I wish more people knew about the use of food restrictions as a medical treatment.
Many see the word 'diet' or food restrictions as a lifestyle choice, to be ignored or dismissed.
In truth, many medical conditions are treated through the use of food restrictions.
You never know what someone else is dealing with, but you can choose how you react to their requests.
What do you wish people knew more about?
#LowProtein #PKU #Phenylketonuria #RareDisease #MetabolicDisorder #LivingwithPKU
Just released my new PKU books. An ABC reader and a colouring book 👏
- Designed especially for children with Phenylketonuria
- Full of foods which are considered protein-free for PKU in the UK,
- and have been checked by PKU clinicians.
Let me know what you think, or grab your copy here:
Just emailed to PigPen Subscribers. It is free to join, and you get a free book!
https://www.pigpen.page/june-2025/
📣 News and views from the world of rare disease. This month:
➡️ exciting news on future rare disease treatments;
➡️ a look at the revision of the ESPKU Guidelines on PKU (plus, a primer on what they are!)
➡️ Recipe of the month: Low-Protein Waldorf salad
🎭 Catch up on our LinkedIn Live! And much more
#pku #Phenylketonuria #raredisease #lowprotein #BrainHealth #braininjuryawareness
Low Protein Waldorf Salad recipe for PKU
An easy, & PKU-friendly Waldorf salad for a quick, healthy lunch. 1g protein / 1 phe in the UK. I use pine nuts for the protein as you get more 'nuts' per serving.
📰 Monthly news, 🥗 low-protein recipes, and 🐶 dog photos all free to subscribers at PigPen.
Plus, you get a 🆓 copy of "Mental Health & PKU" when you sign up.
Join the conversation: https://www.pigpen.page/may-2025/
#PKU #Phenylketonuria #PCU #LowProtein #RareDisease #BrainInjury #Concussion #ABI #TBI #MentalHealth
April's update is PACKED with:
- 🐰 Easter tips,
- 🍰 ideas for school holiday baking,
- 📋 new brain injury research,
- 📝 and a chance to report on the NSPKU conference.
Sign up today and be the first to get #PKU news,
#lowprotein recipes, mental health tips in your
inbox!
#LivingWithPKU #pku #PCU #Phenylketonura
#PKUFood
(Edited to correct markdown errors)
When you use up all your protein allowance on buttered popcorn…
#LivingWithPKU #pku #LowProtein #RareDisease #pcu #Phenylketonuria
PKU-Friendly, low & no protein Easter Ideas from the team at Birmingham Children's Hospital!
#PKU #Phenylketonuria #LowProtein #LivingWithPKU #EasterIdeas #Easter
Spring news for subscribers:
🎉new UK patient guides,
🏹updates on the NSPKU conference and activity weekend,
🔍plus insights into brain injury rehab.
📖📚Also, my Low Phe ABC book is almost here!
➡️ Subscribe for more, get a FREE book, & join the conversation.
https://www.pigpen.page/march-2025/
#PKU #Phenylketonuria #RareDisease #LowProtein #BrainInjury #NewBook
Just saw Promin did a video making low protein Yorkshire puddings on my YouTube feed
Gotta give this a try!
#pku phenylketonuria #pcu #phenylcetonurie #lowprotein #lowproteinfood
Looking for 12-17yr olds in the UK with PKU.
Take part in paid market research on the challenges of living with PKU. The online session is 90 minutes, and you will receive £100 compensation for your time.
Two of the greatest things in life.
#pasta #lowprotein #lowproteindiet #thinkpad #lenovothinkpad #spaghetti #phenylketonuria #pku #phenylcetonurie #pcu
🦃🎄New blog for the festive season:
Tips and links to help with a low protein Christmas or Thanksgiving.
I’ve included PKU and low protein menu suggestions & recipes.
Plus, links to low protein shopping websites.
https://www.pigpen.page/pku-at-christmas/
#pku #pcu #lowprotein #phenylketonuria #phenylcetonurie #LivingWithPKU #ClassicalPKU #EasyPKU #thanksgiving #Christmas #metabolicdiet #lowproteindiet
Made some stir fry rice with Mevalia rice.
It's the first time I've eaten low protein rice and it doesn't blatantly taste like pasta in a rice shape.
#pku #pcu #phenylketonuria #phenylcetonurie #lowprotein #lowproteindiet #lowproteinfood #lowproteinmeals
Getting ready for my December newsletter with low protein ideas for Christmas. Here's a sneak peek.
If you would like more:
➡️ sign up on the link in bio, and
🎁 get your free copy of Mental Health & PKU
#PKU #LowProtein #LowProteinDiet #ChristmasIdeas #LowProteinFood #LowProtein
Just some PKU fun - decided to get worcestershire sauce a few weeks ago to add a little kick to my toast and hash browns with cheese in the morning.
My recent levels are about 100umol/L higher than usual.
I checked the ingredients, and worcestershire sauce has anchovies... 🤦♂️
#pku #phenylketonuria #pcu #phenylcetonuria #lowprotein #lowproteindiet #lowproteinfood
