#Narcolepsy

Centro de Dx NeurológicoCEDNeuro@mstdn.plus
2025-06-15

Un nuevo agonista selectivo de los receptores tipo 2 de #Orexina que se administra por vía oral es eficaz para combatir la #narcolepsia, e incluso llega a causar #insomnio como efecto colateral 😄

#Oveporexton #Narcolepsy #Orexin #Neurology #Neurología #SleepMedicine #MedicinaDelDormir #NEJM

nejm.org/doi/full/10.1056/NEJM

mariolistens 🎧mariolistens@neko.cat
2025-06-08

I am now listening to Eden by Narco-lepsy #Narcolepsy
last.fm/music/Narco-lepsy/_/Ed

mariolistens 🎧mariolistens@neko.cat
2025-05-22

I am now listening to Eden by Narco-lepsy #Narcolepsy
last.fm/music/Narco-lepsy/_/Ed

2025-05-14

Georgia Tech's offense was diagnosed with during his 1st year where he started 42 games and won 2 national titles. Now he’s an draft prospect, while still dealing with the condition on an everyday, every minute basis

nytimes.com/athletic/6227200/2

Mark Patterson, MD, PhDMitdoc@med-mastodon.com
2025-04-26

Glad to share info about #narcolepsy awareness at the #WakeUpNarcolepsy national summit in #Durham, NC.

Man standing beside a banner for the narcolepsy awareness non-profit Day4NAPs.

We Are In Serious Danger.

#Tourette’s syndrome was first identified in 1885
#Narcolepsy was first identified in 1877
#Autism was first identified in 1943
#ADHD was identified in 1902

Mark Patterson, MD, PhDMitdoc@med-mastodon.com
2025-04-15

It's great seeing the topic of #narcolepsy receiving attention and to see this award given to such worthy researchers!
youtu.be/VTZD3RvsrZQ?si=vSQyS9

Juli O'Connorjuli@mathstodon.xyz
2025-03-28

Starting to realize firsthand why there are very few people with #Narcolepsy in academia :(

Mark Patterson, MD, PhDMitdoc@med-mastodon.com
2025-03-17

Happy #StPatricksDay to all who celebrate. May you have as much luck in catching a #leprechaun as I did in #Dublin a few years ago. The event was a #narcolepsy #bedrace I helped organize.

Three men posing in costumes, the middle one dressed as a leprechaun.
Code of Amor 💘codeofamor@codeofamor.net
2025-03-16

My alters atm (after us being paralysed for over an hour and locked in narco-sleep):

  • I'm hungry
  • Leave me alone!
  • No! I'm not hungry!
  • FUCK!
  • I'm tired
  • Don't blow on me!
  • I'm cold!!
  • Be patient with me!!!!
  • It's too hot!
  • Close the door!
  • Yuck!
  • No, open the door!
  • Ahhh goosebumps!
  • I'm hungry!!
  • No. I don't want to play that!
  • Tired!!
  • But whyyyyy?!
  • Hungry!
  • No! Those are for tomorrow!
  • Turn ON THE LIGHTS!!!
  • I don't want to!
  • FUCK!!
  • No!
  • Food!
  • Shhhh!
  • The wind is TOUCHING me!!!!
  • Ow. I'm sore.
  • FUCK!

Me: a fleshy container that someone resurrected too many souls into. It's like a fucking road trip back seat with 3 kids under 9 up in here rn.

#DID
#narcolepsy

Code of Amor 💘codeofamor@codeofamor.net
2025-03-08

The problem with having micro-dreams (I call them drifts) in your normally awake period (e.g. daytime) is that it rapidly fills your short term memory with dream history and your thoughts with dream logic, which are, most of the time, utter bollocks, leading to a strong and sometimes distressing feeling of disorientation or confusion. With narcolepsy, you don't even need to be asleep before the dreams start. Sometimes you don't even need to close your eyes. 👀🫤😱 On the up side, I have garnered an intimate intuitive understanding of how dreaming works and why, and always being one foot in dreamland has benefits too.
#narcolepsy
#dreamingawake

mariolistens 🎧mariolistens@neko.cat
2025-03-04

I am now listening to Ghost town by Narco-lepsy #Narcolepsy
last.fm/music/Narco-lepsy/_/Gh

2025-02-12

If you're losing , you're not alone – but when does a lack of sleep become a life-changing issue?

In collaboration with , check out our on , as well as ways creatives can tackle this topic in their stories! lear.center/hhs-tipsheet-narco

Juli O'Connorjuli@mathstodon.xyz
2025-01-24

I wish my body worked properly :c Recently it just seems to be falling more and more apart. I injured my meniscus over a month ago and that still hurts a ton, and this isn't helped by the fact that Pittsburgh is quite honestly one of the worst cities to get around on crutches. I've had non-stop digestive issues since winter break and I can't figure out why, which is also the reason I'm still up this late. I'm still getting over a truly awful case of the flu, and I've lost a scary amount of weight from it. I haven't been able to maintain a consistent enough eating schedule to take my #Narcolepsy meds, so my sleep has been awful. And I just am doing really poorly mentally given all this and also the current events. So yeah :( Wonder what my life would've been like if my body actually functioned like it was supposed to. Wish I could've known.

NaClKnight is still Black AFNaClKnight@c.im
2024-12-17

Real talk, no jokes,

does a #Narcolepsy medical diagnosis count as an "invisible" #disability? Cause i definitely needed accommodations in college

On the other hand, there are at least 25 students who did worse on their calc final than the MF who fell sleep (and woke up) during the test

Code of Amor 💘codeofamor@codeofamor.net
2024-12-17

Does anyone else (I'm pretty sure this is a #NT vs #ND thing) find it jarring to have someone ask you what your plans are for a future period of any distance or duration?

Like, I don't know what a NT brain is like, but unless I ENFORCE breaks and meditation, I don't think about that kind of thing idly almost EVER.

It just seems like there must be a gap in NT thinking or their day and they just go "hmmm I wonder what I'll do tonight|this weekend|for new years...".

I have no gaps. There is thought, experience, and perception type A, and thought, experience, and perception type B. No lull.

Having said that, it might be related to the EXTREME amount of stimulant medication that is required to treat my #narcolepsy.
#autism
#adhd
#musing

2024-12-12

Combining Topic Modeling, Sentiment Analysis, & Corpus Linguistics to Analyze Unstructured Web-Based Patient Experience Data: Case Study of Modafinil Experiences

jmir.org/2024/1/e54321

Comment: I have a concern it could false energy in ME/CFS & make pacing difficult

#MEcfs #CFS @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #narcolepsy #multiplesclerosis @multiplesclerosis

Screenshot of abstract
Code of Amor 💘codeofamor@codeofamor.net
2024-12-11

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