#ColiberationLab

2023-12-09

Mega thread of general summaries of #CoLiberationLab work, to clear up space on my pinned posts, mostly.

Oh No, Not Another Trolley (about computer science education and eugenics)
kolektiva.social/@FractalEcho/

I, Misfit (about the absurdity of robots in autism therapy)
kolektiva.social/@FractalEcho/

Six Ways of Looking at Fractal Mechanics (a model of social change relying on dialectical materialism)
kolektiva.social/@FractalEcho/

Metaeugenics and Metaresistance (about how rights-based frames collude to give disabled children the right to be normalized through curative violence)
kolektiva.social/@FractalEcho/

2023-03-16

Purdue’s Black Cultural Center and Purdue’s Disabled Student Union present a roundtable discussion on the intersections of Race and Disability on Wednesday March 22nd from 6:00-7:30pm in MP2 at the BCC and online.

RSVP at tinyurl.com/bccdsuevent

Students from the DSU will open with a primer on Disability Justice, a movement led by disabled and queer people of color. DSU representatives will also discuss the scholarship of Black disability scholar-activists Chris Bell (Rest in Power), Sami Schalk, and Imani Barbarin. Then, DSU Faculty Advisor, PI of the Coliberation Lab, and SSRC Just Tech Fellow Dr. Rua M. Williams will facilitate a roundtable discussion with special guests Samar Jade and D’Arcee Chairington Neal on their experiences of disability, race, and liberation. It is our hope that this event deepens the coalition between disabled and black activism on campus.

Meet our guests:
Samar Jade: I am a classically trained singer turned scholar rebirthed as a writer who loves to nurture those around me to live the most authentically. I am actively working to heal childhood and adult trauma. I love to celebrate Blackness, queerness, and witnessing humans living their truths. I recently discovered and connected with my ancestral spirituality in an effort to become more aware of the many things that guided those before me and to offer respect and gratitude.

I am in my last year of coursework in a PhD in Ethnomusicology. Current projects in the works outside of my school obligations are compiling a book of poetry that explores my personal journey to reclamation of self and identity.

I am a teacher. I love, love LOVE teaching. One of the things I admired about the teachers that impacted me most was the very evident desire to create a safe space for creativity and learning. I believe that knowledge belongs to all and that which has been gate kept from others needs to be made accessible.

I have a long list of special interests including:
opossums
astrology
pumpkin spice
Dmitri Shostakovich
bird medicine
Jersey Shore
cicadas

I am weird, and I love that about me.

D’Arcee Chairington Neal: D'Arcee Charington Neal is a fourth year doctoral candidate at The Ohio State University in English and Disability Studies, where he is coining the theory of Afrophantasm or the rhetorical applications of invisibility through Afrofuturism and black disability culture. With a double master's in Creative Writing and Rhetorical Composition, he is writing and composing an audio novel and digital dissertation where his research is focused on recognizing historical and future black disabled people, as unseen agents of stigma he calls spectres. Believing that this association between race and disability can be weaponized through posthumanist applications of embodied culture, he believes that Afrophantasm can change how people both understand and experience disability culture. Further, he believes that the resulting black future can and should be both accessible and in Wakanda, forever.

#DisabilityJustice #Intersectionality #RaceAndDisability #DisabilityTooWhite #ColiberationLab #Solidarity #DisabledStudentUnion #BlackCulturalCenter #Purdue

[Image Description: Black and gold graphics surround the Disabled Pride Flag. Information Description: The Black Cultural Center and the Disabled Student Union present “Coliberate” a roundtable discussion on the intersection of race and disability. This event is co-hosted by the Coliberation Lab. The event is on Wednesday March 22nd from 6pm to 7:30pm in room MP2 in the BCC. RSVP at https://tinyurl.com/bccdsuevent.][Image Description: black and gold graphics surround image of Samar Jade, a black femme with short locs and dark lipstick. They have a tattoo of a cicada below a full moon on their chest, which you can see over their blouse and blazer. They have possum earrings and a septum piercing. Information Description: The Black Cultural Center and the Disabled Student Union present “Coliberate” a roundtable discussion on the intersection of race and disability. This event is co-hosted by the Coliberation Lab. The event is on Wednesday March 22nd from 6pm to 7:30pm in room MP2 in the BCC. Guest: Samar Jade.][Image Description: black and gold graphics surround a black and white image of D’Arcee Chairington Neal. D’Arcee is a black gay man with medium length bleached locs and glasses. Information Description: The Black Cultural Center and the Disabled Student Union present “Coliberate” a roundtable discussion on the intersection of race and disability. This event is co-hosted by the Coliberation Lab. The event is on Wednesday March 22nd from 6pm to 7:30pm in room MP2 in the BCC. Guest: D’Arcee Neal.]
2023-03-03

Two papers from the #ColiberationLab accepted to #CHI2023

Cyborg Assemblages: how autistic adults construct sociotechnical networks to support cognitive function

Autism has become a popular context for accessible technology researchers, yet a majority of HCI projects for autism and ADHD do not engage in participatory method or otherwise involve disabled stakeholders in the project and research design. Prior inquiry has identified executive function as a common difficulty for which technologies may provide novel benefits. In this study, we explore how autistic adults currently use technologies, broadly defined, to augment executive function and support themselves in day-to-day tasks. We collect qualitative data from narratives elicited during informal asynchronous interviews do conduct a digital ethnomethodology. Following from principles of Design Justice, crip technoscience, and cyborg assemblage theory, we investigate how autistic adults articulate their own sociotechnical environments into technologically mediated assemblages of executive function and interpersonal webs of care. These patterns of sociotechnical formation inform future work in research and design for tools that can mediate executive function for all users.

Counterventions: a reparative approach to interventionist HCI

Research in HCI applied to clinical interventions relies on normative assumptions about which bodies and minds are healthy, valuable, and desirable. To disrupt this normalizing drive in HCI, we define a “counterventional approach” to intervention technology design informed by critical scholarship and community perspectives. This approach is meant to unsettle normative assumptions of intervention as urgent, necessary, and curative. We begin with a historical overview of intervention in HCI and its critics. Then, through reparative readings of past interventionist HCI projects, we illustrate the emergent principles of a counterventional approach and how they may manifest research outcomes that are fundamentally divergent from normative approaches. We then explicate characteristics of “counterventions” – projects that contest dominant sociotechnical paradigms through privileging community and participants in research inquiry, interaction design, and analysis of outcomes. These divergent results have transformative implications for how interventionist HCI might be conducted in future.

#HCI #Cyborgs #DisabilityStudies #CripTechnoscience #Autistic

2023-02-05
2023-01-15

Summary of "Metaeugenics and Metaresistance: From Manufacturing the ‘Includeable Body’ to Walking Away from the Broom Closet

I will start this summary by explaining the title. I usually skip that part. This time I am going to explain the title because the title is so long, and so annoying. In "Academia" (which is just a fancy way to say college), there is a joke about how professors choose titles for their papers. It's not a specific joke. But everyone likes to make fun of titles that go like this "short catchy title": "long title with complicated meaning". I choose this kind of title a lot, because I think it's fun. I don't take myself too seriously.

The first part of this title is "Metaeugenics and Metaresistance". Something-ics is a kind of science, or a way of thinking, like economics, or politics. Eugenics is a way of thinking that says there are good bodies and bad bodies, and that human beings have a moral duty to keep their bodies "good" and to only have children with "good" bodies. Eugenics also says that governments are responsible for making sure their citizens are only people with "good" bodies. Eugenic science was overtly racist and ableist.

Most people believe that eugenics is over. They believe it was a bad science that happened in the past, and that we don't believe in it anymore. The problem with believing eugenics is over is that it makes it hard for you to notice when it is still happening. When more black and Indigenous people die from a virus, some people understand that this is because of racism in medicine. But when more disabled people die, we think it is because their bodies are weaker - That they do not have "good" bodies. The truth is that disabled people are dying more not /just/ because they are vulnerable but also because we made public choices that endanger their lives.

We made these choices because we still believe in good bodies and bad bodies. We still believe that it is everyone's moral duty to make their body as strong as possible. We still believe that some people deserve to die because of the body they are in. This is metaeugenics.

For something to be meta- is for it to exist without being said or written out loud. It is important to be clear that when we say disabled people, we do not mean just white disabled people. Understanding metaeugenics helps us to understand why we are okay with so many disabled people dying. It also helps us to understand that black and Indigenous people are not just vulnerable to racism, but to ableism also, even when they are not disabled in ways that are obvious to us. Because we do not care about disabled people, we allowed black and Indigenous people to be put at greater risk from racism in public health. Metaeugenics can help us understand how racism and ableism work together.

Resistance means to work against something. In this paper I want us to think about the ways we can work against metaeugenics by paying attention to metaresistance. To notice metaresistance, you have to think differently about what you are seeing when you see people resisting something. You have to notice both what someone is directly working against, and also notice how that resistence “speaks” or does resistance against other things that are not clear - like metaeugenics. I will give some examples later.

The next part of the title is “manufacturing the includable body”.

The “includable body” is something disability scholars write about. When we talk about inclusion, we usually mean that society should be open and accessible to everyone, no matter their disability. But when we “do” inclusion, schools and workplaces usually set some rules about what a person must do or be or look like in order to be included. Some scholars that write about this are Tania Titchkosky, Sara María Acevedo, Joe Stramondo, Eunjung Kim, and Anne McGuire. When a disabled child has to “earn” their place in the mainstream classroom by graduating from certain therapies, this means they have been made “includable”.

This is one way we uphold metaeugenics. We make disabled people work to make their bodies “includable” in therapies before we will accommodate them in “mainstream” spaces. Disabled people are morally obligated to make their bodies as “good” as possible, and if they don’t, they are called “non compliant”.

If you know anything about inclusion, you might be a little confused. Inclusion is a right! In the United States, we have the Americans with Disabilities Act and the Individuals with Disabilities Education Act which means disabled people have the right to accommodations to access public life, work, and school. Unfortunately, rights and laws do not work without people doing the right thing. Even if you have the "right" to be included, who decides what counts as inclusion?

The problem with rights is that someone else is always in charge of deciding what "counts".

The United Nations has the Convention on the Rights of People with Disabilities (CRPD) and the Convention on the Rights of the Child (CRC). In my paper, I try to explain that when you put these documents together, they show a global metaeugenic attitude toward disability. The CRPD says that disability must be recognized as a natural part of human diversity, but that adult decision makers have the authority to determine the "best interests" of a disabled child. In the CRC, adults are responsible for considering the "best interests of the Child" and children are guaranteed the right to "develop healthily". What does this mean when the child is born into a body that the world declares is "unhealthy" or "disordered"? Basically, a disabled child has the right to be "fixed". Our rights comand us to manufacture an includable body for any person whose body is not "normal".

The final part of this paper's title is "Walking away from the broom closet". Ursula K. le Guin was a famous science fiction author. She wrote a book called "The Ones who Walk away from Omelas". In this book, Omelas was a Utopic society. A utopia is a place where everyone is happy and cared for. In the story, people find out that Omelas's happiness is only possible because there is a child, locked in a broom closet, who takes on all the suffering so that everyone else can be happy.

I think that in the real world, we have lots of broom closets where we make people suffer so that we can have our happy idea of normal. I think prisons are an example of broom closets. I also think that for many disabled children, the "intensive interventions" we force them to do in their "best interests" are a kind of broom closet. They suffer so that we can have our happy idea of a future without disability.

Attitudes toward children can tell us about attitudes toward the future. If we want to ensure our children do not have to be disabled, then we must also want a future where there are no disabled people. The disabled community is large and diverse. There are some conditions which are painful and some people want treatments that help them feel at peace in their own bodies. But that doesn't mean that you can eliminate disability. Disability is a natural part of human life. The society that wants to eliminate disability can only hope to eliminate itself.

I will end this summary with some stories.

On August 2, 2018, NBC News’ Health website published an article praising Google Glass
and researchers at Stanford University for the creation of a wearable app that may improve eye
contact for children with autism (Scher, 2018).
In preschool, [he] struggled socially with other kids. One hit him in the
face with a rubber mallet and another in the shoulder with a metal shovel.
“He didn’t see it coming,” [she] told NBC News. “When you don’t look
kids in the face, you can’t see their reactions or know what to expect.”
When he was 5, he was diagnosed with autism.
[N]ow 9, [he] started working one on one with a therapist using applied
behavioral analysis, a technique to improve social behavior, but [his
mother] saw little progress.
“Nothing really changed,” she said. “Until Google Glass.”

This child was assaulted by his peers. Because he was disabled, the solution was to put him in therapy. To use technology to change his behavior. To put him in a broom closet. So that other people could be happy.

In another project, researchers made a smart watch that would buzz to notify a child that they were behaving inappropriately. In this example, even "hand flapping" was considered inappropriate. At one point, "Child 5" was buzzed. He looked up and noticed that his teacher was too far away to stop him, and he continued flapping his hands. This child is my patron saint of noncompliance. His microresistance, written down in a scientific paper, is a testimony for all to see that the researchers are focusing on the wrong idea.

There are other examples, like the children who run away from robots designed to teach them social skills, or the children who scream at their therapists.

If we pay attention to where our participants are resisting our research, we can learn to recognize these broom closets, unlock the doors, and take these children out of Omelas forever.

ojs.library.carleton.ca/index.

Hashtag soup
#SciComm #ScholarComm #STS #CDS #HCI #DisabilityStudies #HumanComputerInteraction #HumanRights #ChildrensRights #CRPD #CRC #Metaeugenics #Metaresistance #Eugenics #Omelas #UrsulaKLeGuin #Autism #Disability #DisabilityJustice #TechJustice #Technoableism #ColiberationLab

2022-12-04

Part 2

A fractal is something that is shaped the same way on the outside and on the inside. When you look at it from far away, it has a shape. And when you look at it really close, it's made up of millions of pieces that have that same shape. There are some fractals in nature. Many plants like ferns, succulents, pine cones, and even some broccoli have a spiral shape that is a fractal. Lots of things made by water, like snowflakes and rivers, have a fractal shape. Trees can be fractals too. Their shape follows the same rules from trunk to root, branch to stem, and even the veins in leaves.

When I thought about NeoLiberation, I thought about Fractals. I thought about fractals because whether it was the hospital or the classroom, the group home or the community, the rules were the same. The rules that say "you cannot be here unless you act a certain way, are shaped a certain way, look a certain way".

If you lived in a state hospital, they said you were institutionalized, because you lived in an institution. Abolishing state hospitals was called "deinstitutionalization". What really happened was that many people were moved from large institutions to smaller ones. This was called "transinstitutionalization". Many of the rules were the same in these smaller homes. You still weren't in charge of your life. It was like a fractal.

Many people talked about "inclusion" as a way to make sure disabled people were together with non disabled people in the community. It was supposed to be a movement to change society so that disabled people wouldn't be kept out anymore. Instead, what often happened, was society stayed the same, and instead an "inclusion program" became one where they would work to change the disabled person so that they would "fit in". The rules stayed the same. Inclusion became like a fractal.

But remember how I said there were things in nature that were fractals? Those were beautiful things. Why are the fractals in this story so ugly?

It's because the fractal isn't the institution or neoliberalism. The fractal is us. Social relations follow fractal rules. Activist scholar Adrienne Maree Brown has also used fractals to describe social movements—“what we practice at the small scale sets the patterns for the whole system” (2017, 41).

There's something else about fractals you need to know.

The rules can be changed.

And when the rule of a fractal changes, it changes the whole shape. Inside and out. Big and small.

So neoliberalism is a rule set that makes us build ugly, violent, deadly fractals.

What rules make us build beautiful, gentle, life giving fractals?

Huey P. Newton (2019) teaches us three key things —that “everything is in a constant state of change” (193), that we must act as if our action have direct consequences on other people and the world, and that to do this you must always be thinking about how your actions change the world and that the world is always changing. To act in Solidarity with others is working together to help each other even when they are not like you, or even when they cannot help you in return. It is understanding that you have to respect someone in order to help them.

Fractals can also be people working as collective agents of change. Justice is created in collective action because it is impossible to do justice if you decide what it is for other people. Each action either keeps or changes the fractal rules. We are always at step zero in a new world and must act with the understanding that each moment is a practice of worldbuilding.

I will finish this summary by telling three stories about how disabled community can show us how to build new worlds by making new fractal rules.

Story A: Ames and Oli live on opposite sides of the country. Separated by thousands of miles, they are connected digitally and spiritually by shared experiences.

Ames: Hey

Oli: Hey!

Ames: Tag yourself, I’m executive dysfunction.

Oli: lol mood

Ames: yeah. But I really need to eat.

--incoming video call from Oli--

Ames: “Ha. Why did you call me?”

Oli: “Because we both need to eat. Let’s make lunch together.”


Ames and Oli are both neurodivergent and struggle with executive function—those cognitive processes that help you get from goal to action. Though their connection is “only” digital, this networked connection is no less real. Together, they can yoke their movements, “borrowing praxis” (Asasumasu 2015) and giving each other mutual care. By feeding themselves, they feed each other.

Story B: Every day, we check the board. We look for the names, the hospitals, the room numbers. We build the phone scripts. This one needs access to their AAC. That one needs the staff to follow the correct plan of care. That one over there needs dozens of angry phone calls to badger an admin into releasing a patient back to their community, instead of the home. The system, #BreakoutBot,6 looks up the admin phone numbers. The text messages go out. Like dandelion seeds. Thousands of angry, tired, loving crips dial in. “We are not disposable. Let my people go.

Story C: They got tired of the Zoom rooms long ago. Everyone said no, no you have to stay connected. Though they missed each other’s company dearly, they missed the absence of migraines more. It’s not that video calls aren’t “good enough” compared to other conversations…It’s just that…maybe the talking was never actually the point.

Instead, they exchange envelopes. No, not letters. They gave up words long ago. Exhausting things, words. Instead, they send crushed flowers, an interesting stone, papers etched with the skin of damp twigs…What does it mean when you send a flower and they send a stone? Well it’s not just the flower, and it’s not just the stone. The flower was purple, with white and blue too. The stone has sparkles, flint quartz, and lapis lazuli. The twigs were from the creek, where other stones were found. Maybe next week, they’ll exchange things that are round. For one it was a reminder that the earth makes beauty. For another a testament that the earth holds memory. The meanings are co-constructed, the practice collaborative. This, too, is conversation.

I will end this abruptly, because that is a very autistic thing to do. The point is this. We make the rules. We can edit all the fractals. Together.

catalystjournal.org/index.php/

#Fractals #ColiberationLab #TechJustice #DisabilityJustice #CripTechnoscience #Inclusion #Institutionalization #Neoliberalism #NeoLiberation #CollectiveAction

2022-12-04

Summary of "Six Ways of Looking at Fractal Mechanics"

This is in two parts. Yes. Even on Kolektiva where we have 10k characters.

This essay was very hard to write. Many people read it before it was finally published. Reviewers, people who read work before it is published and suggest changes, did not like my first draft. I wrote and rewrote this paper many times. I like it, in the end. But I am sorry that it is just as difficult to understand as it was to finish. I am going to try to summarize this one in plain language. I will probably have to try again when I am better at plain language writing.

One of the hardest parts about writing this paper was how often people wanted me to change the order. Another hard part was how academics do not like it when you write like an artist instead of a scholar. I am not saying that my writing is good art. But I wrote it almost like a poem, and I did this on purpose. Sometimes I think the fact that I was writing artistically is what made the reviewers so confused.

This will be both a plain language summary and a plain language story about why I wrote this paper, and how I wrote it.

These next parts are the parts that are the most like a poem. These are the parts I wrote because I wanted to help the reader to feel the things I felt. To be uncomfortable, sad, angry, but also to laugh. These were also the parts I wrote first. I first wrote these parts in the spring of 2018. The paper was not published until the fall of 2021.

Scene 1: The young women stand by their posters in the gallery. They are standing between a poster on the legacy of the sheltered workshop and the resistance of the disability community to one side and, on the other, a poster by undergraduate special education students about barriers to service access for “Adults with ASD.” Their own posters are of themselves. Their portraits, smiling. Their bullet points, describing. Their futures, absent. They stand, uncannily still, eyes deflected—on display. They have been included. They know, now that they are here, that they are here to be observed—not to be witnessed.

This scene is about something upsetting I saw at a meeting where disabled college students were presenting research. It became very clear that the students with physical and sensory disabilities had been allowed to conduct research projects, but the students with cognitive disabilities were only allowed to make posters about themselves. You could tell that they understood they had been treated differently, and that they didn't know they were going to be treated differently until they came to the meeting. There were also non disabled students presenting their research. This could have been a nice example of inclusion, except the non disabled students' research projects were about people with disabilities. Disabled students were included, but not respected.

Scene 2: He enters the auditorium. His body, familiarly unruly, comfortingly uncanny. I am entangled with cables, cursing the projector blustering about absent conference IT staff. His access needs are well known. His AAC is not a surprise. But the conference would not provide tech support, and he has been included. Equity is not justice.

This scene is about a meeting I went to where a non speaking person was presenting his work. There were ramps in the room, but no support for hooking his computer voice up to the speakers. He was included, but not supported.

Scene 3: We begin our panel. A strategic, calculated, and artful assault on the state of special education and education technology. We neuroqueer crip critics, masterful if uncanny orators, stand opposite a rookery of nonplussed vultures—special educators and their brood, here to observe autism “in the wild.” Our own people, our crip people, absent. We have been included.

This scene is about a time when I presented my work at a meeting with my friends. I was so excited to have my first chance to present my work in front of other disabled people. But most of them did not come. Some other session was more interesting to them. Instead, the people who came were mostly special education teachers. We felt like zoo animals. The only people that wanted to see us were people that wanted to compare us to their textbooks. We were included, but not loved.

Scene 4: We sit in the back of the ballroom. We pass notes like cheeky school children. We are in Autistic Space. Noises spill from his sinuses, filling the rafters on opalescent waves—sonorous, sublime. “Shhh,” they turn their vulture necks. Craning to see. Who dares to (neuro)queer this crip time? No Tourette’s, no unruly bodies. They only want us here if we can be quiet. Apparently, we are not includable.

In this scene, I was so excited to get to talk to my friend. My nonspeaking friend. To get to talk to him in his way - with pen and paper and screeches. But the only disabled people that belong at the meeting are the ones with quiet bodies. We were included, but not wanted.

These things happened at a meeting that was supposed to be run by disabled people, for disabled people. But when I was there, so many bad things happened to me and my friends. I was very disappointed, because the meeting was all about liberation, but I watched as disabled people hurt other disabled people. People were celebrating their power while disempowering others.

This is sometimes called "neoliberalism". To be neoliberal, or to do neoliberalism, is to say you are helping someone when you are only helping yourself. Specifically, it is to say you are doing something good for someone, but you are actually supporting the same system that harms that person in the first place.

Here are some examples. The Best Buddies program is a neoliberal program. It is a neoliberal program because it says it is a program to help people with intellectual disability find friends. To do this, the best buddies program signs up non disabled people who want to do charity work by being a friend to disabled people. But that's not friendship. It's pitty. So best buddies pretends to give you a friend while supporting the society that believes you can't make friends any other way.

The sheltered workshop is a neoliberal program. Sheltered workshops are neoliberal, because they say they are going to give disabled people a job, but really they are giving the disabled person a boring task for less than minimum wage. They give you a pretend job, like Best Buddies gives you a pretend friend. They support a society that believes you cannot do good work to support your community.

Many of the college programs for people with intellectual disability are neoliberal programs. They are neoliberal because they pretend you are going to college but they are really controlling what classes you can take and what you can study. They support a society that believes there are only certain things you can do with your life.

So I was very frustrated at this meeting because it was a neoliberal meeting. But it was even more frustrating because the people running it were disabled. I felt they should have known better. I joked that it was NeoLiberation. It was pretend liberation.

The neoliberal machine has come for inclusion.

Always watching, surveilling, assaying—neoliberalism snatches up our resistances. Categorized, analyzed, defined, discretized. Labeled. Branded. Repackaged. Capitalized.

A radical movement becomes a social movement. A social movement becomes a policy. A policy becomes a program. A program becomes an industry.

“We will be inclusive,” You say. “We will be welcoming,” You say. “We will empower you,” You say. I say, “Who is We?”

Inclusion has a flaw, you see. One that Neoliberalism has found easy to exploit. A software vulnerability, or perhaps a feature. Inclusion, unfortunately, does not necessitate the abdication of power. You offer me a seat. But it is still your table.

We are empowered to conform. We are welcomed to be observed. We are liberated into a NeoliberalLiberation.

Thanks. I hate it.

This feeling that I was feeling, this feeling of NeoLiberation, reminds me of a feeling that Sarah Ahmed wrote about in her book "On Being Included" - she wrote about "that feeling of coming up against the same thing wherever you come up against it." (pg. 175)

As I sat with this feeling, and thought about the "sameness", or the repetition, of what was happening between these scenes, I remembered fractals.

See reply for part 2.

catalystjournal.org/index.php/

#Fractals #ColiberationLab #TechJustice #DisabilityJustice #CripTechnoscience #Inclusion #Institutionalization #Neoliberalism #NeoLiberation #CollectiveAction

2022-11-29

Another summary from the #ColiberationLab.

“I, Misfit: Empty Fortresses, Social Robots, and Peculiar Relations in Autism Research.”

In this paper, I think about autistic people and robots. Ideas about autism as robotic have made researchers do very strange things. Many autism researchers write about how autistic people are like robots, and many robotics researchers write about how robots are like autistic people! There are even studies about how to use robots to help autistic people be more “human”. I think this is very silly. The paper that I wrote is very serious. But the truth is that I laughed a lot while writing it. I also cried a little. Sometimes things that are silly are also deeply sad.

There are many studies about how to use robots to take care of other people. Care Robots are designed for elder care, dementia care, and other kinds of care that might happen in a clinic, hospital, or nursing home. This is often called “Robot Assisted Therapy”. Researchers like Andrew Bischof and Arne Maibaum have studied robotics. They write about how most Care Robot research begins by asking “How can we use a robot to solve a problem here?” This is a silly way to begin research, because you are assuming that a robot would be a good solution to the problem at all.

“Robotic Care Assistants” or Care Robots are usually made to do things that other people think are boring, like doing the same thing over and over. Ruha Benjamin writes about how we think of robots as slaves, and how this means we sometimes build technologies with racist ideas. When we build things with racist ideas, we build a racist world, even if we do not know it. I worry about how often Care Robots are built to be like servants. I worry about this because if we want robots to be servants, that means we want servants. If we want servants, we want something that hurts other people. I think some people feel that it’s okay because robots do not have feelings. I feel that it’s not okay, no matter what, because wanting servants makes us treat other people badly, even if we think we are only acting badly toward robots.

I look at studies where people try to use robots to make autistic people behave a certain way. I think the way that researchers talk about autistic people tells us about how they do not respect autistic people very much. In these studies, both the autistic people and the robots sometimes do something surprising. When this happens, it can show researchers that what they think about autistic people is wrong.

Around 60 to 70 years ago, there was a man who studied autism named Bruno Bettelheim. Bettelheim ran a school for “Emotionally Disturbed” children, where families brought their autistic children when they felt they could not take care of them. Bettelheim sometimes convinced families to send their children to his school. He told families their children were not well, emotionally or mentally, and that he could help them. Bettelheim wrote about how autistic children were empty inside. He wrote that they became empty inside because there was something wrong with how the children behave around their families.

Most researchers now do not think that Bettelheim was right about autism. Even though Bettelheim was wrong, the things that he wrote were so popular that many people still believe them. Even researchers that know Bettelheim was wrong still write about autistic people being empty or “off” in some ways. When someone says that an autistic person is “off” they mean that they don’t feel like the autistic person is like other people, and that this is bad. Autistic people are often called “misfits”. Researchers write about how autistic people move funny, talk differently, and don’t understand other people. Often, they write about autistic people being like a robot, or a machine.

I think that it is silly that researchers talk about autistic people being like robots, and then want to use robots to make autistic people act more “normal”. Researchers often try to use a robot to teach an autistic person how to act when around other people. Researchers say that if they can make an autistic person act “normal”, then other people will treat them better. Why isn’t anybody teaching “normal” people how to be nice?

Researchers think they need to fix the autistic person because they do not think the autistic person is different, they think the autistic person is broken. Researchers write that if they can fix or change the autistic person, it will be good for other people. Researchers have decided two things. 1. That robots can teach autistic people to be like other people. And 2. That this is good because it will make things easier for everyone else.

Sometimes, the autistic people in these robot studies show the researchers that they are upset, that they don’t like the robot, or they don’t like the activity. I think it’s important for researchers to notice when the autistic people in their studies are “misbehaving” because it can show the researchers that what they are studying is wrong.

It’s so funny that researchers have written that they can use the robots to notice when the autistic person is upset. The researchers know that they are bad at understanding autistic people. But then they write about how autistic people struggle to understand others! If we are willing to teach robots how to understand autistic people, why won’t we teach each other how to understand autistic people? Why do we work so hard to change only the autistic person?

In one study, an autistic person was not good at the task the researchers wanted him to do. He was not copying what the robot did the way the researchers wanted him to. Even though he was doing the task “wrong”, at the end of every appointment, he would kiss the robot on the head. I think about this a lot. There are a lot of stories about autistic people being loving toward robots. Even though researchers are wrong about autistic people being robotic, autistic people often feel friendship with robots because we are treated badly by the same people. Autistic people and robots are both treated like “Misfits.” Researchers should be more like autistic people, be more open to being friends with people who are different, and stop trying to change them.

To read more:

pdcnet.org/techne/content/tech

Or

researchgate.net/publication/3

Hashtag soup:

#HRI #HumanRobotInteraction #HumanRobotRelations #RobotAssistedTherapy #SociallyAssistiveRobots #Autism #AutismTherapy #ActuallyAutistic #Research #ResearchSummary #SciComm #ScholarComm #STS #CDS #CriticalDisabilityStudies #CriticalAutismStudies

Edit: Deleted and reposted because I accidentally kept it unlisted. Sorry about the beleted replies.

2022-11-13

To support public access to research, I am writing summaries of the #ColiberationLab’s work in #TechJustice. Our first thread will be on a paper we wrote while I was still in school with Simone Smarr, Diandra Prioleau, and Dr. Juan Gilbert.

Summary of "Oh No Not Another Trolley"
In 2020, we sent out a survey to computer science (CS) students at universities in the United States. CS students learn about how to make computer systems.

We wanted to know how CS students think about ethics when they make computer systems. Ethics means thinking about how what you make can do things to other people. Sometimes computer systems can hurt people.

Usually, the people who get hurt the most are people who are already treated badly in society because of their race, gender, age, or disability. We wanted to know how CS students think about building systems that might hurt people.

In our survey, we shared five examples of computer systems that might hurt people, and asked CS students to tell us what they thought. The examples were of “algorithmic decision making supports”. These are computer systems that use math to help humans make choices.

Our first example was about doctors using a computer system to help them decide if a person had a disability or illness.

Our second example was about doctors’ offices using a computer system to help them decide when to schedule visits for certain patients.

In example 3, a computer system told doctors if a patient might not survive COVID, and then the doctor asked that person to sign a “Do Not Resuscitate” order. A DNR order means that if you are dying because your heart is stopping or you can’t breathe, the hospital can not help.

In our fourth example, doctors used a computer system to decide who would get a ventilator to help them breathe if there were too many people and not enough ventilators.

In our fifth example, hospitals would use a computer system to decide if someone’s personal ventilator should be given to someone else because the system thought the other person would live longer.

All of these examples were based on real things that happened during the beginning of the #COVID19 pandemic.

CS students told us what they thought the good and the bad things were about these examples.

We studied these answers to find out how CS students think about ethics problems in computer systems.

Most students believed that these systems could only do bad things if they were built wrong. Most students thought that these systems would be good “for society”.

But, when the students described society, they usually meant doctors, family members, and business owners. When the students talked about society, they talked about sick and disabled patients as if they were not members of society.

Many students did not understand what a DNR order was, and thought that it was just “useful information” and not a rule that would keep a hospital from saving your life.

Most of the students that took our survey said they thought a lot about ethics. But students also said that they did not learn a lot about ethics in their computer science classes.

Many students worried that these systems would accidentally hurt Black people more than White people. That meant that students were learning about how computer systems can be racist. But students did not worry that these systems would accidentally hurt people with disabilities.

Black people may be more likely to have an illness or disability because of how racism hurts your body. This means that even if a system is built to be “fair” about race, if it is still “unfair” about disability, the system will still be racist and ableist.

We worry that learning more about ethics will not be enough for computer scientists to build safer systems. If you don’t have strong relationships with people who are not like you, you might not be able to understand that a system is hurting people who are not like you.

That is why we hope Computer Science teachers who read this paper will think about how they can help their students become better friends to people who are not like them. When we become friends with other people, we can learn to have a “coliberative consciousness”.

A “coliberative consciousness” is when you understand how systems might hurt you AND also people who are not like you. This will help you understand how to build systems that liberate, or set free, more people.

To read more:

ieeexplore.ieee.org/document/9

Or

researchgate.net/publication/3

#ColiberativeConsciousness

Client Info

Server: https://mastodon.social
Version: 2025.04
Repository: https://github.com/cyevgeniy/lmst