Publication proposing a 'Comprehensibility Continuum' method to demonstrate #PatientReported outcome measure comprehensibility systematically and consistently from interview data:
https://link.springer.com/article/10.1007/s11136-024-03858-y

#PatientCentered #Psychometrics #ScaleDevelopment #HRQOL

FuRST 2.0 tracks subtle HD changes; FOCUS-HD takes ~20 mins.

More here ⤵️
https://www.karmactive.com/huntingtons-furst-2-0-amt-130-validation-update-2025/

Follow @karmactive

#HuntingtonsDisease #PatientReported #GeneTherapy

#PersonCentred care refers to health care that is respectful of and responsive to personal experiences, preferences, needs, goals and values of service users.

Read our discussion piece on how we measure and evaluate such care and the potential place for #PatientReported outcomes in it:
https://www.frontiersin.org/journals/health-services/articles/10.3389/frhs.2025.1578037/full

#PatientCentered #HRQL

How to select relevant items for monitoring? Case example of a pragmatic process for mapping immune checkpoint inhibitor #SideEffects to items from existing item libraries ( #CTCAE #EORTC #FACIT )
https://jpro.springeropen.com/articles/10.1186/s41687-025-00855-8

#HRQL #JPRO #PatientCentered #PatientReported #ePRO