Dear EGA users:
Our hard-working staff are taking a break over the holiday and new year season ๐ EGA services will continue to run, but please expect delays when emailing our Helpdesk
We wish you a joyful and restful holiday season๐!
The European Genome-phenome Archive (EGA) is a service for archiving and sharing all types of genetic and phenotypic data from research projects.
Jointly managed by the European Bioinformatics Institute (EMBL-EBI) in Cambridge (UK) and the Centre for Genomic Regulation (CRG) in Barcelona, we aim to advance biomedical research and promote personalised medicine worldwide by enabling discovery of and access to human genomic and health research data.
Dear EGA users:
Our hard-working staff are taking a break over the holiday and new year season ๐ EGA services will continue to run, but please expect delays when emailing our Helpdesk
We wish you a joyful and restful holiday season๐!
What a year ๐ We are excited to share an overview of our journey through 2025!
Have a look to get a glimpse of the projects we participated in, the status of #FederatedEGA, some numbers regarding our services, and more ๐โ๏ธ
๐ We are #hiring! ๐
Are you looking for a fresh start for 2026 and want to be part of an amazing team? We are seeking a Software Developer to join our team at EMBL-EBI!
Apply now โก๏ธ https://embl.wd103.myworkdayjobs.com/EMBL/job/Hinxton-Cambridgeshire/Software-Developer_JR2778
๐ฌ Technical and scientific communication ability
We can help consortia develop outreach and communication materials focused on data sharing practices
๐ค Federated network creation and management expertise
We bring our experience in designing and operating federated data networks, offering insights on the technical, legal, and governance aspects of managing sensitive data
If you think we can collaborate in your initiative or consortium, please donโt hesitate to contact us. Letโs work together!
โก๏ธ https://ega-archive.org/
๐๏ธ Expertise in Ethical, Legal and Social Implications (ELSI)
We can support ELSI aspects, including expert contributions on General Data Protection Regulation (GDPR) application and GA4GH recommendations, among others
๐ ๏ธ #FederatedEGA node setup support
We offer scientific and operational guidance tailored to the maturity and funding of the partner institution
๐ก Beacon setup support
We can assist consortia in deploying their own Beacon services and optimizing datasets for discoverability. This will help any research group or consortium to comply with FAIR principles!
๐ฏ Tailoring our platform to better suit your project's data or users
We can evaluate tailoring key tools for data submission, technical support, and Data Access Committees (DAC) to better meet the specific needs of a project
๐ Data management expertise
We can deal with the projectโs data management work thanks to our data curatorsโ knowledge in handling genomic, clinical, and scientific data
๐ก If you are creating or planning an international consortium for securing research funding, this thread is for you!
The EGA is more than just an archive! We are involved in international partnerships and consortia across many scientific fields, providing them with valuable experience in numerous aspects. Here are some areas where the EGA can contribute to large-scale research initiatives ๐งตโ๏ธ
๐กThe CANDLE team joined the EUnetCCC Annual Meeting in Paris, engaging with cancer data stakeholders across Europe
๐๏ธAt the CANDLE booth, stakeholders highlighted the most impactful barriers, as well as promising initiatives to cancer data sharing across their home countries
๐During the panel discussion โUnlocking Cancer Dataโ, Tomi Mรคkelรค of FICAN delivered an overview of how NCDNs will aid in bridging gaps and developing a robust cancer data infrastructure
Read more: https://emp.onl/dQUBB
๐ We are #hiring ๐
Explore the open positions to join our team at the CRG in Barcelona! Apply now:
๐น Operations Technician: https://recruitment.crg.eu/content/jobs/position/operations-technician-ega-team
๐น Operations Bioinformatician: https://recruitment.crg.eu/content/jobs/position/operations-bioinformatician-ega-team
Tomorrow, Jordi Rambla, Team Leader of the EGA - CRG, will participate in the EOSC-ENTRUST Sustainability Workshop:
๐ฌ Perspectives and lessons learned from #FederatedEGA and the Genome Data Infrastructure (GDI) project
๐ October 23, 15:40-15:55 CEST
More information: https://eosc-entrust.eu/news/eosc-entrust-sustainability-workshop
๐งฌ๐ฌ Tomorrow, Abeer Fadda, bioinformatics lead at the EGA-CRG team and researcher in the HEREDITARY project, will be participating in a roundtable on genomic medicine at #RIES2025
Check out the agenda:
โก๏ธ https://forumries.com/programa/
More information about HEREDITARY:
โก๏ธ https://hereditary-project.eu/
๐ EOSC4Cancer has been highlighted by the Research Executive Agency as a success story in the field of health!
The article explores the benefits, challenges, and potential risks of AI, and how EU regulation efforts aim to ensure better and safer conditions for the development and use of this technology. EOSC4Cancer is featured as one of the EU-funded projects aiming to deliver impactful results in and establish good practices in AI-related research.
Read more: https://emp.onl/1NnL8
The first EGA newsletter has been released!
๐ Explore the #FederatedEGA timeline
๐ Discover the EGA Allele Frequency Browser
๐ฅ Check out the projects starting in 2025
And much more! Read the full newsletter here:
โก๏ธ https://mailchi.mp/dd9d965ca3a2/welcome-to-the-start-of-something-great-the-first-ega-newsletter-is-out
Don't forget to subscribe to get the next newsletter:
โก๏ธ https://mailchi.mp/4c1f9c3a3030/subscribe-to-the-ega-newsletter
Hi @tinyspheresof ๐
Yesterday, we experienced technical issues, but everything should be fine and working today. Please, try again and let us know if the problems persist.
๐ข We are excited to announce the incoming launch of the EGA Newsletter!
Sign up now to stay updated on the latest news related to Federated EGA, Beacon, along with highlights and updates on the ongoing projects we are involved in ๐
๐ https://mailchi.mp/4c1f9c3a3030/subscribe-to-the-ega-newsletter