Private chef. Sarcoidosis-infused life commentary. Heart failure, AICD, Diabetes and a stubborn refusal to quit. Hosting a podcast, trying to stay alive and stay funny. #sarcoidosis #chronicillness #heartfailure #livedexperience #patientvoice #diabetes
Why Fatigue Hits Harder Than a Chef’s Knife: Living with Sarcoidosis, Heart Failure, and Zero Patience
Why do chronic illness stories turn suffering into a spiritual trophy? Sarcoidosis taught me faith can help—but it can also steal your agency. A little satire from the sickbed. #Sarcoidosis #ChronicIllness #Podcast
https://www.buzzsprout.com/2548730/episodes/18685397
Covid wasn’t “just a bad flu.” With sarcoidosis & chronic illness, every breath matters. Why I still mask—personal & blunt.
#CovidIsNotOver #ChronicIllness
https://www.buzzsprout.com/2548730/episodes/18767204
Remember when USPS Priority mail cost $6 and took two days! Now $12 gets your letter there in five. Progress!
Why My Doctor’s Office Needs a Mute Button (and Other Adventures in Patient Privacy)
Sarcoidosis doesn’t just hit your lungs or heart—it comes for your calendar, energy, and bank account. Staying alive shouldn’t be a subscription.
https://www.buzzsprout.com/2548730/episodes/18680105
#Sarcoidosis #ChronicIllness #HealthcareCosts #DisabilityLife #Podcast
The Month I Waited Probably Saved My Life: Living With a Defibrillator, Fear, and Sarcoidosis
Germaphobe Chronicles (Couples Edition): Our Life as the Pen-Hating, Laundry-Obsessed Sarkies
This is a bonus episode. A Story from my now closed "Pan to Pen: A Storytelling Podcast"
Living with sarcoidosis taught me this: the harder you work to stay “normal,” the more it costs. Portable oxygen promised freedom—until fine print, upsells, and pricey chargers. Breathing ≠ subscription.
#Sarcoidosis #ChronicIllness
When Your Heart Throws a Tantrum and Your Doctor Ambushes You With a Flu Shot
In 2007, a routine procedure became heart failure. 19 years later I’m still here—sarcoidosis, an AICD, and a metal box guarding each heartbeat. Miracle, nuisance, survival.
#HeartFailure #Sarcoidosis #AICD #ChronicIllness #Survivor
https://www.buzzsprout.com/2548730/episodes/18668168
In 2007, a routine heart procedure became heart failure. Nineteen years later, I’m still here—living with sarcoidosis and an AICD, knowing my heartbeat may rely on metal and code. Miracle, nuisance, survival.
#HeartFailure #Sarcoidosis #AICD #ChronicIllness #StillHere
With sarcoidosis, the harder you work to stay “normal,” the more the system charges you. Portable oxygen promised freedom—until the fine print, and a “special charger” pricier than my microwave.
#Sarcoidosis #ChronicIllness #DisabledAndPaying #OxygenLife #HealthcareCosts
Wiping the Slate Clean: Why My Sarcoidosis and Heart Meds Actually Work
The Sinking Ship and the Whistling Chef: Navigating Chronic Illness with Sarcasm, Sarcoidosis, and a Side of Resilience
At 18, I thought I was going to a work meeting. Instead: rum shots, card games, my first (and only) time getting drunk, and a girlfriend who was NOT amused—yet somehow still married me. 🤷♂️
#Storytime #Podcast #Memoir #DarkHumor
https://www.buzzsprout.com/2548730/episodes/18641593
Chef + writer + lifelong bookworm with chronic illness: my Kindle isn’t a gadget, it’s freedom. I carry a whole library in my pocket. #ChronicIllness #Kindle #Reading #BookSky #Writers #DisabledReaders #Spoonie #Sarcoidosis #HeartFailure #AmReading