#narcolepsy

New story up on Medium.
“Another Sleepless Night: Tales From a Narcoleptic Who Can’t Sleep” explores the strange territory of fragmented sleep, sleep paralysis, hypnagogic hallucinations, and the disorientation that comes with nights that refuse rest.

Read it here: medium.com/clear-yo-mind/anoth

#Sleep #Narcolepsy #MentalHealth #Insomnia #Wellness #WritingCommunity #PersonalEssay

My latest piece is coming soon. Just waiting for publishing! Topics coming soon:

- Thoughts from a sleepless narcoleptic
- Pure O OCD

Find previous works at;
fragments-of-sanity.ghost.io/

#ocd #narcolepsy #mentalhealth #anxiety #insomnia #new #writing

Oh good, it’s time to have simultaneous #narcolepsy and #insomnia. I’m sure I’ll feel great tomorrow.

Napping with #narcolepsy is so odd. Did I really sleep, or just spend the last 45 minutes in a daze? Maybe I went straight to REM and had a semi-lucid dream that I was thinking about the things I was thinking about before I laid down? I think I feel better, but am I going to need another one in an hour or two? I don't know, and without an EEG you don't either.

Zach Nocturnal Artistzachnocturnalartist
2025-09-22

Happy Narcolepsy Day 2025. A drawing of a narcoleptic confusing day and night for their sleeping patterns in my Daler Rowney sketchbook

World Narcolepsy Day 2025
2025-09-22

Heute ist Narcolepsy Awareness Day. :blobcat_sleeping:
#Narcolepsy

Buntes Bild mit dem Text: "Today we celebrate Word Narcolepsy Day. September 22, 2025. Project Sleep."Narcolepsy is a chronic neurological condition that impairs the brain's ability to regulate the sleep-wake cycle.Symptons of narcolepsy include excessive sleepiness, cataplexy, sleep paralysis, disruptive nighttime sleep, hallucinations around sleep, brain fog.
World Narcolepsy Day, September 22, project-sleep.com.
Maggie Maybemaggiejk@zeroes.ca
2025-09-13

This was really interesting. It’s not as long as it seems- the comments start when the scroll bar is about half way down the page.

“Perrino felt that many people with ME/CFS/FM do not fit the typical narcoleptic profile but have narcoleptic aspects and can be helped with narcoleptic drugs.
Perrino looked for abnormal alpha/delta patterns and an irregular pattern of the sleep stages. Stage 1 and stage 2 sleep should first alternate, and then stage 3 sleep should kick in. At around 90 minutes, a burst of REM sleep should occur. The REM should occur in 3/4 distinct stages – each one a bit longer.
If early onset REM sleep occurred at around 60 minutes, he suspected the patient had a narcoleptic profile. It might not be classical narcolepsy, but Perrino believed it was abnormal.”

Could ME/CFS and Fibromyalgia Be Narcoleptic Spectrum Disorders? - Health Rising healthrising.org/blog/2025/08/

#MECFS #fibromyalgia #narcolepsy #sleep #insomnia #LongCovid

Code of Amor 💘codeofamor@codeofamor.net
2025-07-15

This is a moment of real struggle. Trying to remain calm while my body-mind is running maintenance tasks that should have been run while I was asleep last night. From the lack of access to mental capacity, working, and long-term, memory, it's probably maintaining a bunch of those. The light glasses I made to help me not fucking lose it when it gets bad. They send wakefulness signals, stimulating the optic nerve, and also help boost serotonin production.
#disabilities #invisibledisabilities #narcolepsy #narcolepsysucks

A girl with pretty eyes looking beyond tired. Pink Snapchat filter flowers adorn her nose and cheekbones. She is wearing a thick pink lanyard and a black zippered jacket. Indoors. Dreary day. Her eyes are wrapped in modified safety glasses, with high-power COB LED strips facing inward, top and bottom. Caption reads: awful sleepiness today. Fuckin' save me. 😢
Centro de Dx NeurológicoCEDNeuro@mstdn.plus
2025-06-15

Un nuevo agonista selectivo de los receptores tipo 2 de #Orexina que se administra por vía oral es eficaz para combatir la #narcolepsia, e incluso llega a causar #insomnio como efecto colateral 😄

#Oveporexton #Narcolepsy #Orexin #Neurology #Neurología #SleepMedicine #MedicinaDelDormir #NEJM

nejm.org/doi/full/10.1056/NEJM

mariolistens 🎧mariolistens@neko.cat
2025-06-08

I am now listening to Eden by Narco-lepsy #Narcolepsy
last.fm/music/Narco-lepsy/_/Ed

mariolistens 🎧mariolistens@neko.cat
2025-05-22

I am now listening to Eden by Narco-lepsy #Narcolepsy
last.fm/music/Narco-lepsy/_/Ed

2025-05-14

Georgia Tech's offense was diagnosed with during his 1st year where he started 42 games and won 2 national titles. Now he’s an draft prospect, while still dealing with the condition on an everyday, every minute basis

nytimes.com/athletic/6227200/2

Mark Patterson, MD, PhDMitdoc@med-mastodon.com
2025-04-26

Glad to share info about #narcolepsy awareness at the #WakeUpNarcolepsy national summit in #Durham, NC.

Man standing beside a banner for the narcolepsy awareness non-profit Day4NAPs.

We Are In Serious Danger.

#Tourette’s syndrome was first identified in 1885
#Narcolepsy was first identified in 1877
#Autism was first identified in 1943
#ADHD was identified in 1902

Mark Patterson, MD, PhDMitdoc@med-mastodon.com
2025-04-15

It's great seeing the topic of #narcolepsy receiving attention and to see this award given to such worthy researchers!
youtu.be/VTZD3RvsrZQ?si=vSQyS9

Juli O'Connorjuli@mathstodon.xyz
2025-03-28

Starting to realize firsthand why there are very few people with #Narcolepsy in academia :(

Mark Patterson, MD, PhDMitdoc@med-mastodon.com
2025-03-17

Happy #StPatricksDay to all who celebrate. May you have as much luck in catching a #leprechaun as I did in #Dublin a few years ago. The event was a #narcolepsy #bedrace I helped organize.

Three men posing in costumes, the middle one dressed as a leprechaun.
Code of Amor 💘codeofamor@codeofamor.net
2025-03-16

My alters atm (after us being paralysed for over an hour and locked in narco-sleep):

  • I'm hungry
  • Leave me alone!
  • No! I'm not hungry!
  • FUCK!
  • I'm tired
  • Don't blow on me!
  • I'm cold!!
  • Be patient with me!!!!
  • It's too hot!
  • Close the door!
  • Yuck!
  • No, open the door!
  • Ahhh goosebumps!
  • I'm hungry!!
  • No. I don't want to play that!
  • Tired!!
  • But whyyyyy?!
  • Hungry!
  • No! Those are for tomorrow!
  • Turn ON THE LIGHTS!!!
  • I don't want to!
  • FUCK!!
  • No!
  • Food!
  • Shhhh!
  • The wind is TOUCHING me!!!!
  • Ow. I'm sore.
  • FUCK!

Me: a fleshy container that someone resurrected too many souls into. It's like a fucking road trip back seat with 3 kids under 9 up in here rn.

#DID
#narcolepsy

Code of Amor 💘codeofamor@codeofamor.net
2025-03-08

The problem with having micro-dreams (I call them drifts) in your normally awake period (e.g. daytime) is that it rapidly fills your short term memory with dream history and your thoughts with dream logic, which are, most of the time, utter bollocks, leading to a strong and sometimes distressing feeling of disorientation or confusion. With narcolepsy, you don't even need to be asleep before the dreams start. Sometimes you don't even need to close your eyes. 👀🫤😱 On the up side, I have garnered an intimate intuitive understanding of how dreaming works and why, and always being one foot in dreamland has benefits too.
#narcolepsy
#dreamingawake

mariolistens 🎧mariolistens@neko.cat
2025-03-04

I am now listening to Ghost town by Narco-lepsy #Narcolepsy
last.fm/music/Narco-lepsy/_/Gh

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