If you have any kind of #neurological condition (e.g. #pwME, #pwFM, #pwMS, etc.) or are a #carer for someone with such a condition, please consider completing the anonymous 2024/5 survey.

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Gosh, I’m grateful got #Valium. That was the easiest MRI yet. Hope the results are as straightforward and good. #MultipleSclerosis #MRI #claustrophobia #pwms

Feeling pretty solid and human about 48 hours after my #rituxan infusion for #MultipleSclerosis. Here’s to hoping I stay relapse free for another six months! #ChronicIllness #MS #PwMS #rituximab #MSSucks

It is almost funny how I thought I was not going to be anxious about my #rituxan infusion today. I almost made it to go time without an #anxiety spike, but the IV steroids put an end to that dream. #MultipleSclerosis #MSSucks #pwms #rrms #ChronicIllness #AnxietyDisorder #infusion #rituximab

Med appointment today for #multiplesclerosis. I’m so lucky to have the family medical leave act to back me up for the amount of time I have to take for appointments because of my #MS. How do folks without #FMLA manage? #chronicillness #pwms #familymedicalleave

I survived my first infusion! Woohoo!!! Was gone 7 hours total. I’m home now and I’m going to nap and hydrate and keep my fingers crossed for no side effects. #multiplesclerosis #pwms #rituximab #rituxan #fums

Fuuuuuccckkk. First #rituximab infusion ever is today. In an hour. I’m so nervous and all my psychosomatic bs is in full effect. #rituxan #multiplesclerosis #pwms #ms

New research on potential influence of gut bacteria on #multiplesclerosis. I find this interesting. Maybe it will lead to new treatments for those of us with #ms? #PwMS #chronicillness
https://pubmed.ncbi.nlm.nih.gov/36604748/

@KPED Other adaptive technologies you might want to consider for #PwMS are cooling vests. Heat sensitivity is a big thing for many, and when I get out cycling in summer heat, ebike or no, a cooling vest makes a HUGE difference.

@sburall

If you don't have a neuro already, then going through your general practitioner and working your way into a referral is your best move, but it looks like you've already done that.

I know some #PwMS just go straight to the ER... but it's the worst time of the year to do that, and, well, there's a Tripledemic on right now...

I'm sorry you're going through all that. You need relief! Sending you healing wishes that symptoms subside quickly!

I vote that every time I’m too sick to work for a few days that I get to have the #WorldCup to keep me company. Can we make that an official thing?
Then again, I got through my first major bout with #multiplesclerosis by binging Game of Thrones. So maybe just stuff I find engaging to watch is fine…)
#worldcup2022 #distraction #covid #covidthoughts #PwMS

@ahimsa_pdx I believe this is true for #PwMS (people with #MS/#MultipleSclerosis)