#longCovid

Health Self Defense ❤️‍🔥😷healthselfdefense@kolektiva.social
2026-03-09

There is no long COVID without COVID, prevention must be the first step

DON'T WAIT UNTIL YOU HAVE LONG COVID TO LEARN ABOUT IT.
INFECTIONS ARE PREVENTABLE.

Talk about long covid with your community, fight eugenics, wear a mask.

LONG COVID IS PREVENTABLE BECAUSE INFECTIONS ARE PREVENTABLE

The best way to fight long COVID is to fight COVID.

Long COVID is an umbrella term that generally refers to symptoms which persist more than three months after a COVID infection. The definition of Long COVID itself has been a subject of debate and advocacy for years now; the term was first coined by patient and advocate Elisa Perego of Lombardy, who found herself struggling to recover from her acute infection in early 2020. Since then, patients have had to continually fight for recognition from the medical community, as resources initially focused heavily on the deadly acute phase of the illness.

Why doesn't the system tell us that covid is dangerous?

"Actually solving the pandemic was never in the cards of the capitalist world. the explicit goal of the ruling class has been to make the pandemic simply disappear from public perception” Let Them Eat Plague! – The Red Clarion (unity-struggle-unity.org)

We are in a class war, and stopping production due to covid is not an option for capitalist parasites.

There are more than 200 symptoms of Long COVID! neurological: muscle spasms migraines/severe headaches memory loss and mental fog anhedonia, new onset OCD, depression, psychosis. light sensitivity, sound sensitivity vision problems and dissociation POTS/dysautonomia lungs: Difficulty breathing Lung scarring Inflamed lungs Pneumonia heart/blood: Myalgic encephalomyelitis one of the most painful health conditions Extreme fatigue from activity light-sensitive, sound-sensitive, sensory-sensitive most people with MECFS are unable to hold a regular job Myocarditis (inflammation of the heart) Sudden heart attacks Blood clots Cardiomyopathy Stroke High blood pressure EM/SFC. ANTIGENS GIVE FALSE NEGATIVE RESULTS, 50% OF COVID INFECTIONS ARE ASYMPTOMATIC, 10% OF ALL INFECTIONS END IN LONG COVID. YOU WILL NOT SEE THE LONG COVID COMING, IT IS COMPLETELY UNPREDICTABLE!

Masks are community care❤️‍🔥😷 free masks: maskbloc.org

• Remember: covid is not over, 50% of infections are asymptomatic, minimum 10% of infections end up in long COVID, re-infections wreck us, COVID spreads and moves like cigarette smoke, think of the people around you and you as people who are all day smoking, it becomes more visual to understand how COVID moves.
• There is no way to “train” the immune system because it is not a muscle. there is a common misconception that exposure to harmful germs strengthens the immune system. viral diseases like COVID, flu, measles weaken the immune system, leaving the possibility of lasting damage. The reality is that you don't build your immunity with repeated infections, vaccines strengthen the immune system by teaching it to recognize pathogens without all the risks. Focusing on infection prevention is key.
• Rapid antigen tests give many false negatives.
• Solving the pandemic was never in the cards for the capitalist world.
• Instead, the explicit goal of the ruling class has been to make the pandemic simply disappear from public perception. Any reminder of the existence of a highly-transmissible, highly-dangerous, mass-disabling disease could trigger panic, or worse: organized, militant labor action. Averting this crisis required a careful campaign of culture-crafting; the people themselves needed to become convinced that there was no reason to fight. Consent for protracted mass infection needed to be manufactured.

“The cold truth of the matter is that the motive behind COVID minimization is greed and social control. (…) Solving the pandemic was never in the cards for the capitalist world. Instead, the explicit goal of the ruling class has been to make the pandemic simply disappear from public perception.” Let Them Eat Plague! clarion.unity-struggle-unity.o

#MaskUp #WearAMask #CovidRealist #CovidIsAirbone #LongCovid #YallMasking #DisabledLiberation #DisabilityJustice

.

There is no long COVID without COVID, prevention must be the first step
Emily van Lidth de Jeudeemilyvanartist
2026-03-09

How Long Covid impacted my day:
Happily visited with friends for 90 minutes, so now I have a fever and can't make my son's birthday cake. No bath either. Try again tomorrow.

This is my daily post leading up to a performance at the Museum of Vancouver on March 15:
museumofvancouver.ca/long-covi

In case it was not clear, they need volunteers - please sign up if you can!

I just signed up myself.

From the sign-up form:

"Throughout the week, participants will receive clear daily action steps, templates, and guidance. You may participate at your own pace, and all live sessions will be recorded.

We’re grateful you’re joining us. If you have any questions please email us at advocacy@solvecfs.org "

docs.google.com/forms/d/e/1FAI

@mecfs @longcovid

#MEcfs #LongCovid #MedEd #SolveME #MEAction

Hello to all the ME/CFS and Long Covid activists out there 👋

Solve ME and #MEAction are joining forces to work on a medical education initiative for this year's Advocacy Week, March 23-27.

More details:

solvecfs.org/registration-open

Registration link (Google docs form):

docs.google.com/forms/d/e/1FAI

@mecfs
@longcovid

#MEcfs #PwME #LongCovid #PwLC #SolveME #MedEd

How can we close the knowledge gap in ME/CFS and Long COVID care?

The Ask: We will meet with state and local healthcare leaders and ask for their support for introducing questions on ME/CFS and Long COVID medical exams at the national level. 

The Theory of Change: By reaching out to patient safety/regulatory agencies, State Medical Boards, and State Health Leadership/Chief Medical Officers by state, framing ME/CFS education gaps as a patient safety and standard-of-care issue, we will move IACC’s [Infection Associated Chronic Conditions] such as ME/CFS and Long COVID from “optional knowledge” to “standardized knowledge” in clinical care.  

Target: State healthcare leadership and patient safety agencies.
2026-03-09

2/
“From an occupational therapy lens, these micro-adjustments alter the energy equation of the entire day. They reduce friction, lower cognitive load, and dial down sensory and autonomic demand in ways that don’t require motivation, explanation, or willpower. They protect capacity without requiring the body to justify itself. The environment does some of the work so the body doesn’t have to.” #mecfs #longcovid
@pots @longcovid @mecfs

Science4ME News Bots4me_news@mas.to
2026-03-08

Science for ME: News in Brief
2 - 8 Mar 2026

🧵 of highlighted #MECFS and #LongCovid research papers being discussed this week on the Science for ME forum.

@mecfs
s4me.info/threads/news-in-brie

Bass #Antifa #EcoHumanistbassjobsen@mastodon.nl
2026-03-08

#LoCovid #Weekbericht Deze week duiken we nog wat dieper in de statistieken over het verloop van het aantal arbeidsongeschikten in Nederland per kwartaal, van 2010 tot 2025. #SarsCoV2 #LongCovid
locovid.nl/weekbericht-covid19

2026-03-08

I did too much the last two days. I crashed pretty hard last night. I woke up earlier, but fell back asleep without intending to. I slept 14 hours in total. I woke up about an hour ago.

Going to pace myself today. I've done a couple of chores I'd forgotten about. Other than that, I'm saving spoons to put away the grocery delivery and making dinner tonight.

#PostCOVID #LongCOVID

Bich Nguyen :verified:bicmay@med-mastodon.com
2026-03-08

"In early 2025, Siberine was one of three New Hampshire long COVID patients who spoke with the Bulletin about their ongoing experience with the condition. Now, roughly one year later, the Bulletin has reconnected with all three to get an update on their conditions."

newhampshirebulletin.com/2026/

#PublicHealth #covid #LongCovid #biomedical #science #research #NIH #disabilities

Science for MEs4me@med-mastodon.com
2026-03-08

Our latest News in Brief summary has headlines and links to further reading for ME/CFS, Long Covid, and related news for the week of Mar. 2 - 8:

Topics:
News, advocacy and articles
Coming events
Research news and commentary
Published research

s4me.info/threads/news-in-brie

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC

Covid can cause long lasting damage to the immune system. #COVID #LongCovid www.sciencedirect.com/science/arti...

Persistent attenuation of lymp...

Jennifer Moore 😷unchartedworlds@scicomm.xyz
2026-03-08
FriekeFrieke72
2026-03-08

Alle stoplichten staan op groen. Eindelijk. (Nee, ik ben niet beter, maar terug op baseline met max 2 uur activiteiten per dag).
Vanmiddag ouders op koffie. Ze nemen zelfgebakken appeltaart mee. Dat zijn de beste gasten 😁

My life

Bodybattery vandaag heel hoog met rustige nacht en lage stresslevels.
3 vierweken grafieken: hrv en bodybattery een week stijgende lijn na 3 weken diep onder baseline. Daarmee stijgt ook het aantal stappen dat ik per dag zet weer.
Health Self Defense ❤️‍🔥😷healthselfdefense@kolektiva.social
2026-03-08

• You think people don’t mask because they don’t want? You need to elevate your knowledge of eugenics
• covid conscious people: stop blaming individuals and let this grief radicalize you
• Why people stopped masking? The state created consent for protracted mass infection.
• We need an anticapitalistic analysis for fighting COVID eugenics.
• Want to stop blaming individuals and know why people stopped masking?
• Covid Conscious Community: stop blaming individuals and start having a political analysis about eugenics
• Want to stop blaming individuals and know why people stopped masking?

Would you like to receive one of this trainings? Email AutoDefensaSanitaria@proton.me and we'll work out the details!

Masks are community care❤️‍🔥😷 free masks: maskbloc.org

• Remember: covid is not over, 50% of infections are asymptomatic, minimum 10% of infections end up in long COVID, re-infections wreck us, COVID spreads and moves like cigarette smoke, think of the people around you and you as people who are all day smoking, it becomes more visual to understand how COVID moves.
• There is no way to “train” the immune system because it is not a muscle. there is a common misconception that exposure to harmful germs strengthens the immune system. viral diseases like COVID, flu, measles weaken the immune system, leaving the possibility of lasting damage. The reality is that you don't build your immunity with repeated infections, vaccines strengthen the immune system by teaching it to recognize pathogens without all the risks. Focusing on infection prevention is key.
• Rapid antigen tests give many false negatives.
• Solving the pandemic was never in the cards for the capitalist world.
• Instead, the explicit goal of the ruling class has been to make the pandemic simply disappear from public perception. Any reminder of the existence of a highly-transmissible, highly-dangerous, mass-disabling disease could trigger panic, or worse: organized, militant labor action. Averting this crisis required a careful campaign of culture-crafting; the people themselves needed to become convinced that there was no reason to fight. Consent for protracted mass infection needed to be manufactured.

“The cold truth of the matter is that the motive behind COVID minimization is greed and social control. (…) Solving the pandemic was never in the cards for the capitalist world. Instead, the explicit goal of the ruling class has been to make the pandemic simply disappear from public perception.” Let Them Eat Plague! clarion.unity-struggle-unity.o

#MaskUp #WearAMask #CovidRealist #CovidIsAirbone #LongCovid #YallMasking #DisabledLiberation #DisabilityJustice

.

You think people don’t mask because they don’t want? You need to elevate your knowledge of eugenics

Would you like to receive this training? Email  AutoDefensaSanitaria@proton.me and we'll work out the details!
2026-03-08

La dura verdad del asunto es que el motivo detrás de la minimización del COVID es la avaricia y el control social

el objetivo del capitalismo ha sido hacer que la pandemia DEL COVID simplemente desaparezca de la percepción pública

EL CAPITALISMO HA FABRICADO EL CONSENTIMIENTO DE LA INFECCION MASIVA, NO BASADA EN LOS DATOS SINO EN PRESIONAR A LA VUELTA AL TRABAJo

El COVID persistente es un término general que generalmente se refiere a los síntomas que persisten más de tres meses después de una infección por COVID. La definición de COVID persistente en sí misma ha sido objeto de debate y defensa durante años; el término fue acuñado por primera vez por la paciente y defensora Elisa Perego de Lombardía, quien se encontró luchando por recuperarse de su infección aguda a principios de 2020. Desde entonces, los pacientes han tenido que luchar continuamente por el reconocimiento de la comunidad médica, ya que los recursos inicialmente se centraron en gran medida en la fase aguda mortal de la enfermedad.

• Aprende qué hacer cuando tienes COVID
• Usa mascarilla de buena calidad y bien selladas si puedes (maskbloc.org para mascarillas gratis) y añade otras formas de mitigación si puedes!
• Aprende sobre COVID persistente y qué hacer ANTES de que empieces a sentir síntomas
• Aprende sobre los tratamientos de Long COVID, ME/CFS, POTS y MCAS

autodefesasanitaria.substack.c

autodefesasanitaria.substack.c

• El 50% de las infecciones son asintomáticas.
• Mínimo 10% de las infecciones acaban en COVID persistente.
• Las vacunas no evitan ni reinfecciones, ni el contagio, ni las secuelas persistentes del COVID.
• Las reinfecciones nos destrozan. No hay forma de “entrenar” el sistema inmunológico porque no es un músculo. La realidad es que no construyes tu inmunidad con infecciones repetidas, las vacunas fortalecen el sistema inmunológico enseñándole a reconocer los patógenos sin todos los riesgos. Centrarnos en la prevención de las infecciones es clave.
• Los test de antígenos dan muchos falsos negativos. Los PCR y test moleculares son los test con más precisión.
• El COVID se propaga y mueve como el humo de un cigarro, piensa en las personas de tu alrededor y en ti como personas que están todo el día fumando, se hace más visual entender cómo se mueve el COVID.
• En las infecciones con síntomas se tarda un par de días en dar los síntomas lo que quiere decir que estás por lo menos un par de días infectando sin saberlo. Eres infeccioso de COVID por lo menos 10 días.

#CovidPersistente #LlevaMascarilla #RealistaCovid #CovidSonAerosoles #birdflu #gripeaviar

#MaskUp #WearAMask #CovidRealist #CovidIsAirbone #LongCovid

La dura verdad del asunto es que el motivo detrás de la minimización del COVID es la avaricia y el control social
2026-03-08

UK research study

Brain and muscle chemistry in myalgic encephalitis/chronic fatigue syndrome (ME/CFS) and long COVID: a 7T magnetic resonance spectroscopy study

nature.com/articles/s41380-025

Screenshot from AMMES March 2026 newsletter

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

Image of a brain

Brain and muscle chemistry in myalgic encephalitis/chronic fatigue syndrome (ME/CFS) and long COVID: a 7T magnetic resonance spectroscopy study
"The changes in lactate in ME/CFS are consistent with the presence of energetic stress and mitochondrial dysfunction. A reduction in total choline in long COVID is of interest in the context of the recently reported association between blood clots and 'brain fog', and earlier animal studies showing that choline might prevent intravascular coagulation. Importantly, differences in findings between ME/CFS and long COVID suggest that the underlying neurobiological mechanisms, while leading to similar clinical presentations, may differ." 
Read more here>>
2026-03-07

No long list of tips in this particular blog post by this knowledgeable OT but I agree with the general points e.g. small changes in things like energy conservation and routines can make worthwhile differences.

onelifelivedwell.substack.com/

#MEcfs #LongCovid #POTS @pots @longcovid #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

1/

The Quiet Work of Making Life Possible
Why sustainability (not effort) is the foundation of meaningful life.
Abby
Dec 29, 2025

Here’s a thing that’s easy to miss: Small changes rarely make a scene.

They don’t announce themselves.

They don’t arrive with a before-and-after photo. They’re not marked as milestones. They don’t even feel especially satisfying at first. Sometimes they feel almost… disappointing. Too small. Too ordinary. Too quiet to matter. Easy to dismiss. Easy to forget.

And yet (and this is the part I keep returning to gain and again) they’re often the exact changes that hold everything together.

I’ve watched this pattern long enough that it’s hard to unsee. In work with people living with energy-limiting conditions, the moves that restore a sense of life aren’t dramatic. They’re precise. They’re humble. They tend to slip under the radar because they don’t look like progress the way we’ve been taught to recognize it.
2026-03-07

No brain? No problem!!! I cast on 50 stitches and it only cost two tries.

I think.

#knitting #LongCovid

50 stitches in white yarn on a green straight needle. There are nine(?) stitch markers to help keep count.

Client Info

Server: https://mastodon.social
Version: 2025.07
Repository: https://github.com/cyevgeniy/lmst