Lmst

Selamat Hari Disabilitas Internasional untuk kawan-kawan disabilitas di seluruh dunia, masya Allah tabarakallah.
#CapCut #ctevwarrior #ctev #ctevindonesia #haridisabilitasinternasional

Jejak tinta Pemilukada tanggal 27 November 2024 kemarin yang masih tersisa di jari kelingking. Ini bukan simbol memilih paslon tertentu karena itu rahasia di bilik suara. Walaupun memilihnya rada-rada terpaksa juga sih 🤣🤣🤣

#DisabilitasMemilih #disabilitas #pemilu #pemilu #ctev #ctevstrong #pink #jazashare #kaltim #pilkada #pilkadaserentak #ppu #masyaallahtabarakallah

One of the only reasons Im still on fb is to follow a group for adults like me who were born with #CTEV.

Lately a lot of us have been discussing how successful the various pain treatments we have been offered over the years have been.

Most have resigned themselves high levels of daily pain; most of those who have had operations to try and address the pain have been left instead with more pain and less mobility; the level of hope for pain-free future is exceptionally low.

It feels so grim for me that most in my situation dont have a way out of the pain.

Someone was even discussing amputation as a possible solution and I actually found myself agreeing with them.

The last couple of weeks have been pretty bad for me though ... but knowing that I am not alone in this struggle is why I keep myself connected on fb.

Have yet to meet anyone here on the #fediverse yet that also has CTEV

Would be nice though.

#ChronicPain #Pain #ChronicIllness

I just got my first custom orthodic #insoles to (hopefully) help with the #ChronicPain caused by my #CTEV

They feel weird and hard and like I am rocking backwards a bit when I walk.

Gonna take some getting use to, I guess.

Anyone else have experience with breaking these things in?

#orthodics

Had a chat with a #Podiatrist today - the next step that was reccommended to me in dealing with my #ChronicPain from #CTEV - and they have suggested that I start with custom made insoles.

Will see how those go, but she did say that I may have to get custom made shoes, as my feet are super odd (wider than they are long, higher arch on one side, random numb patches in several places on my soles .. etc)

I just want to be able to take a walk for longer than 15 minutes, and not have it lead to days and days of stiffness and pain. If the insoles can do that, maybe I can put off having to get the expensive custom shoes.

#CongentialTalipesEquinovarus #Clubfoot

Generally I find that maintaining a (slightly dark) sense of humour about my #ChronicPain from bilateral #CTEV keeps me grounded ...
and this really made me snort laugh, so ... win?

A meme. The image shows a picture of some feet with the ankle shown in focus, The text reads "Are you suffering from ANKLES?"

For anyone suffering foot or ankle #pain or who struggles to find good supportive #shoes that will accomodate prescribed inserts, I just got a pair of cute ballerinas from a danish company called "New Feet" that I'm pretty impressed with.

The #ChronicPain in my ankles was slightly less once I had them on, which was an amazing feeling, and the inner sole is designed to be removable to allow one to put ones own inserts in without ruining the shoe or the fit.

I think they may only be available in northern europe at the moment, but just wanted to share, cause I know how hard it is to find good, comfortable and supportive shoes when you have gammy feet and ankles, and figured it may help someone out there!

https://www.new-feet.com/

#CTEV

In the last week, I offically became one of those people that 'goes to #yoga class' and I gotta say, I friggen loved it!

The class is designed for bigger bodied women, and the instructor is an occupational therapist who works with patients with mobility and pain issues, so she was able to take my chronic ankle pain from the #CTEV into consideration and showed me individually how to do some poses to minimise the pain.

It was great! 10/10! Would recommend! Cant wait til my next class!

#today I am getting frustrated with my ankles and the #ChronicPain in them.

Sitting hurts, standing hurts, even swimming the other day caused more pain.

But I am still grateful that even though I was born with acute congenital bilateral talipes equinovarus I was lucky enough to have been born in a place where it was addressed quickly and I was able move forward in life walking relatively normally.

The constant pains in my ankles and legs are annoying, but I've dealt with it for 45 years, so I'll just keep keeping on.

#CongentialTalipesEquinovarus #Pain #CTEV

#ctev

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