Everyone's experience and feelings will be different. This is just one perspective.
#ActuallyAutistic #Autistic #Autism #Neurodivergent #AutisticAdults
#AutisticPride #InvisibleDisability #lateDiagnosed
#invisibledisability
7.7: Ariel & Christina Discuss Living with a Disability as a Solarpunk
Today Christina talks to Ariel about what it's been like to live as a solarpunk with a visible - and then invisible - disability. Science fiction has spent decades dreaming of how future tech will make disabled people able to function as if they were fully abled. Now solarpunk has arrived on the scene to ask why should disabled bodies have to always be the ones to adapt? It can be uncomfortable, intrusive - not to mention expensive. Solarpunk wonders why can't cities, society, workplaces, and the like be the ones to use the tech to make themselves more accessible to and inclusive of disabled people?
Tune in as Ariel and Christina discuss the portrayal of disability in science fiction and solarpunk and how having to suddenly live with a disability opens your eyes to many of the ways cities fail people with disabilities.
#solarpunk #SolarpunkPresentsPodcast #Episode #SeasonSeven #disability #spoony #SpoonTheory #spoonies #ChronicPain #ChronicFatigue #SolarpunkAndDisability #Ableism #InvisibleDisability #ScienceFiction #SciFiAndDisability
This is what it's like to see through my eyes. I've had scintillating scotoma for decades. It's always there. Sometimes it takes over so much of my vision that I'm essentially blind. Usually, it's something I can work around. I rarely have migraine headaches, but when I do, the blind spots are much worse.
#migraine #VisualMigraine #blindness #InvisibleDisability #ScintillatingScotoma https://i.sstatic.net/TAO2b.gif
In terms of hidden disability, I go through cycles of disclosure and antidisclosure and both have brutal consequences. Currently in a cycle of antidisclosure which means that I have to be colder and more distant, creating an artificial persona around 'if you don't respect my hard boundaries of no, I will not interact with you outside of what is necessary for function'. Obviously this has major trust implications for both parties, is terrtible for report, and sometimes just doesn't work, if mutual function relies on some disclosure.
I know I need to get back on the disclosure cycle but like you alude to getting people to understand is basically impossible. I find that people tend to use this information against me, as they will technically accommodate my boundaries, but then skirt them by writing me off and disparaging me (othering me) in other ways in an effort to remove me. I'm resigned to the paradox of disclosure. I can't get most doctors to take me seriously, so how can I expect the public to? For the most part I've just lowered my expectations for others. My general response is to state my limitations baldly and blankly without offering explanation and leave no room for interpretation, but again this results in my having a cold, distant demeanor with related consequences.
Of course I imagine the best solution could be to find other people with hidden disabilities but that has its own problems; how to find something that is hidden; disabilities are so diverse and mine is unlike many others; just because we have disability in common doesn't mean we have anything else in common; internalized ablism; etc. In the end, i'm trying to learn to be comfortable being alone and sharp in my boundaries without attempting to explain myself (both personally and professionally) while also trying to not let that embitter me and remaining open to connection when the opportunity arises.
Is medical gaslighting a sub variant of Access Trauma?
If yes, it's all the more important that Sick people/people with chronic illnesses understand ourselves as part of the struggle for Disability Justice
https://www.communitycommons.org/collections/Disability-Related-Stress-and-Inaccessibility-as-Trauma
#accessibility #disability #DisabilityJustice #InvisibleIllness #ChronicIllness #InvisibleDisability
#LongCOVID
I fell off a plyometric box today while doing pistol squat progressions. It hurt my bad shoulder and my pride. Hurt my shoulder yesterday, too, while leaning forward to reach for something. This frozen shoulder bullshit can go away now, please. At least with the new haircut, putting my CPAP mask on at night is no longer a struggle. It was really hard to pull it on over long hair.
Another thing I've noted: when my shoulder is acting up, I get pain in my hip, knee, and big toe on the same side. I suspect it's because it's throwing off my walking gait.
#FrozenShoulder #AdhesiveCapsulitis #ChronicPain #InvisibleDisability
Many types of vision loss are invisible—you can’t tell just by looking. Respect the cane. Trust the guide dog. Believe the person.
Not all disabilities are visible.
#VisionAwareness #InvisibleDisability #BlindNotBroken #VisionImpairment #DisabilityAwareness
Today I went for my first run in well over a year. I hope I will be able to keep it up. I used to do trail, mountain, and obstacle course races, but my health has made it very hard to pick that back up again. I have problematic feet. They are hypermobile with extremely flexible Achilles tendons. That means there is absolutely no bounce to my running, and every stride is strictly muscular. Tie that in with recurring Achilles tendonopathy, and it makes running almost impossible. But I'm gonna try to get my foot strength/endurance back. #running #hypermobility #AchillesTendonopathy #InvisibleDisability
*get into work*
*plan day, literally book entire day to do work with only a few short breaks*
*perform work*
*get exhausted, executive dysfunction starts to act up*
*coffee to shut executive dysfunction up*
*keep working hard through the whole day*
*leave work, caffeine wears off*
*huge bout of exec dys and possible shutdown*
"Why is this happening to me"
#ActuallyAutistic #ActuallyADHD #ActuallyAuDHD #Overworking #Productivity #Burnout #Spoonie #InvisibleDisability
#chronicillness #chronicallyill #disability #invisibledisability #spoonie #spoonielife #chronicillnesslife
Ah yes, awareness month. Be VERY aware. We walk among you... Muahahaha!
Reshare~
#AutismAcceptance #Autistic #Autism #Neurodivergent #RedInstead #AutismAcceptanceMonth #InvisibleDisability
Sometimes the coping mechanisms that keep us safe also end up hurting us. Luna walks through the world with her head down—not because she wants to, but because life taught her to. Years of trauma, fear, and judgment made it feel safer to become invisible. When you’ve experienced repeated harm just for existing, lowering your gaze becomes second nature. You shrink yourself to survive.
But over time, survival mode has a cost.
In this comic, we explore the way mental health and trauma physically manifest in the body. Luna’s posture isn’t just about slouching—it’s about self-protection. It’s about shielding herself from the people who stared, laughed, judged, or did worse. And now, her body carries the weight of that history: the back pain, the neck pain, the constant dizziness… all reminders that trauma doesn’t just live in the mind. It settles in the bones, the muscles, the posture we carry through the world.
There’s no shame in needing to feel safe. There’s no shame in walking a little differently because of what you’ve been through. This comic is for anyone who’s been told, “Just stand up straight” without anyone asking what made you curl in the first place.
We see you. You’re not alone in this.
Have you noticed your mental health affecting your physical body? We’d love to hear your story in the comments if you’re open to sharing.
#ADayInTheLuna #MentalHealthAwareness #ChronicPain #TraumaResponse #PTSD #InvisibleDisability #NeurodivergentVoices #Anxiety #TheBodyKeepsTheScore #ArtAsHealing
But over time, survival mode has a cost.
In this comic, we explore the way mental health and trauma physically manifest in the body. Luna’s posture isn’t just about slouching—it’s about self-protection. It’s about shielding herself from the people who stared, laughed, judged, or did worse. And now, her body carries the weight of that history: the back pain, the neck pain, the constant dizziness… all reminders that trauma doesn’t just live in the mind. It settles in the bones, the muscles, the posture we carry through the world.
There’s no shame in needing to feel safe. There’s no shame in walking a little differently because of what you’ve been through. This comic is for anyone who’s been told, “Just stand up straight” without anyone asking what made you curl in the first place.
We see you. You’re not alone in this.
Have you noticed your mental health affecting your physical body? We’d love to hear your story in the comments if you’re open to sharing.
#ADayInTheLuna #MentalHealthAwareness #ChronicPain #TraumaResponse #PTSD #InvisibleDisability #NeurodivergentVoices #Anxiety #TheBodyKeepsTheScore #ArtAsHealing
Incontinence is an invisible disability that can affect anyone and requires greater awareness and alternatives for dignified care to mitigate its economic impact.
More in our conversation with Sheena Lagat, #Continence & #UroGynaecology #ClinicalNurseConsultant aka "Wee Wee Nurse".
https://podbite.link/bites/5Wu3tgUt
Watch or listen on your favourite platform: https://steampoweredshow.com
Show notes at https://steampoweredshow.com/shows/sheena-lagat
#continence #incontinence #InvisibleDisability #DignifiedCare #EconomicImpact
I'll be getting a saline injection and cortisone to treat my frozen shoulder. I'm currently in the freezing stage and it sucks. Lots of pain and inflammation in my shoulder/arm making sleep even more difficult. The pain is exhausting. It's very hard to put my hair in a ponytail or put on a shirt or sports bra. I hope the treatment helps. I'll be getting it done a few days before I go do my residency in Banff.
I went to the gym this morning. It sucked, but I felt better at the end than I did when I first got there. Recovered a bit of mobility, too. https://pmc.ncbi.nlm.nih.gov/articles/PMC5706054/ #FrozenShoulder #InvisibleDisability #ChronicPain
#disability #disabilitymemes #disabled #invisibledisability #spoonie #chronicillness #autoimmunedisorder
Yup. I live with several. I won't get into the litany here, but they are invisible to most.
It doesn't mean they don't exist.
#invisibledisability #idontlooksick #disability #disabilityawareness
Source: my_chronicpain_life on Insta
#invisibleillness #invisibledisability #chronicillness #autoimmune #chronicallyill
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