Important note in this report by the Future #DSM Strategic Committee:
Acknowledgement of the importance of functioning and quality of life (beyond symptoms) and tasking a sub-committee with finding assessments that align with recovery-oriented care
https://psychiatryonline.org/doi/10.1176/appi.ajp.20250878
Amrita Basu presents development and implementation of a system for monitoring patient-reported data via ePROs in the I-SPY2 Trial
https://pmc.ncbi.nlm.nih.gov/articles/PMC11648710/
#ISOQOL
This is a great example of papers that elucidate practical challenges of PRO capture (see our call for more such work in this editorial https://rdcu.be/eMp57 )
A #SysReview of quality of life and #HRQoL instruments used in trials of interventions for adults with alcohol use disorder:
https://www.jsatjournal.com/article/S2949-8759(25)00172-9/fulltext
One of the interesting findings:
Although the team focused on the most frequently used instruments they found only very few studies reporting psychometric properties in this population.
This mirrors findings from our broader #SysReview of #HRQL as an outcome in substance and behavioural addictions
https://pubmed.ncbi.nlm.nih.gov/37439397/
Meta-analysis of #TaskShifting / #TaskSharing for managing #Multimorbidity shows some associations w depression (d=-.27, k=14), quality of life (d=.10, k=12), increased anxiety (d=.14, k=5), mortality (OR=.77, k=4).
Still in the summer write-up of papers?
Have a look at the call for papers on "Quality of life in people with mental disorders – beyond global scores" at Quality of Life Research
https://link.springer.com/collections/cddjbdidbj
Linked Editorial
https://link.springer.com/collections/cddjbdidbj
Rehabilitation is often criticised for its focus on physical and functional recovery, at the expense of recognising the profound social and psychological impacts of illness and injury:
https://www.frontiersin.org/journals/rehabilitation-sciences/articles/10.3389/fresc.2025.1665527/full
Investigating functioning of the #EQ5D -Y-5L in five countries shows that participants can differentiate ordinal response levels, but that measurement quality and scaling functions differ by country and age:
https://www.sciencedirect.com/science/article/pii/S1098301525024830
Since this is conceptually similar to violations of invariance in other measurement models, I wonder whether the #utility #valuation literature needs a more formal framework for this and whether #Psychometrics might help with this?
This #CostUtilityAnalysis of 'academic detailing' to enhance naloxone distribution for opioid users (i) shows it potentially cost-effective at WTP of US$50,000 per #QALY and (ii) it used #UtilityScores developed from #NIDA shared data*
https://link.springer.com/article/10.1007/s40258-025-00991-8
* To develop these we used National Institute on Drug Abuse-published #RCT data
https://link.springer.com/article/10.1007/s11136-024-03729-6
To me an example how #DataSharing supports research for community infrastructure
Quick reminder:
"Content validity is defined as the degree to which the content of a measurement instrument adequately reflects the outcome being measured. [...] It is considered to be the most important measurement property".
https://www.sciencedirect.com/science/article/pii/S0895435625002124
Perspectives of service providers, caregivers and adolescent patients in this study suggest that if patients are asked to complete PROMs, there is a duty of care for this information to be reviewed and acted upon:
https://link.springer.com/article/10.1007/s11136-025-03996-x
#PersonCentred care refers to health care that is respectful of and responsive to personal experiences, preferences, needs, goals and values of service users.
Read our discussion piece on how we measure and evaluate such care and the potential place for #PatientReported outcomes in it:
https://www.frontiersin.org/journals/health-services/articles/10.3389/frhs.2025.1578037/full
A new paper discusses workflow development for ePRO symptom monitoring to support PRO(M) implementation into practice using the Action, Actor, Context, Target, Time framework:
https://link.springer.com/article/10.1007/s11136-025-03995-y
#HRQL #PatientCentered #ImplementationScience #ParticipatoryResearch
The development of an interactive platform for applying tree-based IRT models for detection of differential item functioning is summarised in a recent #ISOQOL letter:
https://www.isoqol.org/bridging-the-gap-a-user-friendly-tool-for-evaluating-differential-item-functioning-in-patient-reported-outcome-measures/
A related methods paper by the team:
https://link.springer.com/article/10.1007/s11136-023-03560-5
A #SysReview (24 studies) synthesises evidence around the impact of adopting different perspectives when valuing child & adolescent #HRQL
https://link.springer.com/article/10.1007/s40273-025-01493-0
Results show that differences in mean values arise with different perspectives on severe child #HealthStates. These differences are influenced by factors such as health state severity and valuation method. Uncertainty remains regarding the optimal choice of preference elicitation and anchoring methods.
"The article focusses primarily on presenting the case for adopting ROM and is a starting point—a primer—for any person working in the field of student counselling, or psychological therapies more generally, who is considering the challenges of adopting ROM."
Quote from:
https://onlinelibrary.wiley.com/doi/full/10.1002/capr.12694
The March* issue of Quality of Life Research includes the call for papers
"Quality of life dimensions in people living with mental disorders: moving beyond global scores"
https://rdcu.be/ehPIy
We encourage submissions of research and practice using nuanced approaches to #HRQL & #QOL, adopting the term “mental disorder” broadly, e.g., based on standard diagnoses or using transdiagnostic perspectives.
#SMI #HRQL #PatientCentered #Psychometrics #ClinicalPsychology #PsychotherapyResearch
* 👇
Trigg et al discussed conceptualisations of meaningful between-group differences:
https://rdcu.be/ehHdD
A comment by Kevin Weinfurt advances the discussion w 4 points
https://rdcu.be/ehHfS
From the abstract:
(1) rather than “between-group difference,” specify the level at which you wish to infer a treatment effect: population or individual;
(2) points of reference may be different for interpreting individual- and population-level treatment effect estimates;
...
How to select relevant items for monitoring? Case example of a pragmatic process for mapping immune checkpoint inhibitor #SideEffects to items from existing item libraries ( #CTCAE #EORTC #FACIT )
https://jpro.springeropen.com/articles/10.1186/s41687-025-00855-8
...the analyses highlight the importance of sleep as a potential driver of adolescent wellbeing, and that the developmental cascade may be different across genders.
Read Claudia Rutherford's and my thoughts when launching this format in the journal and why we thought #RegisteredReports would fit well into #HRQL #HealthEconomics #RCT research processes:
https://rdcu.be/d8JXk
A #ScopingReview (n=6) from one of our #ProfDoc students highlights the profound impact of adenomyosis and how important a better understanding of the lived experience is to improve diagnostic pathways
https://bmjopen.bmj.com/content/15/1/e087122.full
