Lmst

@dajb thanks for this, that sounds like it. It was probably just being used in a really poor way, the interaction with the advisor was terrible and there was no apparent desire to provide advice, it was effectively a summarisation service, which arguably some people want, but the nuance of thinking about how my needs fit with descriptors was what I was after. Yes, I'll try and send them feedback when I've got my form in. #DisabilityLife

Sarcoidosis doesn’t just hit your lungs or heart—it comes for your calendar, energy, and bank account. Staying alive shouldn’t be a subscription.
https://www.buzzsprout.com/2548730/episodes/18680105
#Sarcoidosis #ChronicIllness #HealthcareCosts #DisabilityLife #Podcast

Redesigning Your Writing Process for Unique Needs

The content emphasizes the importance of creating a personal workflow that accommodates individual health needs, especially for those facing disabilities or chronic conditions. It advocates for flexibility and self-compassion in writing and business practices, encouraging adaptation based on one’s circumstances rather than conforming to external expectations or comparisons.

https://dreamspacestudio.net/redesigning-your-writing-process-for-unique-needs/

How Penny Tasks (Like Community-Building Posts) Add Up Over Time

Real progress often stems from small, consistent actions, especially for disabled and neurodivergent creators. Engaging with community through simple tasks like comments and shares fosters connection and builds authenticity. These "penny tasks" accumulate to create sustainable growth, reinforcing the importance of showing up, no matter how small the effort may seem.

https://dreamspacestudio.net/how-penny-tasks-like-community-building-posts-add-up-over-time/

Let’s retire the word “lazy.” You’re not lazy for needing breaks, rest, or creative adjustments. You’re building a workflow that works for you, and that’s powerful.
#SelfCompassion #DisabilityLife

You’re allowed to budget your energy and focus on what actually matters—especially now.
What’s one thing you did (or let yourself not do) today that deserves to be counted as a win?
Share or just notice. It all adds up.
#SmallWins #DisabilityLife

Energy Budgeting and The Good Thing Principle

The world feels overwhelming, impacting our mental and physical well-being, especially for those with chronic challenges. The Good Thing Principle encourages recognizing daily positives, however small, to cultivate hope. Coupled with energy budgeting, this practice helps manage limits and fosters self-respect, enabling individuals to navigate tough times with resilience.

https://dreamspacestudio.net/energy-budgeting-and-the-good-thing-principle/

a woman computing bills while holding a pencil

What a Sustainable Workflow Looks Like for Chronic Pain: Real-Life Examples

Sustainable workflows prioritize adapting work habits to individual needs, especially for neurodivergent and disabled individuals. By recognizing that conditions and energies fluctuate, one can create a supportive, flexible routine that fosters productivity without burnout. Embracing rest and automation are essential strategies for maintaining creativity and honoring personal limits, ultimately leading to a more fulfilling work experience.

https://dreamspacestudio.net/what-a-sustainable-workflow-looks-like-for-chronic-pain-real-life-examples/

Tonight’s workout courtesy of Squeaker:
He refused to leave his "pocket" bed, so I had to pick up the whole bundle — dog + bed — and wrestle it through a kennel door just wide enough for the bed. Eleven pounds of pure Min Pin dead weight, and I was out of breath by the end. 🐾💪
#DogLife #MinPin #StubbornPets #DisabilityLife #Accessibility #Humor #Christian #dogs #dogsofmastodon @dogs

This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.
#disability #DisabilityLife #ChronicIllness #Fibromyalgia #RheumatoidArthritis #Neurodivergent #Fatigue #Accessibility #StudyStruggles #Ergonomics #ShortPeopleProblems #DisabledAndStudying #NapMode #ActuallyAutistic #Spoonie #CollegeStudent
@disability @autistics @spoonies @chronicillness @accessibility

I just climbed a ladder to replace bulbs in my ceiling fixture!

That is the first time I've successfully climbed more than one rung on a ladder in probably 25 years!

#disabledlives
#disabilitylife

Hi everyone! How’s your day going?

I’m really excited—my new iPhone 16 Pro Max is arriving tomorrow! 🎉📱

I got a refund from my university’s financial aid office, probably because I had to drop a course due to being sick. After talking it over with my mom, we agreed I needed something positive to look forward to after everything I’ve been through lately.

I’m still recovering from a severe reaction to a medication I was prescribed, and my rheumatoid arthritis has me mostly bedridden. My current phone, an iPhone 13 Mini, is showing its age and not running well. I’ve been using a Pixel 9 Pro through the Google Accessibility Trusted Testers program, but I’ve always preferred iPhones—so I used part of the refund to order a new one from Apple today. It’s scheduled to arrive tomorrow, and I can’t wait!

We’re also planning to launch a GoFundMe soon to help me upgrade my Braille display. The one I have is a few years old, and my dream device is the Handy Tech Activator. My mom really wants to help me get it, and I’m so grateful.

Tonight, I’m planning to reset my old Apple Watch to give to my mom. It’s not working well for me anymore—especially with the pain in my wrists and hands—and it’s too focused on fitness. I tried using it for health tracking, but it wasn’t a good fit for how I manage things now.

Thanks for reading, and I hope you’re all doing okay. 💜

#DisabilityLife #ChronicIllness #BlindTech #iPhone16ProMax #Accessibility #BrailleDisplay #RheumatoidArthritis #blind #AppleAccessibility #GoogleTrustedTester #GoFundMe #HealthJourney #disability #spoonie #ChronicIllness

In a week—on 8/14—the transplant council decides if I’m fully listed for a kidney. Approved, declined, or deferred. I’ve been through so much to get here. The waiting is heavier than I expected. #KidneyTransplant #DisabilityLife #ChronicIllness #OrganDonation #TransplantJourney

CVC is finally out! Lidocaine, scalpel, pull, pressure—waited 30 minutes, no bleeding. No movement or showers for 24 hrs, but we’re healing. Accidentally walked into a 4’ tall staff member on my way out (blind life strikes again 😅). One less tube, one big win. Grateful for progress.
#ChronicIllness #CVCRemoval #DisabilityLife #BlindAndProud #MedicalWin #PatientLife #EndStageRenalDisease #HealingJourney

It is bitterly cold here in #Melbourne. Winter has arrived. To stay warm and moving, I’m doing my walking inside the local shopping centre. Bonus: coffee is definitely on the agenda. Priorities.

#MelbourneWinter #DisabilityLife #Exercise #CoffeeTime

Chronic illness logic: You wake up with a decent pain level and suddenly you’re a speed-cleaning ninja with a death wish.

In this classic Luna moment, the pain scale dipped just enough to trick her into thinking she could conquer the world… or at least the laundry. Spoiler alert: she could not. But she did conquer the dishes, floors, and at least one very alarmed cat. That’s worth something, right?

This comic is for every spoonie who’s ever felt that rare burst of functionality and immediately sprinted headfirst into a self-destructive cleaning montage. You know who you are. You felt okay… until you didn’t.

Sometimes, managing chronic illness means fighting your own instincts to do all the things the second you feel a little better. But hey, if you’re gonna crash, might as well crash with a sparkling floor and folded laundry.

We see you. We are you. And we made this comic just for you.

Let us know: What’s the wildest thing you’ve overdone on a “low pain” day? We wanna hear your “oops” stories in the comments!!

And if you love our chaotic, spoonie-fueled comics, check out our Patreon for exclusive content and early access!

#ADayInTheLuna #SpoonieComics #ChronicIllnessHumor #DisabilityLife #FibromyalgiaLife #EDSLife #DisabilityComics #SpoonieProblems #DisabledAndProud #ChronicIllnessComics

Another day - another brainfog - another comic you can support by subscribing for FREE in Tapas (or read for free in Ko-fi) to spread disability awareness with me and help me survive March by maybe dropping me a braincell in ko-fi too? (:

Please share this for good Karma!

Kofi: https://ko-fi.com/i/IQ5Q51BNM2Z

Tapas: https://tapas.io/episode/3465163

#art #disability #webcomic #idiopathichypersomnia #sleepdisorder #sleep #disabilitylife #Mutualaid #brainfog #accessibility

Hi everyone! 😊 I hope you're having a good night, morning, or whatever time it is where you are. I slept most of the day, but now I'm curled up in bed propped up against my new wedge pillow (a birthday gift!) with the heated blanket my mom gave me draped over my lap. It was supposed to be a Christmas present, but she gave it to me early since it's cold here and my joint pain has been worse in this weather. 🥶💙
I'm sipping coffee, watching TV, and getting some work done. I'm also about to buy a Raspberry Pi 5 with some birthday money—so excited for that! 🎉 Afterward, I need to tackle lesson 15 exercises for my Braille proofreading course, work on Codecademy and freeCodeCamp lessons, and update my website. That said, I might just fall asleep as cozy as I am right now, and honestly, that's okay. This joint pain has been rough lately, so extra sleep might do me some good. 😴
This heated blanket is so soft and warm—I love it! 🥰 Stay safe and warm out there!
#disability #disabled #DisabilityLife #BlindProgrammer #ChronicPain #JointPain #ChronicIllness #Spoonie #NEISVoid #Braille #CodingJourney #RaspberryPi #Accessibility #CozyVibes #SelfCare #BirthdayGifts

Good morning, everyone! 🌞 I hope you're all having a great day so far. I just woke up not too long ago and treated myself to leftover chocolate birthday cake, chocolate ice cream, and a glass of milk for breakfast—because why not? 🍫🍰 Now, I'm sipping on a cup of coffee ☕ and getting ready to tackle the day.

Here's what's on my agenda:
- Work on Lesson 15 of my Braille proofreading course.
- Spend some time learning with Codecademy's full-stack engineering career path and the fundamentals of cybersecurity skill path.
- Check and respond to emails.
- Telehealth appointment with my gastroenterologist. Need to get on the patient portal and find out what time this is because I don't remember.
- Make a couple of important phone calls:
- Schedule an appointment with a rheumatologist to confirm whether I have rheumatoid arthritis or lupus (I've been dealing with joint pain and tenderness, and lab results suggest it could be either).
- Reschedule a missed dental appointment.
- Contact my health insurance and primary care doctor about getting an adjustable bed to help with my health conditions.

It's shaping up to be a busy day, but I'm feeling motivated! What about you? What are you working on or looking forward to today? Let’s chat! 😊

#GoodMorning #DisabilityLife #Disability #ChronicIllness #Braille #Programming #FullStackDevelopment #Cybersecurity #HealthJourney #RheumatoidArthritis #Lupus #AccessibleTech #BlindCommunity #blind #ChronicPain #SelfCare #LearningAndGrowing

Exhaustion strikes again! 😅 Today's comedy of errors:
1. Plugged in headphones and webcam
2. Logged into therapist's portal
3. Frantically searched for non-existent 'Join Session' button
4. Sudden realization: It's Wednesday, not Thursday!

Therapy is tomorrow, and I could've been in bed this whole time! 🛌💤 Sometimes the brain fog is real, folks.

#TiredBrainMoments #TherapyMixUp #SleepDeprived #BrainFog #DisabilityLife #ChronicIllness #SelfCare

#DisabilityLife

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