#disabilityawareness post! 🦓

I am #oneinamillion and if you're interested in #weird, #rare shit, #neurology and #neuroscience , here comes some brain food 🧠

I already did an #introduction post, but here's one introducing my #disability.
I'm the only person (it seems) to have ever mentioned it on Mastodon.

I challenge you to find a worse disease with a more ridiculous name than #stiffpersonsyndrome 😂

Because nobody has heard of this disease, I ask people to imagine #MS, #parkinand #MNDhad a baby. That's what it is like.

It is a #neuromuscular, #autoimmune #disease usually caused by #GAD antibodies which attack the #Gaba protein in the central nervous system.
The antibodies are usually associated with #T1 and #LADA diabetes.

#Symptoms include extreme muscle stiffness, rigidity and painful spasms, tremors, shakes, weakness, and cramps which can generate enough force to fracture bones. Mine are not this bad and I hope they never will be.

Those of us with #SPS have heightened sensitivity to noise, sudden movements, and emotional distress, which can set off #muscle spasms and pain.

I'm only 40 and it's been almost 2 years since I was diagnosed.
I try to stay pretty #positive because I don't see any other choice. I still try to stay #active and so the things I #love, even though the consequence is always pain.

#Movement is key to life.

Use it my #friends. Use it because you never know when you may lose it ❤