Without an appropriate data foundation, a learning healthcare system that benefits from research and innovation will not be possible. We need an overarching strategy for meaningful, targeted, value-adding, person-centric digitization, and modern infrastructures that allow secure and responsible usage of data.
Group leader at SIB, committed member of SPHN. Working to advance better research for better health.
#HealthData #FAIR #RWD #Interoperability #Standards
Based in Basel, Switzerland
Are you passionate about enabling clinical data sharing? setting up collabs with researchers, clinicians & the industry? building bridges across @SIB, @SPHN_DCC & @elixir_europe
This isn’t a researcher role. We need someone who wants to empower others to achieve breakthroughs.
Warum braucht es eine Initiative, die sich um Infrastrukturen bemüht, welche die Nutzung von Gesundheitsdaten insbesondere aus der Routineversorgung für Forschungszwecke ermöglichen?
Im Interview mit healthinal erklären Thomas R. Geiger und ich, warum es eine so grosse Herausforderung ist, Gesundheitsdaten für die Forschung nutzbar zu machen, und warum der Aufbau nachhaltiger Forschungsinfrastrukturen so wichtig für die Schweiz ist.
Die konzeptionelle Datenmodellierung komplexer medizinischer Prozesse ist eine riesige Herausforderung. Aber wenn wir es ordentlich machen, entstehen Datengrundlagen, von denen heutige sowie zukünftige Ärzt*innen und Forschende gleichermassen profitieren.
Glowing helium, neon, argon, krypton and xenon, in Message Not Sent, by Swiss artist Raphael Hefti (now on view at the Kunsthaus)
Tomorrow at 5pm, Patrick Hirschi from Universitätsspital Zürich and I will present the strategy and infrastructure components that will integrate imaging data and metadata into the data exploration ecosystem of the Swiss Personalized Health Network (SPHN), in which anonymized data from over 640'000 patients can already be queried today.
Dial in or step by: Auditorium of the Universitätsklinik Balgrist (Forchstrasse 340, Zurich).
👉 https://lnkd.in/d7HEzJmS
👉 https://lnkd.in/dPhY2MMV
Thank you so much to everyone who supported us throughout this busy year in our mission to enhance the usability of health data for research. SPHN wishes you a tranquil and joyful holiday season 💫
Bridging Clinical and Genomic Knowledge: We just published a pre-print describing the extension of the SPHN #RDF Schema for seamless integration and FAIRification of omics data.
Great collaboration with
TheHyveNL and the SPHN network experts 👏🙏
Bei uns feiern gerade drei Mädchen Kindergeburtstag. Eine ist Jüdin, eine Muslima und eine Katholikin. Insgesamt sprechen sie Deutsch, Englisch, Russisch, Polnisch, Somali und Italienisch. Was für ein Kulturschatz, versammelt in nur drei kleinen Mädchen. Die fröhlich zusammen spielen. Warum man so ein Potential politisch verspielen will durch Rassismus ist mir völlig unklar.
🔎How can knowledge graphs be used to tackle biological or clinical questions spanning multiple SIB Resources such as Bgee, STRING, Rhea or OMA – or the Swiss Personalized Health Network? 🤔
Read the latest paper of the SIB-wide RDF group in Nucleic Acids Research to know more: https://academic.oup.com/nar/advance-article/doi/10.1093/nar/gkad902/7329473
Congratulations to all the group members!
@jerven @cellosaurus @bgeedb @SPHN_DCC @marcrr @dessimoz
This is excellent news!
In order to make DigiSanté a success and bring the hoped-for benefits to patients, healthcare professionals and the solidarity community, a collective effort, the will to help shape the system and the commitment of all those involved are now needed. As well as the willingness to make real changes.
So, let's get to work!
The Federal Council approved the program to promote digital transformation in the Swiss healthcare sector (DigiSanté) and submitted the dispatch on a corresponding credit commitment of CHF 392 million to Parliament.
DE: https://www.admin.ch/gov/de/start/dokumentation/medienmitteilungen.msg-id-98805.html
FR: https://www.admin.ch/gov/fr/accueil/documentation/communiques.msg-id-98805.html
The Swiss Medical Journal has published an informative summary of our efforts to make health data from routine care usable and sharable for research purposes.
The Swiss Personalized Health Network has achieved many of the its goals. But unfortunately, we are still miles away from a Swiss health data space and a digital "service public". But we'll keep at it!
Article DE: https://www.swisshealthweb.ch/de/article/doi/saez.2023.1250296756/
Article FR: https://www.swisshealthweb.ch/fr/article/doi/bms.2023.1250296756/
EN translation: https://shorturl.at/bkuGT
Question: can anyone point me to some good writings (essays or things like that) on the switchover from data scarcity to data abundance, and the changes in science that have to come with it?
🔎#SIBWebsiteTour - How do we create positive impact for society?
Our trending topic pages will tell you all about our work on:
- 🪲 #Biodiversity https://www.sib.swiss/tags/biodiversity
- 💊 #Personalizedhealth https://www.sib.swiss/tags/personalized-health
- 🤖 #AI https://www.sib.swiss/tags/artificial-intelligence-and-machine-learning
- 🚀 #Openresearchdata https://www.sib.swiss/tags/open-research-data
@SPHN_DCC
@P_Palagi
@elixir_europe
@erga_biodiv @CarlosA_Pena @dessimoz @rmwaterhouse
#openresearchdata #lifescience #AI #machinelearning #biodiversity #personalizedhealth #FAIRdata
Established in 2013 to ensure responsible and secure genomic data exchange, GA4GH (https://www.ga4gh.org/) is a global standards organization working for a future of federated discovery, access, and analysis of global datasets.
SIB is a member of this organization and several members including @mbaudis and @SPHN_DCC are actively contributing to its activities.
Find out more about their work in this video, now available in 8 languages: https://www.youtube.com/playlist?list=PLXa1b5-MwOAb-l-x0OiUbeisdgxEgU0xx
#genomics #openscience
SPHN Factsheet 2023: take stock of the solutions offered by this nationwide initiative to make health data #FAIR for secondary use – a project led by SAMS and SIB
👉 https://www.sib.swiss/news/the-swiss-personalized-health-network-sphn-factsheet-2023
💡 The goal of SPHN is the establishment of coordinated data infrastructures in order to make health-relevant data available, interoperable and shareable for research in Switzerland.
#FAIRdata #biomedical #precisionmedicine #healthdata
#BioMedIT #FAIRdata @SPHN_DCC
Fortunately, medical informatics conferences sometimes turn into jam sessions 🙂
Das 1. MIRACUM-DIFUTURE-Symposium – Auftakt nach Maß https://www.miracum.org/2023/10/13/das-1-miracum-difuture-symposium-auftakt-nach-mass/
Unlocking healthcare data for secondary use is a complex task.
Join our SPHN webinar to get to know the established infrastructures and processes at the Swiss university hospitals.
The data infrastructures of the university hospitals are an integral part of the SPHN ecosystem and have been built up and/or expanded during the SPHN funding period to enable cost- and time-efficient reuse of interoperable clinical data for research purposes.
https://www.linkedin.com/feed/update/urn:li:activity:7119373103230525440/
