Da mein #mecfs mich gerade wieder ans Bett fesselt fragte ich telefonisch in einer Praxis an, ob sie mir den Befund einer Untersuchung zuschicken könnten. Das tun sie nicht. Patienten holen die Befunde ab, denn es kostet Porto und ich hätte keine Briefmarke für den Fall hinterlegt.
Danke, das hatte mir auch niemand gesagt. Ich kann auch ohne Befund im Bett liegen bleiben!

Ist das nicht peinlich?
#gesundheitssystem #Pleite #porto #arztpraxis #Arztpraxen #pwme #pwmecfs #Behandlung

@tinoeberl zeichne ich natürlich mit und hoffentlich viele Andere auch.

Jedoch, falls es Gehör und Umsetzung findet, was dann? Auch unter den Experten fürs Gericht, auf die sich ein Richter stützen muss, finden sich Doktors die genau das tun. :-((
Aber es ist immerhin ein Anfang...

#mecfs #pwme #pwmecfs #mecfs_de

I think I want one...

https://www.forbes.com/sites/lesliekatz/2024/06/05/robotic-third-thumb-set-to-supercharge-your-productivity/?sh=76ff50ef3235

What do you think, #pwMECFS and #pwLC !?

https://www.whitneydafoe.com/mecfs/?post=defying-nih-in-2024 #mecfs #pwmecfs #myalgicencephalomyelitis

#iWatch #app #MEcfs #pacing
Just discovered a small app in the appstore, developed by a NZ developer @ddp With no data tracking!

Adds threshold for heart rate, steps, distance, calories expended etc. looks like it would be helpful to #PWmecfs who used an iWatch.

However, on searching #WatchME, I found there is another, different app with the same name, which runs on Windows.

https://apps.apple.com/us/app/watchme/id1583153009

@ahimsa_pdx @tomkindlon @krazykitty ICYMI
Pity an iWatch is so pricey 🤭

I have just discovered there is a brilliant #pacing app for #FitBit, to help #pwMECFS keep under their anaerobic threshold. I believe it is developed by @allyann, along with a Resting Heart Rate app.

Knowing how unreliable FitBit devices are (of 6 I’ve known about in the last 2-3 years, none lasted longer than 6mths, before requiring replacement), I really hope someone can make apps like this for #Garmin. It would be very much appreciated by a wide community.

#PEM #MECFS #LongCovid
https://gallery.fitbit.com/details/240bd0c9-5c5a-4dc3-9a1b-b738c26c5143

I have just donated to David Tuller.

I only get to read some of what he writes these days but it’s reassuring to know he's keeping a close eye on the output from those from the biopsychosocial viewpoint who have caused so many problems over the years

Donate link: https://bit.ly/40kHhkY

@mecfs @cfs @longcovid #MyalgicEncephalomyelitis #myalgice #pwme #PwMEs #pwmecfs #pwlc #LongCovid #PostCovid #PostCovid19 #cfs #cfsme #CFIDS #PostViralIllness #PostViralSyndrome

One month to go

#May12 #May12th #MyalgicEncephalomyelitis #mecfs #cfs #cfsme #pwme #pwMECFS @mecfs @cfs #ChronicFatigueSyndrome

2 months to go

#myalgicencephalomyelitis #mecfs @mecfs @cfs #cfs #pwme #pwmes #pwMECFS