RE: https://mastodon.social/@hassankhaderali/115675755847210734
Here I am trying to talk about feelings I experience as they are and
I don't know if my friends in chronic illness and disability community go through these feelings but I am sure they understand me .
#Muscular_Dystrophy
#LGMD
#chronicillness
#Disability
In those moments ,I feel that it would better if I hadn't come to this world at all .
Despite all ,I try to stay stronger as much as I can, within my limitations ;I love life but really I am not able to live it properly as I have to do.
#Muscular_Dystrophy
#LGMD
My real life stopped so many years ago and I lost the best part of it and I am afraid I am looking at its remnants disappearing before my eyes.
#Muscular_Dystrophy
#LGMD
#chronicillness
#Disability
The question that always haunts me :
have I came to this world only to spend my life stuck in one place without being able even to serve myself ?
#Muscular_Dystrophy
#LGMD
#chronicillness
#Disability
And I hope the new upcoming year will the year of change for me .
It's just a wish I eagerly hope it will come true.
I pray I won't fail or rather be failed .
That's my main goal of the new year to come .
#Muscular_Dystrophy
#LGMD
#chronicillness
#Disability
Personally,I know I oftenly won't be well again,but also I hope I won't go on undergoing the miserable life imposed on me mainly by Muscular Dystrophy.
So I won't stop trying to find a means to turn my own life to be better
#Muscular_Dystrophy
#LGMD
#chronicillness
#Disability
Generally,living with a rare disease, completely disabled and house bound in a poor unstable war-affected area is a hard mission that needs huge constant efforts and strength to survive.
#Muscular_Dystrophy
#LGMD
#chronicillness
#Disability
Hello dear Friends !
This ist Hassan from Yemen.
I have been suffering from progressive Limb-girdle Muscular Dystrophy (LGMD) for long time .
i am completely disabled now and house-bound.
I really depend on a GoFundme donations for living but I often can't reach my monthly goal.
Could you please help me by contributing to or sharing my Gofundme Link widely?
#MutualAid
#Muscular_Dystrophy
#LGMD
#Disability
#chronicillness
Thank you so much in advance.
Here it's
👇
https://www.gofundme.com/f/help4hassan
Really,I hope & pray Muscular Dystrophy treatment will be available and I can be cured one day but till that time,all I want is that I can reach my needs and my life won't be threatened by such progressive disease in the future
#MuscularDystrophy
#LGMD
#chronicillness
#Disability
Muscular Dystrophy strips a body off their bodily strength and changes them into a vulnerable person living in a state of uncertainty ŘŚwaiting for the next episode of their vulnerability to come for the rest of their life
#Muscular_Dystrophy
#LGMD
#chronicillness
#Disability
At least ,I don't want to leave this world early ,if there's no cure to Muscular Dystrophy in the near future .
#Muscular_Dystrophy
#MuscularDystrophy
#LGMD
#chronicillness
#Disability
#HassanSays
Kindly share my pinned post please .
#MutalAid
#chronicillness
#Disability
#LGMD
#Help4Hassan
LGMD undermined all my strength and left me nothing except vulnerability .
My muscle bulk vanished progressively ,and now I am getting weaker and weaker over time ,but I won't stop resistance despite all .
#chronicillness
#LGMD
To be honest,I don't feel stroger any more; spending so many years stuck in one place has nothing to do with strength.
I am just forced into such isolation reluctantly and had to choose between giving up and struggling for my life ,I rejected the former and chose the latter
#LGMD
To sum up , as chronically ill people being unable to achieve your goals is not a matter of laziness at all , it's rather a restriction inflicted by chronic illness.
#chronicillness
#Disability
#LGMD
So having peace of mind is a daily struggle for those who are living with chronic illness.
#chronicillness
#Disability
#LGMD
Chronic illness takes its toll on chronically ill people's life and restricts their physical abilities,so that they always are in need of support to keep their daily life going.
#chronicillness
#Disability
#LGMD