๐ช๐ผ๐ฟ๐น๐ฑ ๐ฆ๐ถ๐ฐ๐ธ๐น๐ฒ ๐๐ฒ๐น๐น ๐๐ฎ๐ โ ๐ญ๐ต ๐๐๐ป๐ฒ ๐ฎ๐ฌ๐ฎ๐ฑ
๐ง๐ต๐ฒ๐บ๐ฒ: Global Action, Local Impact: Empowering Communities for Effective Self-Advocacy
๐ช๐ต๐ ๐๐ ๐ ๐ฎ๐๐๐ฒ๐ฟ๐:
Sickle cell disease (SCD) affects over 300,000 births globally every year, with a large burden in low- and middle-income countries like India. It disproportionately impacts marginalized communities, especially tribal populations who face socioeconomic challenges. Awareness and early diagnosis are crucial to reduce complications and improve quality of life.
๐๐ฏ๐ผ๐๐ ๐๐ต๐ฒ ๐๐ฎ๐:
World Sickle Cell Day was established by the United Nations in 2008 to spotlight sickle cell disease as a major genetic health concern. The day promotes public education, encourages screening, and supports affected individuals and families worldwide.
๐๐ฒ๐ ๐ฃ๐ผ๐ถ๐ป๐๐ ๐๐ผ ๐ฆ๐ต๐ฎ๐ฟ๐ฒ:
- Sickle cell disease is a genetic blood disorder causing abnormal red blood cells that affect oxygen delivery.
- Early diagnosis through newborn screening and blood tests is vital.
- Communities need empowerment to advocate for better healthcare access and support.
- Knowing your sickle cell trait status helps in family planning and prevention strategies.
๐๐ผ๐ ๐ฌ๐ผ๐ ๐๐ฎ๐ป ๐๐ฒ๐น๐ฝ:
- Get tested or encourage others to get screened, especially before pregnancy.
- Support local and global awareness campaigns.
- Share accurate information about SCD symptoms, treatment, and prevention.
- Advocate for better healthcare policies and resources for affected communities.
Letโs unite on 19 June 2025 to empower communities and create lasting change for people living with sickle cell disease.
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