#chronicillness #autoimmune #chronicallyill #chronicillnesshumor #chronicillnessmemes #autoimmunememes #fibromemes #fibromyalgia #spoonie #chronicillnesslife #spoonielife #chroniclife
It always seems to be systemic inflammation of some sort or another underpinning almost all chronic, debilitating and under-treated or maltreated diseases.
Thanks @Sidherian
I’m still searching for a kidney donor so I can have the chance to live a more normal life again. 💚 Every share truly helps spread the word and brings me one step closer to that hope.
Please take a moment to read my story and share it if you can — it means the world to me. Thank you for your kindness and support. 🙏
#KidneyTransplant #OrganDonation #DonateLife #TransplantHope #ChronicIllness #DisabilityAwareness #ESKD #KidneyDisease #KindnessMatters #HopeLivesHere
At a chronic pain seminar tonight, the OT said, "one thing we often hear is, 'oh i wish you could just put me in a coma until my current neurons would die and be replaced with new ones that aren't so highly reactive', but unfortunately that isn't how the nervous system works."
(US)
"Medicaid Work Requirements Will Devastate People With Invisible Disabilities — ME/CFS & #longCOVID patients must qualify as 'medically frail'" (October 7 2025) by Laurie Jones
https://www.medpagetoday.com/opinion/second-opinions/117839
3 min read
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#PASC #PwLC #postcovid #POTS @pots #postcovid19 #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
Free 15-page booklet, "Disclosure And Discrimination In The Workplace: A Guide For People With Long-Term Health Conditions"
https://astriid.org/news/disability-discrimination/
Publication from the UK but a lot of the information is likely applicable in many countries.
#chronicillness #ChronicallyIll #Spoonies #Spoonie @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC
My #cat sticks to me like glue when I’m having bad #chronicillness days. That’s a love beyond words…
"Six things I learned from my time in a wheelchair" by a woman with ME and POTS
https://chronicallycraptastic.com/six-things-i-learned-from-my-time-in-a-wheelchair/
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #POTS @pots #Disabled #Disability #chronicillness #Spoonies
#Spoonie
Fair Warning: Due to severely deficient autobiographical memory, combined with short term memory deficits and fibromyalgia-fog, I am not the most consistent person you will ever meet. I WILL forget that thing I said last year, or month, week, or even last night. And I will look at it with confusion. I am never the same person twice, consider this your heads up. #AuDHD #SDAM #chronicillness #memory
Also , chronically ill people can be neglected, forgotten, ignored,denied ,even judged by other ones who know nothing about their situations ,etc. .As a result, they may hide ,give up, live on the margin and stop struggling for their lives .
Briefly ,no one can feel chronically ill people till they experience chronic illness themselves.
#chronicillness
The core issue in being chronically ill body is that your tragedy has no end .
It's not like being ill temporarily for days ,weeks , months or even some years and finally get your health and normal life back.
In other words , chronic illness is a kind of ongoing torture with uncertainty about the future .
#chronicillness
I am currently sitting and waiting for my appointment to attempt to access my #PortACath by myself with nurse guidance, of course. Last time, she said I have the sterile process down like nothing. Just when I tried to put my needle in, I missed my target because my port is so small sigh. Hopefully, I have a better idea this week and can get it in by myself. Everything else with it has been easily learned, deaccessing and giving myself fluids at home. Either way, steps in the right direction to helping me manage my health better with my #POTS
#ChronicIllness #Disabled #Disability
A test of which products actually help keep you clean if disability, chronic illness, or emergencies make it difficult to shower, shave, or wash your hair. #Disability #ChronicIllness
Read the recommendations here: https://twp.ai/NTWyxy