#fibromyalgia

Marie, Meg, Lilly, She/TheyHyperiontrails@tech.lgbt
2025-05-04

Yay so today my right shoulder and arm decided to be cranky I have significant joint pain and muscle aches and I don’t think I’m going to sleep at all well my hips are pinging and I have what feels like muscle strain/doms in my legs (both) and my left leg keeps giving way so that’s fun, I’m under a heated blanket and I’m rattling from the pills 🫣
#fibromyalgia
But hey at least it’s just the pain it’s not like there’s anything wrong 🥺🥸

2025-05-04

🧵
From Chronic Living Therapy e-newsletter:

"Round up of articles spotted online in March/April 2025 that focus on the experiences of people with ‘psychologised’ or hard to diagnose health conditions."

chroniclivingtherapy.com/1-els

@chronicillness
@spoonies @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI @longcovid
#LongCovid @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM
#chronicillness #chroniclife #spoonie

1/

Spotted in the news / online

Read any articles or research of interest to therapists and counsellors? Please share them with us! We've rounded recent ones up up and added them to our website.

Here's what we have from March and April 2025:

Physiology for Psychology by Emily Cochrane of POTSUK on how this physiological condition gets misinterpreted and treated as 'anxiety'.

#ThereforME published a piece by Ella Barnard who is lost for words trying to describe the reality of ME/CFS.

The Smithsonian published an excellent article about how mental illness has become a scapegoat diagnosis for many women with serious physical health problems.

And a fantastic piece of research from Australia looking at young people with ME/CFS and exploring how they face challenges building independence and forming their own identities when their paths diverge so much from those of their peers. Can't recommend this one enough!

Read our roundup of March/April publications: https://chroniclivingtherapy.com/1-elsewhere-web/
2025-05-04

From Canada:

The gut microbiota promotes pain in fibromyalgia

cell.com/neuron/fulltext/S0896

"Transplanting gut microbiota from women with fibromyalgia into mice induces pain. It also induces immune activation, metabolomic changes, and reduced skin innervation"

@fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #ChronicPain

Highlights
•	
Transplanting gut microbiota from women with fibromyalgia into mice induces pain
•	
It also induces immune activation, metabolomic changes, and reduced skin innervation
•	
Gut microbiota promotes pain through several mechanisms
Summary
Fibromyalgia is a prevalent syndrome characterized by widespread pain in the absence of evident tissue injury or pathology, making it one of the most mysterious chronic pain conditions. The composition of the gut microbiota in individuals with fibromyalgia differs from that of healthy controls, but its functional role in the syndrome is unknown. Here, we show that fecal microbiota transplantation from fibromyalgia patients, but not from healthy controls, into germ-free mice induces pain and numerous molecular phenotypes that parallel known changes in fibromyalgia patients, including immune activation and metabolomic profile alterations. Replacing the fibromyalgia microbiota with a healthy microbiota substantially alleviated pain in mice. An open-label trial in women with fibromyalgia (Registry MOH_2021-11-04_010374) showed that transplantation of a healthy microbiota is associated with reduced pain and improved quality of life. We conclude that altered gut microbiota has a role in fibromyalgia pain, highlighting it as a promising target for therapeutic interventions.
Alice. 🇨🇦Ratoncita
2025-05-04

Feeling pretty crappy due to weather related . Welcome the rain showers as the gardens need it. Might be the same tomorrow. Think I may be in bed early.

2025-05-02

Hey all,

I've had a rather awful day with my #Fibromyalgia pain and head coldy-ness. So I've only just turned my computer on and it's after midnight.

I've done a bit of woodwork and pattern planning/designing but that's about it today.

Not much else to say as I'm kinda in "just making it through the day" mode.

Be careful out there.

#StaySafe and #BeKind

2025-05-02

"'Twirl With Me, Mama!' by Melissa Beardall & Rebecca Nichols is a moving children’s book that shines a compassionate light on families living with #chronicillness ."

hazymaybooks.com/about-the-boo

See next post for more information on this book

@chronicillness
@spoonies #parenting #chroniclife #ChronicPain #Spoonielife
#hiddenillness #invisibleillness #ChronicIllnesses #Spoonies #Spoonie
#ChronicallyIll @mecfs
#MEcfs @longcovid
#LongCovid @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #POTS @pots

1/

Drawing of a young girl using a stethoscope on her mother who is in bed.
Has the following text:
"Mama says she sick. She doesn't look sick to me. She isn't coughing or sneezing like I do when I'm sick. "You need to go to the doctor so you can get better," I say. But mama isn't getting better.

Client Info

Server: https://mastodon.social
Version: 2025.04
Repository: https://github.com/cyevgeniy/lmst