Ever heard of visual snow?
It's a rare neurological condition where people constantly see static across their vision, even in complete darkness. It's not an eye problem, but a brain processing issue. Awareness matters, even for the rarest conditions.
#VisualSnow #VisionAwareness

Last night I learned about the visual snow syndrome. I guess I've always had that? I thought people usually saw things as if through a kind of static.

Also,
✅ Seeing floaters
✅ Photophobia (bright light hurts)
✅ Seeing negative after images

I thought everyone had those and just learned to ignore them most of the time like I do?

Oh yeah, I also get migraines with auras sometimes, but luckily those are rare these days. The auras for me appear as absences of things in my visual field, so I know that's definitely not the same.

Anyway, I'm not a doctor... Maybe I'm just over self diagnosing or smh.

#VisualSnow #VisualSnowSyndrome #floaters #selfdiagnosing #TIL #migraines

@Dallin I honestly feel like #VisualSnow and #tinnitus are just two sides of the same coin, brain making shit up that isn't there, just in two different processing centers.

My #VisualSnow literally feels like looking through old black and white static from old televisions between channels, but clear.

At different times in my life I've also experienced phantom smells too. :emoji_wink:

@Dallin All of my contacts in Neurology have confirmed that #tinnitus and #VisualSnow are definitely comorbid w/ #migraine. My daughter (9) has been developing #tinnitus and #VisualSnow as well, but hopefully her preventative will do more for her #migraines.

I was diagnosed w/ TMJ, and had a bite plane, had jaw surgery, the whole nine yards. Did nothing for my #migraines.

My SO was diagnosed w/ TMJ, and her bite plane has been incredibly helpful reducing her headaches.

Felt like my #tinnitus and #VisualSnow were extra loud and thick this morning, respectively, and then my head started to hurt, like a mild precursor to full #migraine. Electrolytes with breakfast didn't seem to stop it, so started the pre-abortive cocktail of benadryl, ginger extract, and Emeterm bracelet (all anti-nausea), with green LEDs on (don't actually help with migraine, but feels nice on the eyes).

Was hoping it wasn't going to be a #migraine day, but 🤷‍♂️.

Found out today that I've had visual snow for quite a while. Was asked if I have any floaters at the opthalmologist. I said no floaters but I see "rainbow TV static pixels" everywhere and they can make it harder to see at night. Here's a picture that's supposed to show what having visual snow is like. I'm now seeing my opthalmologist yearly since I take #hydroxychloroquine and #dupixent which can affect vision. #VisualSnow

First blog post in a while, this time a little bit of a personal one. It's about why, a few years ago, conferences suddenly became very difficult experiences for me, how I've learned to better cope since then, and what others can do to help.

https://steventhomson.co.uk/post/visual_snow_190223/

#VisualSnow

Ich habe heute zum ersten Mal von #visualsnow gehört und war kurz erschrocken, dass diese Art der Wahrnehmung anscheinend auch nicht normal ist... Aber ich erfahre eh gerade einen Haufen neuer Dinge 🤷 #autismus
https://languageoficeandfire.tumblr.com/post/636392675996778496/wait-ive-never-been-diagnosed-with-autism-but

Anyone on Mastodon deal with mysterious #chronicpain which seemingly randomly moves around various joints? (Along with a sudden onset of #visualsnow & suddenly worsened #tinnitus.) Always asking this everywhere and open to any unusual suggestions as all conventional methods aren’t helping thus far & blood tests reveal nothing. But from its unexpected onset know it likely isn’t “just” psychology and know others have probably walked a similar path….

Philosophy + psychology time! I think (because it was that way for me) that having #visualsnow syndrome predisposes one to rejecting naive realism from a very young age, preferring indirect realism or idealism.

I remember, as a kid, opening a cupboard and closing it again, wondering whether things would continue to exist when they weren't observed (=in the closed cupboard). I don't think that was an issue of object permanence. The fact that I remember this 1/?

oh yeah wanna see what my janky ass vision looks like bc of visual snow? I photoshopped it a while ago

#visualsnow

Also, tried to open-eyed meditate tonight with a candle and it was fucking agony.

I think this is a #VisualSnow thing? Apparently light sensitivity is a big deal and it is mostly having to stare in one place that I can't deal with.

I gave up seven minutes in after basically starting to cry, it feels like absolute solid writhing pain in my head. Is this normal for anyone else?