Healthcare exchanges in Nevada, Maine, Massachusetts and Rhode Island shared users’ sensitive health data with companies like Google and LinkedIn

Maine’s exchange, CoverME.gov, sent information on drug prescriptions and dosages to Google through an analytics tool. It also sent the names of doctors and hospitals that people had previously visited.

📊🧬Are you a clinician doing research with real-world data? 👩‍⚕️ 💊

Let #SUNDDataLab at UCPH #HeaDS support your analysis needs!

From #StatisticalModeling to #DataVisualization and #Python/#R workflows—we’ve got you covered💪

No time or coding experience? No problem.
On-demand, expert data help tailored for busy clinical researchers.

🌐 https://www.heads.ku.dk/datalab/
📧 datalab@sund.ku.dk

#MedicalResearch #ClinicalResearch #DataScience #HealthData

📢 How can projects maximise the #regulatory impact of their results? Together with the Critical Path Institute, we published a paper in Nature Reviews Drug Discovery that draws on our experience of managing consortia.
The key lessons? Projects need:
📑 A clear regulatory strategy
👩‍💻 A #HealthData management plan aligned with regulatory goals
📗 A sustainability plan to ensure data availability after the project ends
💬 Early engagement with regulators
Find out more 👉 https://europa.eu/!nKyFyQ

The Journalist’s Resource: When health data disappears: 8 tips for finding what’s hidden from public view . “As the U.S. government continues to remove data and make radical changes to its websites, reporters are encountering health data that’s incomplete, altered or missing entirely. At the Association of Health Care Journalists’ annual conference in Los Angeles on May 30, a panel of […]

https://rbfirehose.com/2025/06/15/when-health-data-disappears-8-tips-for-finding-whats-hidden-from-public-view-the-journalists-resource/

CDT is proud to support the reintroduction of the My Body, My Data Act — landmark legislation led by Ron Wyden to establish a national standard protecting reproductive & sexual #HealthData. https://www.wyden.senate.gov/news/press-releases/wyden-colleagues-reintroduce-bill-to-protect-reproductive-and-sexual-health-data

🚨New research paper: Spatio-temporal patterns of #health service delivery and access to maternal, child, and outpatient healthcare in #Volta region, #Ghana

A new approach to monitoring service changes using #HealthData & #SpatialAnalysis - led by Dr Winfred Dotse-Gborgbortsi

🔗 https://doi.org/10.1080/16549716.2025.2513861

📢 FAIR Data, FAIR Future Symposium @OpenScienceNL
📅 Sept 18, 2025 | 🕙 10:00–18:00
📍 UMCG, Groningen
🔍 Keynotes & workshops on AI, Data Protection, Transparency & more!

Join the conversation on building a FAIR future in academia & healthcare 🌍
🔗 Register: https://umcgresearch.org/w/fair-data-fair-future-bridging-academia-and-healthcare
#FAIRData #OpenScienceNL #HealthData #FAIRFuture

Where in the world are babies at the lowest risk of dying?

https://ourworldindata.org/where-are-babies-at-lowest-risk-of-dying

#HackerNews #babymortality #infanthealth #globalhealth #healthdata #dataanalysis

Trust is critical to EU #healthdata success, says #WHO https://www.euractiv.com/section/health-consumers/news/trust-is-critical-to-eu-health-data-success-says-who/?utm_source=dlvr.it&utm_medium=mastodon

📝 New post: 'Unmasking Long Covid: PCA & Clustering Analysis of Symptom Syndromes'

🧛 See how data-driven and domain-knowledge approaches align to define distinct symptom clusters and inform management strategies.

👀 https://drmo.site/RmNDXg

#rstats #healthdata #longcovid

💡 There are large knowledge gaps in #WomensHealth. Our projects are investigating safe medicine use in 🤰, advancing research into diseases that mainly affect 👩 & more.
⚡ Research gaps still exist, in hormones, sex-based differences, & #HealthData.
👉 https://europa.eu/!mkNwyk
#InternationalWomensHealthDay

ETH-researchers created a technology that offers a simple, non-invasive way to track #HealthData daily using sanitary towels.

Sanitary towels morph into tes...

The European Health Data Space and the Trusted Exchange Framework & Common Agreement are paving the way for a more connected, interoperable future in healthcare.

Learn more: https://www.linuxfoundation.org/research/health-data-interoperability?hsLang=en
#HealthData #Interoperability #EHDS #DigitalHealth #EUHealth

📢 FAIR Data, FAIR Future Symposium
📅 Sept 18, 2025 | 🕙 10:00–18:00
📍 UMCG, Groningen
🔍 Keynotes & workshops on AI, Data Protection, Transparency & more!

Join the conversation on building a FAIR future in academia & healthcare 🌍
🔗 Register: https://umcgresearch.org/w/fair-data-fair-future-bridging-academia-and-healthcare
#FAIRData #OpenScienceNL #HealthData #FAIRFuture

Late-onset type 1 diabetes isn’t milder — it’s just as deadly if unmanaged. New research calls for urgent action. #Type1Diabetes #CardiovascularRisk #HealthData

https://geekoo.news/later-life-type-1-diabetes-carries-heavy-heart-risk/

California Health Site Data Sent to LinkedIn; Lawsuit, Probe Follow

#LinkedIn #DataPrivacy #CoveredCalifornia #HealthData #PrivacyBreach #California #PatientData #OnlineTracking #DataSecurity #HealthcareReg #ConsumerRights

https://winbuzzer.com/2025/05/15/california-health-site-data-sent-to-linkedin-lawsuit-probe-follow-xcxwbn/

California sent residents' personal health data to LinkedIn

https://themarkup.org/pixel-hunt/2025/04/28/how-california-sent-residents-personal-health-data-to-linkedin

#HackerNews #California #LinkedIn #Privacy #HealthData #DataBreach #TechNews

#WAHIS: World Animal Health Information System

"WAHIS is the global animal health reference database of the World Organisation for Animal Health (#WOAH). WAHIS data reflects the validated information since 2005 reported by the Veterinary Services from Member and non-Member Countries and Territories on terrestrial and aquatic Listed diseases in domestic animals and wildlife, as well as on emerging #diseases and #zoonoses.

"WAHIS includes interactive mapping tools and dashboards to support data consultation, visualization and extraction of officially validated animal health data."

https://wahis.woah.org/#/home

#HPAINews #AvianInfluenza #H5N1 #Diseases #LPAI #HPAI #BirdFlu #HealthData #HealthInformation #Parasites #HPAIResources #DiseaseResources #CDCFundingCuts #WAHIS

Health3 believes your health data belongs to you. (Family) Sharing gives you the benefits of collaboration while maintaining complete privacy control. Share biomarkers securely with those who matter most—on your terms.

🔗 www.health3.app

#HealthData #FamilyHealth