It's POTS awareness day and I'd like to remind you: It's not weird to sit down on the floor on the middle of a shop when you need to. It's not weird to use disability parking when you look healthy. It's not weird to not be able to have a conversation while standing. But it is weird to judge a stranger without knowing their backstory. #POTSAwareness

Before I got ME I sometimes saw hundreds of people a day. So much acquintances, so much small talk. So much meeting. Now I see 1 person every 2-3 days.
It's hard to not get bitter thinking back to so many aqcuintances, family members, friends. Aside from nucleair family, you know how many people from my healthy days I'm still in touch with? 1.

All this to say that you might be an ex-acquintance to someone ill and lonely too. Think back to them. Reach out. Send them a postcard or email.

Good morning

I'm just happy you're here again and reading this. I just really appreciate you as a person and you're an important part of my online community.

people with (severe) #mecfs . Did you ever end up staying in a hotel? How did that go? How would you ask the hotel to accomodate you if you'd do it again?

Awh yeah. My box of postcards is in shippping. I'll get it tomorrow. Which is great because my friend visits tomorrow evening. I can write my first postcards and ask her to post them for me.

Today, 15 years ago, I went to a new school. In my new class there were twenty-something boys, and 2 girls. As a bonus, both the girls had the exact same glasses. Maybe it was natural they became friends, between all those boys. But she stayed my friend. When I came out as gay. When I got a terrible chronic illness. When we discovered I'm autistic. When she started dating, marrying, and procreating. We're still friends. And that to me, is amazing.

some books
really hurt
when the main character dies

other books
really hurt
when they fall on your head

Tomorrow is severe ME awareness day. Saying this now so you have time to think about what to write/share to create some awareness.

@mecfs @chronicillness

6ish weeks ago my grandpa said: you should e-mail me more often. To which I agreed, I love my grandparents and I wish we could be in touch more often. But, what should I say in my e-mails? I had no idea.

And finally it hit me. We both really love flowers. So I just sent him an email with nothing but pictures from my balcony.

Good morning

I wish you the courage to be angry when somebody crosses your boundaries.