Diagnosis: Hypermobile Ehlers-Danlos Syndrome

After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

Final close up.

https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

#art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

Understand the role of elastin in maintaining tissue flexibility and how its defects lead to connective tissue disorders.
#Elastin #ConnectiveTissue #Biochemistry #Histology #USMLE

https://mymedschool.org/portfolio/u01-01-037-elastin/?utm_source=mastodon&utm_medium=jetpack_social

Understand the types and clinical signs of Ehlers-Danlos syndrome for effective diagnosis.
#USMLE #Genetics #Collagen #ConnectiveTissue #MedicalEducation

https://mymedschool.org/portfolio/u01-01-035-ehlers-danlos-syndrome/?utm_source=mastodon&utm_medium=jetpack_social

Understand the collagen defect behind brittle bones in osteogenesis imperfecta.
#USMLE #Genetics #Collagen #ConnectiveTissue #MedicalEducation

https://mymedschool.org/portfolio/u01-01-034-osteogenesis-imperfecta/?utm_source=mastodon&utm_medium=jetpack_social

Chicken or Pork nuggets: https://www.aurianneor.org/chicken-or-pork-nuggets/

#animalprotein #aurianneor #bone #breaded #chicken #citricacid #connectivetissue #cooking #Cookingrecipe #corn #easycooking #egg #flour #fructosesyrup #frying #HFCS #homemade #industrial #local #nuggets #oil #organic #photomontage #pork #realfood #recipe #redlabel

What if one protein could hold the key to looking and feeling younger? Your body naturally produces it, but after age 25, levels drop by about 1% each year. #antiaging #BeautySupplements #BestCollagenProducts #CollagenBenefits #CollagenSupplements #ConnectiveTissue #HairCare #HairGrowth #JointSupport #skinhealth

https://priya.health/collagen-supplements-skin-joint-hair-benefits-explained/

In this guide, we’ll unpack what each of these types does and how to naturally support collagen production in your body.
https://retroworldnews.com/collagen-types-101-breaking-down-type-i-ii-iii-and-why-they-matter/

#CollagenTypes #TypeI #TypeII #TypeIII #CollagenBenefits #SkinHealth #JointSupport #BeautyScience #HealthyAging #NutritionMatters #WellnessJourney #CollagenFacts #ConnectiveTissue #SkinCareRoutine #HealthAndWellness #AntiAging #FitnessNutrition #HolisticHealth #BeautyFromWithin #CollagenKnowledge #beauty

“Headspin hole” explained: How breakdancing can reshape your skull https://www.psypost.org/headspin-hole-explained-how-breakdancing-can-reshape-your-skull/?utm_source=dlvr.it&utm_medium=mastodon #HeadspinHole #Breakdancing #SkullReshaping #ConnectiveTissue #Headspinning

Glycosylation Modulates the Structure and Functions of Collagen: A Review (2024)

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11012932/

#collagen #ConnectiveTissue #ExtracellularMatrix #glycosylation #glycobiology

@trendless

an example of new onset skin stretchiness in someone with Long Covid, post includes photo:
https://twitter.com/D_Bone/status/1550692324941787136

It would be interesting to do skin biopsies and look at gene expression, protein level, and glycosylation differences between stretchy skin areas vs. non-stretchy skin.

~
edited to add:

So far I haven't seen a study like that for hEDS, EDS or Long Covid. It seems strange since it is the 1st thing I would do (and if I ever win the lottery, it would be the 1st study I would fund). If something similar has already been done then pls let me know.

#ConnectiveTissue #EhlersDanlos #hEDS #EDS #hypermobility #LongCovid

#Copper is a #mineral that's found throughout the body. It helps your body make #redbloodcells & keeps #nervecells and your #immunesystem #healthy. It also helps form #collagen, a key part of #bones & #connectivetissue. Copper may also act as an #antioxidant, reducing #freeradicals that can damage cells and #DNA. #angstromminerals #traceminerals #HealthyHabits

Manganese is a crucial trace mineral that supports metabolism, bone health, and the formation of connective tissue. Adding Angstrom Manganese to your daily routine can help you maintain a healthy and active lifestyle.

Discover the benefits of Angstrom Manganese at http://ElementalResearchInc.com.

#Manganese #MetabolismSupport #BoneHealth #ConnectiveTissue #AngstromMinerals

@ChariteBerlin @MDC_Berlin

Really cool! This technique - tomoelastography - measures the mechanical stiffness of tissue.

"The cerebral cortex, i.e. the outer layer of the brain consisting of gray matter, is less stiff in people affected by MS than in healthy people. The animal model showed that this is due to changes in the perineuronal networks. Perineuronal nets form a network that surrounds the neurons and that loosens when there is inflammation." (translation by Google)

I have often wondered if there are differences in perineuronal nets in people with connective tissue disorders. Could this technique detect differences in people with EDS, for example? What about its use in other parts of the body, besides the brain? Perhaps the gut?

Also, changes in PNN occur with aging. Could this technique be used to measure brain aging?

#MultipleSclerosis #EDS #EhlersDanlos #ConnectiveTissue #Aging
#Tomoelastography #PerineuronalNets

fascia #fascia #ConnectiveTissue #physiology #anatomy https://www.sciencealert.com/mysterious-neglected-part-of-our-bodies-is-vital-to-our-health-scientists-discover

Mysterious Neglected Part of Our Body Is Vital to Our Health, Scientists Discover
https://www.sciencealert.com/mysterious-neglected-part-of-our-bodies-is-vital-to-our-health-scientists-discover #fascia #muscles #ConnectiveTissue #human #physiology #anatomy

#ergonomics not of office chairs but #bicycle #seats puzzle me. At the #gym I sit my bony butt on a #rowing machine or a #recumbent bicycle and I feel like I'm grinding softer tissue (#muscle? #connectiveTissue?) against bone, painfully, after about five minutes. Extra padding helps, but only a bit. On an upright bike I'm good as long as my energy holds. What's happening #anatomically? What sort of #adaptor can I buy or make to put on the rowing machine to mimic the normal bike seat?