2/2
…
Last night I was swollen and swelling. I had to keep adjusting my Fitbit-strap to loosen it. This morning I woke up, my body having returned to its normal, non-Michelin-man size, and the Fitbit was dangling over my hand. Thankfully I have large (per kitchen-glove sizing) paws, so the contraption could not fall off.
1/2
One of the things about having #arthritides is that one can never be certain of one’s size at any given moment. For that reason, inter alia adaptable waistlines and ensuring that close-fitting clothing is never worn are essential. As are easily changed wrist-straps for jewellery.
…
Remembering twelve years ago today being able to read not one but two books in the same day! Now I am limited to reading webcomics and small snippets of text. As dancing was my favourite physical activity, reading was my fave cerebral pastime. This malfunctioning body has taken too much joy from my existence.
#MyalgicEncephalomyelitis #pwME
#Fibromyalgia #pwFM
#Osteoarthritis #pwOA
For the first time in a couple of weeks or so I managed to make myself a hot-drink via the Senseo in housemate’s room. It requires:
a return hobble of no more than 10 metres;
selecting drink;
selecting cup;
loading machine;
selecting programme;
instigating drink-making;
trying not to fall down whilst waiting;
switching off Senseo;
opening lid to air;
picking up cup;
then transferring back to my room without spilling.
Plus getting back into bed.
Obviously, my #disabilities as inter alia a #pwME, #pwFM & #pwOA mean it may take me some time to transfer lists of followers, etc. In the meantime, feel free to follow me at @criquaer@mstdn.social For the time being, I shall cross-post toots until I have fully moved over to my new instance. Hopefully I shall not break the rules too often - it won’t be deliberate if I do! 🙏🏻🌈💕🤓💙
As inter alia a #pwME, #pwFM & #pwOA apart from physical issues my cognitive abilities are severely impaired. #Dyscognition aka #BrainFog or #FibroFog means I cannot consistently act as might be expected. It transpires I am too #disabled for disabled.social, as their list of rules & regs is rather large, and I have no hope of fulfilling their requirements on a regular basis. I have opted for mstdn.social which has a much shorter list of required behaviours. Now @criquaer@mstdn.social
@tacosubpizza I have never seen the perm previously, but have every intention of using it in the future - #painsomnia ! Brilliant!
Since #carers stopped coming in early Dec., I leave my bed even more rarely as donæ feel safe if no-one around or due to be. Had my first #fall of 2023 en route to wc. No damage done. Just a tad shaken. 🙏🏻
#pwME #pwFM #pwOA
#MyalgicEncephalomyelitis #SevereME
#Fibromyalgia
#OsteoArthritis
See my previous post for the context for posting this piece of #poetry. My second #dance #poem is entitled “Bruised Reed”:
https://crippledqueeranglo-europeanranter.blogspot.com/2012/08/bruised-reed.html
I have not long since finished viewing a film (see previous post) which included #dance as a driving-force. It reminded me of how much I adored #dancing, of moving rhythmically, of meeting, discovering & partnering space. I remembered that I had written a couple of #poems about what dance meant to me & my life. Herewith “All Back”:
https://crippledqueeranglo-europeanranter.blogspot.com/2013/05/all-back.html
May be of interest to #pwME & #pwLC (#pwOA also mentioned). This article (link to #HealthRising website below) is too long & too technical for my poor brain-fogged brain. But the gist seems to be that this area of research ought to be promising.
#Pain #ChronicPain #ChronicIllness
#pwME #MyalgicEncephalomyelitis #SevereME
#pwFM #Fibromyalgia
#pwOA #OsteoArthritis #Arthritis
[Sorry due to #Disabilities, incl. above, I cannæ type text from meme.]
