#naltrexone

Maggie Maybemaggiejk@zeroes.ca
2025-05-13

From the link in the post above:

Spent a week in bed after this day trip.

This was me last weekend, at a tiny zoo/zoology museum nearby, and a nearby hill. (Walnut Creek, Pleasant Hill) Went with my parents (I haven't drove a vehicle in a year now). Spent around a week mostly in bed after. Only today did I somewhat recover my energy. I used to be a nature photographer, so I'm not used to being housebound for so long. I can go on these short day trips around 1-2 times a month to relieve some claustrophobia, and the cost is a pretty heavy crash after. LDN helped me somewhat, so I was up to around 2-3 of these trips a month and crashes are a bit more cushioned. This particular crash was one of the worst in several months, most likely because I'm trying a lower dose of #Naltrexone.

Maggie Maybemaggiejk@zeroes.ca
2025-04-29

Hey if you need a compounding pharmacy these people are 5 stars. (They’re in Waltham, Massachusetts but they ship for free.)

I’m OK with this price increase this year. I can live with this. It may go up again but I thought it would be so much worse.

(This is 90 count of 0.5 mg #LDN with the standard avicel filler. If you’re buying a more popular dose it may cost less, if you prefer a different filler like ginger it may cost more.

#naltrexone #CompoundingPharmacy

A screenshot of my Compounding Pharmacy charges the most recent one is today and it’s $69.95, in January it was that same price.
May August and November last year the same prescription was $67.50.
Maggie Maybemaggiejk@zeroes.ca
2025-04-29

@FandaSin @_9CL7T9k8cjnD_ the thing is not everything we get from #China is garbage.

For example, the only medication that has ever helped my #MECFS is LDN. And the only way I can get LDN is from Compounding pharmacies who buy the naltrexone powder from China.

The United States has been getting naltrexone from China since at least the 80s. My neurologist said his #MS patients used to have to order it themselves so in 2020 he was delighted to hear all the compounders have it now.

The US has never tried to be a supplier of #naltrexone because there’s no $ to be made with an old generic med.

I couldn’t stock up on it because it gets stale and doesn’t work as well. I buy 90 days at a time but I usually toss the last week or two because they don’t work anymore, and even doing that it’s still more affordable than buying only 60 days at a time.

I’m not accusing you of being racist at all, I’m just saying it’s kind of racist to assume that everything we get out of China is just garbage nobody needs.

If I can’t get #LDN I might have to go back to being bedbound after having a bit of a life for the past five years.

And I’m not sure I will just quietly fall by the wayside. I might need to end up on the news so people understand that disabled people with nothing left to lose aren’t going to just shut up and go die quietly. (I’m being hyperbolic, sort of. I would never hurt other people to make a point, but if I have to check out people are going to hear about it.)

Maggie Maybemaggiejk@zeroes.ca
2025-04-26

This makes me so sad. This is from the Covid long hauler Reddit sub, and this makes me so sad.

I’ve taken breaks from taking LDN (for #MECFS from mono) when I have had to take lots of opioid pain medication and I don’t want to deal with interactions. So far it has never set me back except for on the days I don’t take it.

The compounding pharmacies have been buying the #naltrexone powder from #China since at least the 80s. If they can’t get it, we can’t get LDN.

And I can’t take the medication this person is taking, #Wellbutrin makes me feel like I’m going to crawl out of my skin, and if I take more than 0.5 mg naltrexone I will give myself opioid withdrawals because I take pain medication from pain management.

#FML is right. This is the only medication I have ever taken that actually helps my chronic ill illness. Adderall can help me push through if I have to do something I can’t do, but I wouldn’t call that exactly helpful.

#LDN is the only treatment I have found for MECFS that helps me and I think we’re all going to run into problems pretty quickly.

#reddit #LongCovid

Reddit post:
It was nice while it lasted, but now I'm back in hell
Update
An update on
https://www.reddit.com/r/covidlonghaulers/s/kFu7nP
8nnW.
I was in remission for a solid year. I didn't experience PEM during this year and I held a full time job and did aerobic and strength training. Then a mixup happened with the LDN and I missed 3 doses while waiting for more to be compounded. It's been two weeks and I am still feeling awful.
I have taken time off work, because after 2 hours my brain switches off and l if I push it I go into PEM. I have to use a wheelchair again to avoid crashes, which now are no longer just worse fatigue but also several days of insomnia and diarrhea.
I'm scared I'll lose my job and my country offers almost non-existent disability grants ($100 a month).
My doctor gave me Contrave to try because it's
Welbutrin + LDN.
Fml but hoping for the best.
2024-08-06

pubmed.ncbi.nlm.nih.gov/391015 Off-Label Use of Lamotrigine and Naltrexone in the Treatment of Ketamine Use Disorder: A Case Report #ketamine #substanceUseDisorder #lamotrigine #naltrexone #addiction #substanceuse #recovery

2024-07-17

Trying to keep up my #booze strike with #naltrexone. Gotta save money somehow for the #Iceland trip. Cutting my #alcohol consumption felt like the most effective way.

Yesterday: success! Finishing the second pint at my regular bar already felt like work.

Also, it was boring and I lost 20 euros. For nothing. The first beer tasted heavenly, tho. It was some new IPA on tap, well balanced. Forgot the name.

If you substract the "getting drunk" part from drinking alcohol, it's quite dull.

Denis - The COVID info guy -DenisCOVIDinfoguy@aus.social
2024-05-06

Griffith University researchers to trial naltrexone on Long COVID and MECFS patients.

#LongCOVID #MECFS #naltrexone @auscovid19

Source: abc.net.au/news/2024-05-07/qld

2024-02-07

#Thrilled to wake to this wonderful news this morning!
#thankyou to every single one of you who are helping to spread the word of your #recovery from #alcoholusedisorder using #thesinclairmethod

#RecoveryPosse
#reduceyourdrinking #stopdrinking #sobercurious #naltrexone #TSM #alcoholic #AlcoholicsAnonymous #Abstinence #thesinclairmethod

nemo™ 🇺🇦nemo@mas.to
2024-01-10

" #worldwide #alcohol abuse kills more people than #hiv nearly 3.3 million per year. Profiling recovering alcoholics, medical professionals and justice practitioners, this investigation #exposes the benefits of a little-known drug #Naltrexone […]"

imdb.com/title/tt3427772/

#One Little #Pill

#movierecommendations

2023-11-05

Started #naltrexone this week. Hoping it grants me some control over what I put in my gut! 🤞

Mark Leedsdreamelks
2023-09-15

So, in the case of this particular patient, psilocybin, in the form of magic mushrooms, did not reduce his cravings for alcohol, and his compulsion to keep drinking

Read more 👉 lttr.ai/AG8Db

2023-06-21
2023-04-20

Very interesting episode about a paper I had not seen - men with problem drinking who would take naltrexone to reduce drinking *only on days they felt the urge to binge* - and it worked!
---
RT @AddictionMedJC
We love the Episode 20 article about targeted naltrexone in sexual and gender minority men. It has changed our practices. Would it change yours? #alcoholusedisorder #naltrexone #bingedrinking #AMJC #addictionmedicine #MedEd
ht…
twitter.com/AddictionMedJC/sta

Devo :flag_nonbinary: 🪴🌮🥃🍣model_subject@eldritch.cafe
2023-01-24

Here's hoping that low dosage naltrexone does what people have been saying it does. Fingers crossed 🤞Anyone out there have good results? The pharmacist said to give it at least a month before deciding.

#mecfs #LDN #longCovid #naltrexone #lowDosageNaltrexone

Ernesto de Bernardisdebe@scholar.social
2022-05-01

#introduction

Lazy but curious (curious but lazy), cog in the wheel, armchair wannabe researcher, addictions doc, pharmacologist, national board of www.sitd.it

I'm interested in
#AddictionMedicine
#Addictions
#Cocaine
#Methadone
#Buprenorphine
#Naltrexone
#RepurposedDrugs
#Covid-19

Orcid 0000-0002-6809-4096

2021-01-30

A friend of mine told me that #naltrexone didn’t suit him at all. It just made him drink twice as much as usual, since the drug dampened the drunk euphoria. :-P

2021-01-30

Oh, it’s #naltrexone with an e på engelska.

Anyway, it passed the test yesterday. Took 4 beers. Didn’t feel like taking yet another, but didn’t feel forced not to either. So I passed the next round.

Still it was a nice evening w/friends.

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