news_app

The Evening Telegraph, Derby, England. 3rd February 1993. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

The Irish Daily Star. 3rd February 1993. An article about 'TATT'. The Star asks Wessely colleague Anthony David to comment on it.

#cfsme #myalgicencephalomyelitis #myalgice #mecfs

Another relatively early mention of the term #myalgicencephalomyelitis in the UK press from this day, forty-two years ago.

The Guardian, UK. 2nd February 1983. #mecfs #cfsme #myalgice
@rfh1955

New:
Digital health app data reveals an effect of ovarian hormones on long COVID and myalgic encephalomyelitis symptoms

https://www.medrxiv.org/content/10.1101/2025.01.24.25321092v1

"Menstruation is associated with worsened symptoms in long COVID and ME/CFS"

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

The Daily Telegraph, UK. 26th January 2010. The case of Lynn Gilderdale.

"Keir Starmer, the Director of Public Prosecutions...had taken the decision to pursue the attempted murder charge in November".

#cfsme #myalgicencephalomyelitis #myalgice #mecfs
@rfh1955

The Daily Telegraph, UK. 26th January 2010. The case of Lynn Gilderdale.

"Keir Starmer, the Director of Public Prosecutions...had taken the decision to pursue the attempted murder charge in November".

#cfsme #myalgicencephalomyelitis #myalgice #mecfs

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Details for the next meeting of the Bray ME/CFS adult support group

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #Bray
@mecfs

From Audrey Lodge
ME/CFS Meeting: Bray, Co Wicklow. Friday 31st January 2025, 12.30 PM
Dear All,
The next ME/CFS Adult (Bray) meeting will take place on Friday 31st January at 12.30pm. Usual venue, details below.
Usual Venue Details for Bray Meeting:
The venue is Villa Pacis which is the community hall in the grounds of Our Lady Queen of Peace Church, Vevay Road, Bray, A98VP93. There is usually plenty of free parking available on site and the venue can be accessed via either of the Vevay road or Puntland road entrances. It is a wheelchair accessible venue.
The meeting will last for approx. 1 hour 15 minutes and there will be a cuppa available afterwards for anyone that is able to stay. Feel free to make yourself a cuppa in the kitchen beforehand, after your journey. I have checked with the caretaker and they are happy for us to do.
If you have any queries in relation to the above, please feel free to email me back, call me or WhatsApp/text me.
Looking forward to seeing as many of you that are able to make it next week.
If you are new to the group and hope to attend, it would be great if you could let me know if you plan on attending but I understand that given the nature of the illness it may depend on how you are on the day.

Warm wishes,
Audrey Lodge
audreylodge [at] hotmail dot com

GP Educational Webinar on #PVFS and ME/CFS

Dr Ros Vallings, a New Zealand GP who is an expert on ME/ #CFS, will present a free talk followed by a Q&A session on Tuesday, April 8 7:30 PM for just over one hour.

https://irishmecfs.org/blog/april-8-2025-educational-event-for-gps-key-messages-for-primary-care-on-the-diagnosis-and-management-of-post-viral-fatigue-syndrome-and-mecfs

#MyalgicE #PostViralSyndrome #MedEd #CFSME #MEcfs @mecfs

#MyalgicE

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