Lmst

FORST TIME I GOT A FIVE ON MY MORNING STABILITY WITH #VISIBLEAPP

NUMBER GO UP! NUMBER GO UP!!! #disabledJoy

Morning Stability; 5, stable and improving (full marks on the graph!) your body’s signals are stable and one or more are trending positively. Keep pacing yourself. Below that is a score summary about HRV, sleep quality, and resting heart rate

The #VisibleApp has added monthly functional capacity measurements for #LongCovid using the FUNCAP27 methodology. This is awesome.

A screenshot of the visible app showing my functional capacity score of 5.1 (a healthy persons functional score is 6). With a visual breakdown of each of the categories used to measure it.

@jilleduffy Thanks!

Another hashtag, in case you're looking for info on social media, is #VisibleApp

@bhawthorne @longcovid
I've been tracking my #LongCovid with the #VisibleApp and polar armband for months now and have been finding it really useful. I also have a Garmin and both in combination are pretty spot on. The morning check-in on Visible can be a bit patchy for me but my Garmin body battery alongside is a good prediction of my energy levels for the day. And the pacing alerts on Visible work well for me during the day.

I subscribed to Visible Plus and just got I got the heart rate monitor for the Visible app. This is designed to help with real time reminders about over-exertion and provides a way to track my overall exertion during the day. The app is still collecting enough data to be able to let me establish a “Pace Points” budget, but I have already had some interesting insights.

You know how all the pacing guides say that exertion can be physical, mental, or emotional? I hadn’t realized just how true that is.

While reclining in my chair and watching the sun rise, my heart rate was at a good resting level. Then while still reclining, I played Wordle this morning, and my heart rate increased to 88 bpm, well into the Exertion zone. Apparently, thinking hard really does require the brain to expend more energy and my heart rate increased to bring it the oxygen it needed.

Even thinking enough to type this elevates my heart rate a little to 80 bpm, which is just into my estimated exertion zone.

I am very curious as to how this will proceed, and I’ll follow up in a few days with my experiences. Is anyone else using the heart rate tracker with the Visible app?

#LC #LongCovid #LivingWithLongCovid @longcovid #MECFS #VisibleApp

Screenshot of Visible app

Pacing
Graphic showing: 78 bpm
Current HR zone: Rest
PacePoints 8.3

Oooops!

#visible #visibleapp #pacing #ME/CFS #LongCovid

A picture from the pacing app Visible showing that I have used more than double my allocated pace points for the day.

@danhon I've heard of one. It's called Visible. It's currently just an app that uses the smart phone camera but long term it's supposed to be a device.

https://www.makevisible.com/

It has been discussed on the Science for ME forum here:

https://www.s4me.info/threads/monitoring-app-visible-a-platform-designed-for-any-invisible-illness-that-benefits-from-resting-and-pacing-including-me-cfs-long-covid.23542/

#LongCovid #ChronicIllness #MEcfs #VisibleApp #ActivityTracker

@roothflud I'm not using it myself, but I've seen some discussion of it on the Science for ME forum. Here are a couple of links:

https://www.s4me.info/threads/monitoring-app-visible-a-platform-designed-for-any-invisible-illness-that-benefits-from-resting-and-pacing-including-me-cfs-long-covid.23542/page-3

https://www.s4me.info/threads/watchme-and-other-hr-hrv-monitoring-apps.31613/

#MEcfs #LongCovid #VisibleApp #HRV #Science4ME

@Leneux I've just downloaded #visibleapp so I have no data yet, but I'm already impressed with the questions it's asking.
I feel like I've spent the last year having to explain this to everyone and suddenly an app will keep records of it all for me.

@Rhyothemis @forestsystem I don't know the answer to this, but I did read that the long term plan for Visible is to make wearable illness tracker.

Just in case it's not clear, I have no connection with this company, not even using the app. Just trying spread the word for those who might want to try it!

https://www.makevisible.com/blog/the-next-step

#VisibleApp #MEcfs #LongCovid #ChronicIllness #Pacing

If you’ve been following Visible for a while, you’ll know that our ultimate aim is to use wearables to help people to understand their illness and pace their activity. In the background, we’ve been working hard with researchers to build a wearable platform for people living with energy-limiting illnesses. And it’s almost ready.

We’ll be releasing our Visible Plus wearable subscription in the New Year. If this is something you’re interested in, then you can join the wearable waitlist from inside the Visible beta app.

@ahimsa_pdx I just downloaded this and tried it out! It gave me a “poor quality results” error twice in a row when measuring my heart rate, which reminded me to go back and add #HandTremors in my list of symptoms. 😆

Maybe they’ll add better functionality for people with #tremors later, or maybe my new phone (I’m switching over later today) will work better for that?

In any case, overall, I like it! I was pleasantly surprised by the “non-binary” gender option. :heart_gq:

#VisibleApp #MEcfs

Managed to use the #visibleapp for enough days to be given a pacing score. Given a 7, but unsure what that means. 🤔

#ME #MyalgicEncephalomyelitis #LongCovid

@fearlessknits

Very interesting project.
I hope they track resting HR as well as HRV; my daughter's ME symptoms seem to track more w/ resting HR than HRV.
{ edit: it says right there in the article that it tracks HR - did not read it carefully enough 1st time }

She uses EliteHRV plus their CorSense finger sensor each morning. We haven't really anything done w/ the data.

#HRV #biomarkers #MECFS
#DigitalHealth #VisibleApp

#VISIBLEAPP

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