Programme Lead @MediPaCe - a #PatientEngagement and Research consultancy
Close to my ❤️: #PatientEngagement, human rights, equality, and family, friends, good food & drinks
We are supporting @mentalhealth this #MentalHealthAwarenessWeek 13 - 19 May. Join in and help to create a world with good mental health for all.
In 2023, we, were proud at MediPaCe to launch our Wellbeing policy and Hub. As part of our commitment to the wellbeing of our staff we also included a paid hour away from work for our staff to take care of themselves through movement, exercise, mindfulness, whatever they found helpful.
Find out more:mentalhealth.org.uk/mhaw #MomentsForMovement
Remember to ♥️ Yourself – Today and every day.
@worldheartfed @worldheartfederation
♥️ Yourself this #worldheartday and walk, run, bike or travel any distance in a heart shape and share with us with #WorldHeartDay to challenge others!
More info: https://world-heart-federation.org/world-heart-day/get-involved/world-heart-day-challenge/
MediPaCe is proud to support #worldheartday tomorrow to raise #awareness of #cardiovasculardisease.
Did you know that #CVD kills over 20 million people every year? And that 80% of these are PREVENTABLE with lifestyle changes: diet, exercise and stress management.
Make an effort to check your heart health on this #worldheartday and start with a small tweak for a great impact on your heart health.
Learn more from @worldheartfederation: https://world-heart-federation.org/what-is-cvd/
♥️ Yourself
#useheart
Thrilled to share that we've committed to the https://www.mentalhealthatwork.org.uk/commitment. We are committed to #CoCreating a Health at Work Plan ensuring everyone feels supported, empowered, & cared for. Here’s to a brighter, healthier future together! 💚
Find out more here; https://medipace.com/2023/08/22/mental-health-at-work-commitment/ #MHAWCommitment #MentalHealthMatters #WellnessAtWork
It's been a month since I attended DIA Global Meeting in Boston. It was great to see people and hear about advances in #patientengagement, so I made a summary of my #learnings from the sessions I attended.
Read the full post from @MediPaCe blog: https://medipace.com/2023/07/17/dia-global-annual-meeting-2023/
In support of all who suffer from, or deal with the consequences of Migraine. We’re with you! See ‘Shades for migraine’ for more info: https://shadesformigraine.org/
For our own full video series where we open our doors and share what it's like for a company where half our core staff experience migraines, see: https://medipace.com/2023/06/20/migraine-awareness-month-2023/
Technology is an increasingly important tool for patients self-managing conditions, providing the right information, decisional power, and tools to use both. Read our thoughts on how technology has been shown to change patient engagement in health:
https://medipace.com/2023/05/31/innovation-and-patient-empowerment-in-healthcare/
June is National Migraine & Headache Awareness Month in the USA. Half our core staff have regular migraines and we’re pretty certain it’s one of the factors that’s affected our culture, our approach and flexibility, and our bonding as a working family. In support of the campaign we’re going throw open our doors to share some of our experiences and thoughts with you.
We start the question: ‘What is migraine to you?’. Here are the answers…
https://youtu.be/HkxWwQnF-tI
#migraine #patient #MHAM
Trying to minimise migraine impact is a 24/7 job. Even if successful, the anticipation and fear of having a migraine lives with you every day.
Some of our team describe what it’s like living with that knowledge:
Continuing our support for Migraine and Headache awareness Month in the US.
Looking after your daily health is a wise choice, but it’s even more important when the realities of getting it wrong are as swift and impactful as migraine. Here are our reflections:
📣 This is a call to the #PatientEngagement community – from advanced practitioners to novices alike, within and beyond my network - to JOIN my #PhD #ResearchJourney to try to advance this field!
#PatientEngagement is a rapidly changing field that needs more research and evidence before stakeholders will truly join us in driving this culture shift from developing treatments for patients to doing it WITH them.
Read more about how to collaborate and let’s talk!
https://medipace.com/2023/05/05/call-for-action-the-value-of-patient-engagement/
MediPaCe are supporting International Women’s day by providing an introduction to a topic close to our hearts – inequalities in health. Please Read more here:
https://medipace.com/2023/03/07/international-womens-day-2023/
#PatientEngagement #patientInvolvement #patient #equity #Equalhealthcare
Equality and Equity are not the same and talking about equal opportunities isn't enough.
People start from different places, so true inclusion and belonging require equitable action.
Head over to the International women’s day website to read more.
https://www.internationalwomensday.com/
#internationalwomensday #PatientEngagement #EmbraceEquity #Equalhealthcare #IWD2023
Happy International Women's Day 2023! This year’s theme is #EmbraceEquity, so head over to their website to see why Equity isn’t just a nice-to-have, it's a must-have.
https://www.internationalwomensday.com/
#patient #patientInvolvement #internationalwomensday #IWD #equity
A woman’s place is…
𝗶𝗻 𝗹𝗲𝗮𝗱𝗲𝗿𝘀𝗵𝗶𝗽
𝗶𝗻 𝗲𝗻𝗴𝗶𝗻𝗲𝗲𝗿𝗶𝗻𝗴
𝗶𝗻 𝘁𝗵𝗲 𝗹𝗮𝗯
𝗶𝗻 𝗽𝗼𝗹𝗶𝘁𝗶𝗰𝘀
𝗶𝗻 𝘀𝗽𝗮𝗰𝗲
𝗘𝗩𝗘𝗥𝗬𝗪𝗛𝗘𝗥𝗘
Gender equality is a core principle of the EU, but it is not yet a reality. In business politics and society as a whole, we can only reach our full potential if we use all our talent and diversity.
Together we will make sure that change happens.
Find more about our Gender Equality Strategy ➡ https://europa.eu/!MQvgFb
Check out the #Roundup of our #RareDiseaseDay campaign here:
https://medipace.com/2023/02/22/rare-disease-day-2023/
Topics include:
- #FamilyPerspectives & #PatientStories
- #PatientEngagement
- #OvercomingChallenges
Special thanks to our network, colleagues and Ines and Nick for sharing your thoughts!
Leveraging existing #PatientGroups and networks is key to finding #RareDisease patients to engage in medicines R&D says Inês Alves from ANDO Portugal.
➡️ Read more about how to overcome challenges to #PatientEngagement in the #RareDiseaseCommunity: https://medipace.com/2023/02/28/raredisease-community/
"What we need is a #PublicPrivatePartnership approach, because the current drug development model does not work in the case of #UltraRareDiseases"
➡️See Nick Sireau's full interview:
https://www.youtube.com/watch?v=RKzwBmUYKF4
➡️Read the full article about overcoming challenges in #PatientEngagement in the #RareDiseaseCommunity: https://medipace.com/2023/02/28/raredisease-community/
For #RareDiseaseDay 2023, we reached out to a couple of #RareDiseaseAdvocates in our network to ask them about their work and how they see #PatientEngagement in the #RareDisease space.
🔗 Read more: https://medipace.com/2023/02/28/raredisease-community/…
➡️ Share with us, what #challenges have you faced?
