#raynauds

Dr. J. Kasmire, not a cyborgJKasmireComplex@mastodonapp.uk
2025-04-17

Why is this spring becoming my Raynauds season?!? Several episodes so far today and it's not even noon yet.

Now sipping a bovril with my hands all snuggly on the mug. Will have to break out the electric gloves if this doesn't solve the issue.

#Raynauds

Dr. J. Kasmire, not a cyborgJKasmireComplex@mastodonapp.uk
2025-04-04

Hottest day of the year (so far) and my right hand is absolutely shut down with Raynauds! How is this possible?!?

#Raynauds

Domando Al LoboDomandoAlLobo
2025-02-25
Ilustración. Escena oscura. Mujer joven con sudadera roja con capucha pone la mano derecha en la frente de un lobo que le supera en tamaño. Leve luz desde la espalda. Fondo gris que podrían ser rocas o un bosque.
2025-01-12
I’ve been trying to find some warm fingerless gloves because of #Raynauds and basically everything REI has seems to be terrible. These were linked on raynauds dot org and I can’t buy them because I have died of wholesome. Inventor and patent holder at 12! Ran the business with her mom! Web design from another era! https://www.wristies.com/
2025-01-06

Well, of course posties can get #Raynauds disease too and may have to come in and lie on the floor clenching their teeth and vocal chords while they warm up while feeling returns and nausea subsides at this time of year so they’re safe to drive again.  What do you actually expect?  Trouble is, now their movements are being tracked by GPS.

2024-11-15

”Layers are for onions and fashion victims, no one can calibrate their heat output that precisely.”
And ogres. Ogres have layers.
alpinesavvy.com/blog/will-gadd #Raynauds

2024-11-08

Så var det #raynauds säsong igen. Någon som vet om hög höjd och tunn luft eventuellt förvärrar? Hhmm rei.com/blog/snowsports/numb-f

2024-03-13

It's also amusing to see how many co-morbidities there are between stuff I have, am suspected to have and ADHD. Like hypermobility. I might have #raynauds , low magnesium which I figured out I have before I figured out I'd ADHD. I also suffer low sodium which is also an ADHD thing. Like seriously. I'm making a list of stuff for my appointment in July and it's just like I'm listing out symptoms of it but in a really weird and chaotic fashion.

2024-03-06

Any fellow Raynaud's syndrome sufferers out there in the Fediverse?

There's some good news that snuck by me last year. Someone actually looked at our problem and might have found the genes involved. I absolutely did not expect to see that in my lifetime, but I'll take it!

qmul.ac.uk/media/news/2023/smd.

#Raynauds #RaynaudsSyndrome

2024-03-01

I finally got rid of that chill! It only took my makeshift electric-oil-heater-with-a-pillow-on-it-and-a-blanket-over-it kotatsu and a heating pad about 3 hours to do it.

#Raynauds

I swear. If I’m not dying of heat from hot flashes, I’m freezing from Raynaud’s.

S t a c i eStacieBee
2024-01-16

I wish I could direct the heat from a hot flash to my feet

S t a c i eStacieBee
2024-01-12

Arctic air can fuck all the way off!

❄️🥶❄️

S t a c i eStacieBee
2023-12-08

Oh, the joy of having a Raynaud’s attack in my toes while simultaneously having a hot flash!

How can my toes feel like icicles while there is a furnace in my head?!

You’d think they’d cancel each other out. Sadly, you’d be wrong.

🥶🥵

2023-11-06

@shanaqui
ewool.com sells heated glove liners. However, I use them indoors without an outer shell, on the lowest heat setting, and they feel great. I got some Savior heated ski gloves for outdoors and those are awesome too.
#Raynauds

2023-11-01
2023-10-13

PSA: if you have Raynaud’s Syndrome, #Raynauds, then you have dysautonomia — it’s a form a #dysautonomia

New research: “Raynaud’s syndrome is a common dysautonomia where exposure to cold increases the vascular tone of distal arteries causing vasoconstriction and hypoxia particularly in the extremities. Our results indicate that Raynaud’s syndrome is related to vascular function mediated by adrenergic signaling through ADRA2A.“

medrxiv.org/content/10.1101/20

2023-09-21

Question for #disabled/chronically ill Mastodon folk with conditions that cause issues with cold e.g. #dysautonomia, #raynauds ... I've been doing more swimming and aquafit (good for me in many ways!) but I'm seriously struggling with cold recently. Warming up after swimming is taking *hours*. Are those long-sleeved swimming costumes any good? Anyone found any other solutions? #disability [ETA: I swim in an indoor pool, not wild swimming. My cold intolerance is pretty bad!]

Crafty Gardener NZcraftygardennz@mastodon.nz
2023-07-25

Stupid Raynauds. Can't get warm today, especially my foot with my bandage toe.

#raynauds

S t a c i eStacieBee
2023-05-25

Huh, I’m so cold that I had a Raynaud’s attack. Normally it’s only the tips of fingers but it was the side of one of the fingers. Strange. Just starting to get feeling back.

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