Disability advocacy, especially when confined to social media, can wear you down. It can make you want to quit.
I really want to quit right now.
In the last week:
I’ve been told I’m wasting my life
I’m not doing enough advocacy
I’m pushing an agenda & want folks to suffer
I’m a paid shill
Been used as “bait” by a huge influence.
I don’t say any of this for sympathy, but rather to highlight how incredibly hard it is to be a disabled woman on social media trying to advocate for change. You get hate from all sides. You’re constantly trapped in a catch 22.
The person who said I was wasting my life felt my writing talent could be better spent on anything but disability. They felt it was pathetic this is how I choose to spend my days The other person felt I’m not doing “enough” That advocacy isn’t real if you’re not in the streets
The accusations of “agenda pushing” came from people upset that I’m critical of assisted dying policies. They said my sources aren’t credible enough. I want people to suffer. I’m trying to take away their rights. Every one of them ignored the fact I’ve had death pushed at me
I asked each one whether they consider me credible. I want to believe I’ve built a reputation within the community as someone who fights for disabled lives and can be trusted. I have no reason to lie. I’m not religiously opposed to assisted dying.
I’m opposed to it being offered in lieu of care I’m angry it was pushed on me for a treatable condition by a doctor who treated me as worthless I’ve even angrier that no one believes me because they can’t see past their own desire to have the right to die when their time comes
Paid shill or pharma shill is something almost all of us hear on a regular basis. It’s absurd, but that doesn’t stop people from throwing the accusation around. I don’t have a blue tick. My website is completely free. I don’t make a cent off this. I wish I did!
Believe it or not some of us do this because we want to save lives. We do it because we’ve suffered at the hands of an ableist and eugenicist system and we want to prevent others from a similar fate. That’s it. That’s our whole “agenda”. We just want to help.
As for being used as “bait”, a huge supposedly “leftist” account took a screenshot I wrote about masks and posted it here to try and hate farm for engagement. It worked. He had nearly 300k views. He IS a blue tick, so he will have made money off my content.
What’s worse, it encouraged people to go to the other place just to harasss me. Hundreds of accounts, most of them with very misogynistic undertones, filled my timeline for three days with threats, insults and hate. I’m exhausted.
I didn’t consent to that. I didn’t have the energy for that. I know that’s the risk we all take when on social media, but when it happens from someone who’s making a living as a “leftist influencer” it really friggin sucks.
That’s all to say this last week has been a painful reminder of what we all know to be true… there’s no solidarity with disabled people. Left or right, it doesn’t matter. We are firmly “othered”. Seen as less than. Never good enough.
It doesn’t matter how hard we try and convince them otherwise. They won’t be convinced. Because eugenics and internalized ableism are incredibly hard to beat. People don’t want their world view shattered. They don’t want to believe they’re the same as us.
If you made it this far, please remember that the person behind the avatar is just that… a person. They’re not a “brand”. They’re not bulletproof just because they have a following. They will be hurt by things you say and do.
We have to have each other’s backs. Say what you will about the right, they’re united. They stick together in their hate. We have to stop cutting each other down and instead lift each other up. We won’t agree 100% of the time, but some solidarity would be nice.
If we don’t present a united front… we lose. We will burn out our advocates. We’ve already lost a number of great ones who couldn’t take the stress and vitriol. Whatever you’re doing is enough.
You are enough. We’re living through unprecedented times, we must have grace.