#PalliativeCare

Adrian SegarASegar
2025-06-21

Why you should use the healthcare strategy "ask, tell, ask" when you want to connect fruitfully in a learning environment.

conferencesthatwork.com/index.

ask tell ask: photograph of three men sitting on the ground in deep discussion. Photo attribution: Flickr user mikecogh

Brothers who gave $50K for palliative care room at nursing home learn tough lesson
Alan and Glenn von Weiler were grateful for the care a Blacks Harbour nursing home gave their late father, so they donated $50,000 for a palliative care room at the home.
#donation #palliativecare #nursinghome #family #BlacksHarbour #News
cbc.ca/news/canada/new-brunswi

2025-06-20

IMO it's good news today on assisted dying. Although there's more detail to work through, it seems unlikely that their noble Lordships will sink the Bill passed by the Commons.
AND there's palliative care to support and build up. This opinion piece in the FT is hopefully just the start of much more prominent campaigning.
The writer is CEO of Hospice UK.
#PalliativeCare #UKpol #AssistedDying
We must renew palliative care focus as part of assisted dying decision - on.ft.com/466wKAi

Brothers who gave $50K for palliative care room at nursing home learn tough lesson
Alan and Glenn von Weiler were grateful for the care a Blacks Harbour nursing home gave their late father, so they donated $50,000 for a palliative care room at the home.
#donation #palliativecare #nursinghome #family #BlacksHarbour #News
cbc.ca/news/canada/new-brunswi

Veteran Llanelli Labour MP says she will vote against Government’s assisted dying bill

Dame Nia Griffith, who is currently the UK Government’s Parliamentary Under-Secretary of State for Wales and Parliamentary Under-Secretary of State for Equalities says she is going to vote against the Government’s assisted dying bill in the free vote.

In a statement, the MP said she appreciated the “deeply complex” issues surrounding the bill and had carefully listened to arguments on both sides of the debate. However, despite supporting additional amendments to the bill to add safeguards, she still remained concerned about its potential implementation and the impact on vulnerable people.

Dame Nia said: “The Assisted Dying Bill is a deeply complex issue, with its principles and potential effects having a profound impact on the lives of many. I have received hundreds of letters and emails from constituents and have spoken in person with many people on both sides of the debate, each sharing important concerns with genuine compassion.

“I have listened carefully to these views and want to thank everyone who reached out to share their emotions, as well as the personal and family experiences affected by this issue.

“The pain of watching a friend or family member suffer at the end of life is something I know all too well, and it is not something I would wish on anyone. The impact on both those suffering and their oved ones is immense, and it is only right that we act with compassion to minimise that suffering wherever possible.

“At the same time, I have had to carefully consider the serious concerns surrounding this Bill – particularly how it could affect vulnerable individuals, including those who may feel they are a burden to their families or the NHS. The risk of coercion, whether overt or subtle, is a matter that cannot be overlooked.”

Dame Nia added: “Having followed the Bill and the issues around it from its inception, I have also considered the views of medical professionals, including doctors and nurses, who would be directly involved in decisions that could end a person’s life. Our palliative care system is already under considerable strain, and in debating this Bill, we must ensure that the care provided to people at the end of life is of the highest possible standard.

“Throughout the stages of the Bill, I have supported additional amendments to make sure the Bill has robust safeguards and functions responsibly in practice. Despite these efforts, I still remain concerned around its potential applications and consequences.

“Therefore, after much reflection, I will be voting against the terminally Ill Adults (End of Life) Bill later today.”

#AssistedDying #NiaGriffithMP #PalliativeCare #UKGovernment #WelshLabour

Dame Nia Griffith MP
2025-06-20

Brothers who gave $50K for palliative care room at nursing home learn tough lesson
Alan and Glenn von Weiler were grateful for the care a Blacks Harbour nursing home gave their late father, so they donated $50,000 for a palliative care room at the home.
#donation #palliativecare #nursinghome #family #BlacksHarbour #News
cbc.ca/news/canada/new-brunswi

2025-06-20

UK lawmakers to vote on assisted ‘End of Life’ Bill for terminally ill adults today

In a transformative step towards social policy change years after breakthrough legislation was made through legalisation of abortion…
#UnitedKingdom #UK #Europe #EU #assisteddeath #assisteddyingbill #GreatBritain #LabourMPKimLeadbeater #palliativecare #terminallyilladults #ukparliament
europesays.com/2178545/

2025-06-17

No Gordon you two faced bar steward. You are mistaking your beliefs (as a ‘son of the Manse’) and trying to justify them from the false equivalence of improving palliative care. Palliative care is essential and under resourced - that does not mean your refusal people right to end their own lives when dying in extreme, untreatable pain can be acceptable.

Palliative care AND assisted dying should both be supported.

theguardian.com/commentisfree/

#PalliativeCare #AssistedDying #UK #Brown #Hypocrisy

𝐭𝐚𝐤𝐢𝐧𝐠 𝐥𝐮𝐜 (RN)Luc@dresden.network
2025-06-11

Bisschen "late to the party", aber gutes Dokument:

Die "Bern declaration 2024" der #PublicHealth #PalliativeCare International (#PHPCI) zum gesellschaftlichen Umgang mit dem Lebensende.

via: koordinierung-hospiz-palliativ

#Hospizarbeit #DHPV #Hospiz #Palliativpflege

Screenshot der Erklärung, Text via PDF-Link im Toot.
ClareBear 💚 :tinoflag:ClareBear@mastodon.nz
2025-06-08

rnz.co.nz/news/national/563480 This health minister has absolutely no idea. Stop voting for people who are determined to privatise our health system. #nzpol #healthcare #PalliativeCare

𝐭𝐚𝐤𝐢𝐧𝐠 𝐥𝐮𝐜 (RN)Luc@dresden.network
2025-05-30

Mit Beiträgen aus dem Dresdner #Hospiz hat die #ApothekenUmschau eine kleine Videoreihe produziert.

"Abschied – Dein Ratgeber für den letzten Weg"

🎦 youtube.com/watch?v=00vPgbO-rN

(Verlinkt direkt auf Folge 5 mit J. Bittner vom #MarienHospiz #Dresden.)

#PflegeNetzDresden #PalliativeCare #Hospizarbeit #JosephStift

ClareBear 💚 :tinoflag:ClareBear@mastodon.nz
2025-05-30

Rei Kōtuku estimates $8 million would be enough to establish a four-hub nation-wide 24/7 specialist service.

How many millions for landlords, tobacco companies, war toys, private schools, private healthcare providers? Sorry, bilions? Shame on this 'government'

rnz.co.nz/news/national/562604

#nzpol #palliativecare #healthcrisis

2025-05-27

How 184 random citizens helped shape France’s debate on assisted dying.

French MPs will on Tuesday vote on two landmark bills on palliative care and assisted dying.

They're the result of months of debate shaped by a rare democratic experiment that brought together 184 randomly selected citizens to grapple with one of society’s most intimate and divisive questions: how should we die?

mediafaro.org/article/20250526

#AssistedDying #Death #PalliativeCare #Health #Politics #France

Volunteers launch social group for patients in Swansea city centre cafe

Once a fortnight they welcome patients receiving support from the Specialist Palliative Care team to the Cartrefi Social Bean Hub in St Mary’s Square.

There the patients can share experiences with people in a similar situation to their own and enjoy arts and crafts and music sessions – away from a hospital setting.

The team of volunteers at Ty Olwen is now more than 30 strong. They do everything from running the tea bar and keeping the garden looking its best, providing volunteer transport and supporting patients and families on the wards.

They have now linked with Cartrefi Cymru Co-Operative, a not-for-profit organisation that mainly supports people with learning disabilities.

It runs the Social Bean Hub, which the Ty Olwen volunteers have been hiring every other Wednesday since early April.

“It’s for our community patients who would benefit from support and companionship from Ty Olwen,” said Helen Martin, who manages the Ty Olwen volunteer team.

“When you’re ill and don’t get out to see your friends as much, it can be a very isolating experience.

“Now, the patients can come in and they can talk about whatever they want, or about anything that’s on their mind. We have our team of fantastic volunteers who can support that.

“The feedback from the patients has been great. They are very pleased to have somewhere they can come and meet other people in the same situation as theirs.

“A bit of peer support from each other has been great to see. And it’s away from a hospital setting, which was deliberate. We don’t want people to feel as if they are in a medical environment.”

Helen said one of the meetings included music from volunteer Aly Loring, while another involved card-making.

“We have asked the people what they want to do, like painting or whatever,” she added. “But it’s mostly about giving them the opportunity to get away from home and speak about things that maybe they would prefer not to talk to their family about.”

Social group member Angela Pridmore with volunteer Alison McNamara.
(Image: Swansea Bay NHS)

One participant, Angela Pridmore, from Fforestfach said: “I’ve been looking for outlets so when I was contacted about the social group, I was very interested.

“This is my third session here. It has been very interesting and enjoyable.

“We’ve shared stories and had a music session, which was really uplifting. It’s great. I would advise anyone to come along if they are able to.”

Alison McNamara, who lives in Clydach, volunteers on the Ty Olwen inpatient unit and also supports the social group. She is a relative newcomer, having joined the volunteering ranks earlier this year.

Alison lost her first husband eight years ago. He was in a hospice in Warwickshire at the end of his life and Alison fundraised for it by walking 1,000 miles over the space of a year.

But, she said, she wanted to do more than just raise money. Since moving to Wales, Alison, who remarried and has a young son, has completed a psychology degree.

“I would like to become a counsellor,” she said. “I was looking around for places to volunteer to get some experience of talking to people with the purpose of helping them.

“It can be tough on the ward. But here we do things like card-making, there’s a bit more space and it’s a social get-together, which is nice.”

So far only a limited number of patients have attended the social group, but Helen hopes it will grow as more of them become aware of it.

“If anyone who is looked after by the specialist palliative care team would like to come along, we would welcome them,” she said.

“It’s in central Swansea. They can be dropped off right outside the door and the bus station and taxi rank are really close.

“We took a long time choosing a venue. Cartrefi have been really accommodating. They completely got from the beginning what we were trying to achieve, and they have made us so welcome.

“They have their own volunteers who come in and serve us. It’s good for them, as well, to be able to see their beautiful facility used by the wider population.”

#cafe #MorristonHospital #PalliativeCare #StMarySSquare #Swansea #TyOlwen

Angela with Cartrefi Cymru Co-Operative project manager Claire LewisSocial group member Angela Pridmore with volunteer Alison McNamara.
Adrian SegarASegar
2025-05-20

Why you should use the healthcare strategy "ask, tell, ask" when you want to connect fruitfully in a learning environment.

conferencesthatwork.com/index.

ask tell ask: photograph of three men sitting on the ground in deep discussion. Photo attribution: Flickr user mikecogh
2025-05-12

French lawmakers revive the assisted suicide debate as the end-of-life bill returns to parliament.

French MPs are again debating assisted suicide, as an end-of-life bill restarts its legislative process after it was interrupted by President Macron’s dissolution of parliament last year.

Lawmakers in committee also adopted a bill on palliative care, which was initially part of the end-of-life legislation.

mediafaro.org/article/20250512

#France #AssistedSuicide #EndOfLife #PalliativeCare #Politics

2025-05-07

"A hundred days post-transplant, we both received our biopsy results. Mine came back clean: no sign of leukemia. Hers showed that she had already relapsed, and further treatment was not an option." —Suleika Jaouad for The Atlantic

theatlantic.com/ideas/archive/

#BookExcerpt #SuleikaJaouad #Cancer #Friendship #PalliativeCare

Psychedelic InstitutePsychedelicInstitute
2025-05-06

psychedelicmentalhealth.net/ps Pre-order: "Psychedelics in Palliative Care", Marcia Glass, Ed., Oxford University Press with contributions by Psychedelic Institute fellows, Michael DeMarco, PhD and Thaís Salles Araujo, MD on , mushrooms in palliative care -- I'm so proud to have contributed to this, and dedicate it in memory of my dog Fen

Psychedelic InstitutePsychedelicInstitute
2025-05-01

Oral Ketamine as an Analgesic Therapy: Systematic Review of Randomised Clinical Trials (Umbacia, et al, 2025) pubmed.ncbi.nlm.nih.gov/403063 " Preliminary evidence suggests that oral ketamine may be considered in select patients with refractory chronic neuropathic pain."

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