#hypermobile

2025-11-30

Diagnosis: Hypermobile Ehlers-Danlos Syndrome

After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

 

Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

Final close up.

https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

#art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

the figure in the manila bookmark has iridescent blue zebra stripes, which like a real zebra are smaller and tighter on the limbs and larger on the torso. Within the zebra's white spaces are green ink with blue sparkles, representing points of injury or trauma which have healed 'imperfectly' or had lasting trauma due to the connective tissue disorder -- the left (mirrored) leg, right inner knee, inner thighs and outer hips, some on the hands/fingers, and a splotch on the chest. The bottom leg which is very dark green has golden reconstructive hardware drawn on
Sharrow 🏳️‍🌈🏳️‍⚧️🇮🇪🦄💙📚🎃sharrow.bsky.social@bsky.brid.gy
2025-08-27
🤯🤯STICK RACK🤯🤯 well I think it was ment for brooms 🤷🏼‍♀️ but for me it’s my sticks!! I mainly use the pink one and always have a spare in the car 😀
Being physically fracked isn’t easy but you can be shiny and accessorise with all kinds of things 🤩
#eds #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobile #bendy #dislocate
(no spoons) deer witchmoss@kind.social
2025-01-17

Is it possible to knit your own compression gloves? Any tips or pattern recs?

@knitting #hypermobile #dysautonomia

2025-01-09

To all my #ChronicallyIll and #Hypermobile peeps...what do you do when your finger decides to go into subluxation? Is there any taping methods or supports or anything to help my finger feel normal again? First time I've had a finger do this. #Advice

2024-09-29

New Instance, Old Me.

#introduction post for the new place

Hi! I'm Ryn! No, not that one, the OtherRyn.

Hobbies include (but are not limited to):
#knitting #boardgames #videogames #crossstitch #sewing #reading #audiobooks #gardening

A little about the meatsuit I pilot: #AuADHD #T1D #hypermobile

2024 Household includes:
Polecat Ferret 1 - Kivalina
Polecat Ferret 2 - Nikiski
Irish Wolfhound Mix - Basti
Human (Spouse) - Augs

Other locations on Mastodon: @OtherRyn@mountains.social

Info to be added as I remember and my brain deems it important.

Had to put my left scapula back in place this morning. Took some interesting angles to get it lol but now my entire shoulder structure doesn't feel entirely cockeyed. Just kinda fuckin' sore, which is fair; usually that one goes out at the ball and socket, to the point I just shrug it back in, not the scapula sliding tf out.

(I am Aware of how body horror this sounds if you're not, y'know, symptomatically #hypermobile. There's REASONS I've been trying to push for an EDS dx. 😅)

2024-08-26

Now that this poll about hypermobility and broken bones has closed, here's some results.

57 hypermobile participants. 31.6% had broken any bones, 66.7% hadn't.

145 regularmobile participants. 31.7% had broken any bones, 68.3% hadn't.

I conclude: hypermobility probably doesn't affect whether or not you break any bones, maybe?

#poll #polls #hypermobility #hypermobile #hEDS #EDS #EhlersDanlos #EhlersDanlosSyndrome

Data from above post, shown as table with colours to emphasise high/low percentages.
2024-08-19

How many bones have you broken, and are you hypermobile?

This is a poll for everyone, but I'm tagging a few specific groups to make sure I get a good sample!

#poll #polls #hypermobility #hypermobile #hEDS #EDS #EhlersDanlos #EhlersDanlosSyndrome

2024-05-08

I’m trying a Pop grip on my phone today bc my thumb has been sore since I sprained my wrist. Not sure about it tbh. It feels uncomfortable.

Any #hypermobile folks got a take on the most comfortable grip for a phone?

#EDS #hEDS #Hypermobility #HMJS

Non hypermobile folks can suggest their faves too, but keep in mind it needs to be super comfy when lying down.

A high profile is not a problem, I’m not putting it in a pocket.

2024-04-20

Ok, so does mouthwash *not* sting and burn painfully for everyone else?
You don’t grey out when looking down e.g. to shave armpits?
Your knees don’t ache when driving more than a few minutes?
Silence hasn’t always been fuzzy ringing?

instagram.com/reel/C4wi5VcMZxd

#MedMastodon #disability #body #hypermobile #POTS #what

Max R. Cerrina (he/him)alephnaught2tog@tech.lgbt
2024-04-14

I have also ordered CMC/MCP thumb combo splints, which I've been meaning to get for ages. I've got soft braces (which are great for giving them a break) and push metagrips (which are great for heavy work, like repotting or high-risk activities), but nothing for standard day-to-day wear on my thumbs

#EhlersDanlos #hypermobile #disability

Max R. Cerrina (he/him)alephnaught2tog@tech.lgbt
2024-04-13

I have reordered my finger splints from a different company. The last company I ordered from has fine stuff, but this last order has turned into such a giant 8-month+ snafu that I'm just done.

New company should ship my order within a week.

Can't wait to have properly sized splints again!

#EhlersDanlos #hypermobile #disability

ItsCarryl has moved - see bio.itscarryl
2024-02-12

Since the diagnostic criteria is clear that you’re and that’s it, what could be making it so bad?

Maybe cos as an autistic ADHDer, I’ve been very sensitive all my life and as my nervous system has felt too much, has made my body tense up to protect me. Years of including the tissue, there’s been a hecking lot to release.

If it’s done too firmly, it all loosens briefly and tightens up again. I use my Thumper massager on setting 1.

chaotic_stegosaurusRoxieRose85@pagan.plus
2023-10-15

Why is the left side of my body so messed up? My left toes have arthritis, my left knee pops out of place easily and hurts easily, my left hip is painful a lot, my left shoulder has trouble a lot, my left eyes is a lot worse than my right one, and I currently have a large cyst on my left inner wrist. My right side however- my right knee is bad but no where near as bad as my left. And it is it just my knee on my right side. What is wrong with the left side of my body, lol? I don’t even know if it is common to have everything on one side or if I am just unique. #elhersdanlossyndrome #hypermobile

2023-10-12

@leafygreens @knitting @fiberarts Definitely listen to your body. I blew out both elbows, thumbs, wrists, etc., before being diagnosed #hypermobile (plus host of other things) but the damage was done. Thanks to an amazing surgeon, physiatrist, and PT, I can knit and game again! But I have to take breaks and do stretches and strengthening exercises. I use pillows to prop up my arms and take some weight off, and alternate English, Continental, and Portuguese.

2023-09-24

@Ascheryn Hi! Lurk poster, but also #neurodivergent #hypermobile (among other things) #spoonie functionally disabled (but in denial). My two adult kids are #actuallyautistic and since they're both back at home right now, there's no way you can require the patience they do. :-) Welcome.

AscherynAscheryn
2023-09-23

An because well i forgot to do one here.

Hi! 👋

I'm Gen-X.

Pronouns: They/Them

I try really hard to remember accessibility tools (ALT Text).

Still learning how this all works. Not great at social media in general. Previously found with the same handle on the birdsite, @ascheryn.bsky.social and several other instances (weirder.earth and neurodifferent.me specifically).

Patience with me please?

2023-09-14

Looking for recommendations for curcumin brands or formulations available in the U.S. I have been using Amy Myers MD Curcumin and have used Pure Encapsulations Curcumasorb in the past. Besides bioperine/black pepper potentially assisting with bioavailability, is there anything else that contributes to getting the most effective kind? Liposomal? Micronized?

#Curcumin #ChronicPain #Fibromyalgia #hEDS #EDS #EhlersDanlosSyndrome #Hypermobile #Hypermobility #Spoonie #NEISVoid #MECFS

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