A scoping review of guidelines and frameworks for advance care planning for adolescents and young adults with life-limiting or life-threatening conditions. #hpm #hapc #palliativecare #pedpc https://buff.ly/4ccGKrN

Seven themes were synthesized from the data: (1) Internal upheaval – ‘World turns upside down’; (2) Role of religion and spirituality in hope of miracles; (3) Support from family and close friends; (4) Navigating a fragmented healthcare system; (5) Value added by the perinatal palliative service; (6) Goodbye and grieving and (7) No regrets and other personal reflections #hpm #hapc #pedpc https://buff.ly/3tHqduX

The main facilitators for palliative care integration included the value of co-design with ‘end users’ of the intervention and the processes of implementation; staff education and training including around processes, communication, and introducing referrals; dedicated communication across the multidisciplinary teams in the hospital. #hpm #hapc #pedpc https://buff.ly/3RVEjCV

Five aspects are important: how they connect to their religious beliefs; how they deal with hope; their parental identity; their personal development; and how connected they feel to others. #hpm #hapc #pedpc https://buff.ly/3rRU7LT

‘You have a little human being kicking inside you and an unbearable pain of knowing there will be a void at the end’. #hpm #hapc #pedpc https://buff.ly/46J0HDE

With regard to spirituality, for parents caring for a child with a life-limiting or life-threatening condition, five aspects are important: how they connect to their religious beliefs; how they deal with hope; their parental identity; their personal development; and how connected they feel to others. #hpm #hapc #pedpc https://buff.ly/3rRU7LT

There is a considerable gap between the number of children and adolescents identified as meeting palliative care referral criteria and those who receive services. #hpm #hapc #pedpc https://journals.sagepub.com/doi/full/10.1177/02692163231163258

#hapc #pedpc #pallidon

Financial hardship, stigma, limited knowledge and compromised children’s rights impede access to healthcare in Bangladesh. #hpm #hapc #pedpc https://journals.sagepub.com/doi/full/10.1177/02692163221136896

A well-functioning end-of-life collaboration builds on mutual trust between families and professionals and relies on a focus on the establishment and closure of the collaboration, continuously adaptive family-centered care, a clear organization and integration of the hospital- and community-based health care services, and accessibility of necessary support for all parties involved. #hpm #hapc #pedpc #palliativecare https://journals.sagepub.com/doi/full/10.1177/02692163221135350

@nick
Calling #hapc #pedpc #PalliativeCare folks!
What’s our #MedicalEmojis ?
This is our chance to move away from the unfortunate “sad hands”
@ctsinclair @thelizarmy @AmitAryaMD