Why is this spring becoming my Raynauds season?!? Several episodes so far today and it's not even noon yet.
Now sipping a bovril with my hands all snuggly on the mug. Will have to break out the electric gloves if this doesn't solve the issue.
Why is this spring becoming my Raynauds season?!? Several episodes so far today and it's not even noon yet.
Now sipping a bovril with my hands all snuggly on the mug. Will have to break out the electric gloves if this doesn't solve the issue.
Hottest day of the year (so far) and my right hand is absolutely shut down with Raynauds! How is this possible?!?
No sé qué pasó pq estoy posteando poco y escribiendo menos, pero la semana pasada el #blog tuvo una barbaridad de visitas.
A los seguidores y a los que distéis con él por casualidad, #GRACIAS
#blogger #bloguera #Bloguers #Mastoblog #Mastobloguers #Mastoblogger #salud #health #Lupus #LES #SEL #EncefalomielitisMialgica #MyalgicencEphalomyelitis #Sjögren #Sjögrens #Fibromialgia #fibromyalgia #migraña #migrañas #migraine #migraines #Raynaud #raynauds #RaynaudsDisease #natura
https://domandoallobo.blogspot.com
Well, of course posties can get #Raynauds disease too and may have to come in and lie on the floor clenching their teeth and vocal chords while they warm up while feeling returns and nausea subsides at this time of year so they’re safe to drive again. What do you actually expect? Trouble is, now their movements are being tracked by GPS.
”Layers are for onions and fashion victims, no one can calibrate their heat output that precisely.”
And ogres. Ogres have layers.
https://www.alpinesavvy.com/blog/will-gadd-keeping-your-hands-warm-part-1 #Raynauds
Så var det #raynauds säsong igen. Någon som vet om hög höjd och tunn luft eventuellt förvärrar? Hhmm https://www.rei.com/blog/snowsports/numb-fingers-and-toes-its-not-frostbite-but-raynauds-can-still-be-a-pain-to-deal-with
It's also amusing to see how many co-morbidities there are between stuff I have, am suspected to have and ADHD. Like hypermobility. I might have #raynauds , low magnesium which I figured out I have before I figured out I'd ADHD. I also suffer low sodium which is also an ADHD thing. Like seriously. I'm making a list of stuff for my appointment in July and it's just like I'm listing out symptoms of it but in a really weird and chaotic fashion.
Any fellow Raynaud's syndrome sufferers out there in the Fediverse?
There's some good news that snuck by me last year. Someone actually looked at our problem and might have found the genes involved. I absolutely did not expect to see that in my lifetime, but I'll take it!
I finally got rid of that chill! It only took my makeshift electric-oil-heater-with-a-pillow-on-it-and-a-blanket-over-it kotatsu and a heating pad about 3 hours to do it.
I swear. If I’m not dying of heat from hot flashes, I’m freezing from Raynaud’s.
PSA: if you have Raynaud’s Syndrome, #Raynauds, then you have dysautonomia — it’s a form a #dysautonomia
New research: “Raynaud’s syndrome is a common dysautonomia where exposure to cold increases the vascular tone of distal arteries causing vasoconstriction and hypoxia particularly in the extremities. Our results indicate that Raynaud’s syndrome is related to vascular function mediated by adrenergic signaling through ADRA2A.“
https://www.medrxiv.org/content/10.1101/2023.10.04.23296526v1
Question for #disabled/chronically ill Mastodon folk with conditions that cause issues with cold e.g. #dysautonomia, #raynauds ... I've been doing more swimming and aquafit (good for me in many ways!) but I'm seriously struggling with cold recently. Warming up after swimming is taking *hours*. Are those long-sleeved swimming costumes any good? Anyone found any other solutions? #disability [ETA: I swim in an indoor pool, not wild swimming. My cold intolerance is pretty bad!]
Great news for those like me who have Raynaud's disease, the genes responsible have been found. #raynauds
Stupid Raynauds. Can't get warm today, especially my foot with my bandage toe.