#runnersofmastodon #running #runninggrannies #alienrunners #paresthesia #neuropathy #CIDP #polyradiculopathy #raredisease #IVIG
Hello my dear peeps, the idea was to run the Rotterdam marathon spring 2026 for my 60th birthday. But as I’m diagnosed last month with CIDP, running is no longer possible. My goal now is to improve my balance and walk “normally”. Treatment is booked for last week of Jan and last week of Feb. 🤞Wishing you all a happy festive season and all the best for 2026! 🎄

#runnersofmastodon #running #runninggrannies #alienrunners #paresthesia #neuropathy #CIDP #polyradiculopathy #raredisease
Hello my dear peeps, I have the verdict. I have a rare chronic auto-immune disease attacking my nerves: CIDP or chronic polyneuropathy. This dark cloud has a tiny silver lining: there is treatment possible. Fingers crossed now I will react positive on it.
Waiting for the hospital to call me when I can start the immunoglobulin treatment.

#runnersofmastodon #running #runninggrannies #alienrunners #paresthesia #neuropathy
Hello my dear peeps, since last month I lost the feeling in my little and ring finger and have difficulty writing. Good thing we’re using computers in this age. I walk with nordic walking sticks to avoid falling. Working with the physiotherapist on balance and coordination. Tomorrow I have an appointment with the neurologist to hear the diagnosis. I’m a bit nervous. Cross your fingers for me they can treat me.

#runnersofmastodon #running #runninggrannies #alienrunners #paresthesia
Hello my dear peeps, another medical update from me. I just hope you don’t get tired of me. I’ve been hospitalised for 2 nights for further diagnosis, they’ve taken loads of blood, biopsies from salivary glands, lumbar puncture and a CT scan of the upper part of my body. They leave no stone unturned. I’m waiting for most of the results.

#runnersofmastodon #running #runninggrannies #alienrunners #paresthesia
Dear running community, thank you so much for your messages of support. I was wondering if I still belong to this group, because I cannot run, but your support means a lot to me so I will remain here and follow your runs.
Thanks again and keep on running while you can.

#runnersofmastodon #running #runninggrannies #alienrunners #paresthesia
Medical update: I finally saw a neurologist last Monday. The EMG was abnormal as I expected. He thinks it might be caused by a virus and my immune system is attacking my nerves. Next step is a lumbar puncture for further diagnosis and treatment. No running for me in the near future if at all 😢

#runnersofmastodon #running #runninggrannies #alienrunners #paresthesia
Medical update: Apart from the numbness in my feet, reflexes are completely absent in my legs. No wonder I cannot run and have difficulties walking. Strength is considered to be ok. Blood tests show nothing particular. A last test to be done to exclude Lyme. In the meantime I’ve been given vit. B supplements and magnesium, although all values are within normal limits. 🤔

#runnersofmastodon #running #runninggrannies #alienrunners #paresthesia
Terrible run today, numb feet, bad coordination, no strength.
Feeling depressed, this is so frustrating 😫

#running #trailrunning #runnersofmastodon #paresthesia
Trail done, nice ambiance, it was hot, hot, hot🥵
I think I walked most of the time, didn’t feel my feet, so I was afraid to fall, but somehow was 1st in my category. Probably because there were only 2 of us.😂

Paresthesia: the tingling or prickling sensation often described as "pins and needles" or a limb "falling asleep."

#wordoftheday #wod #Paresthesia #author #books

(This image was crafted by artificial intelligence (AI) through a subscription service 😲😜)

@justyourluck

It's an interesting symptom. Ppl with POTS sometimes have it, and it is also a menopause / perimenopause symptom. I would class it as a paresthesia. Even more interesting is that some people have internal vibrations immediately preceding an out of body experience.

For some reason a few years ago I thought this paper might have relevance, but I can't recall my reasoning -
https://www.thelancet.com/journals/ebiom/article/PIIS2352-3964(22)00393-0/fulltext

#paresthesia #InternalVibrations #InternalTremors
#menopause #POTS

So I went to a dungeon last night, for the first time in my life.

There won't be any graphic sex in this post. Sex was not allowed at this event. Yes, I did see a few folks naked, but no sex.

Overall, it was nice. I would have liked more, but you can't always get what you want.

I'm now a member of that club.

The night started with a review of proper dungeon behavior. I noticed myself experiencing anxiety-induced paresthesia (ants in my legs). This paresthesia had not visited me in a while. I guess last night was the appropriate night for its return. I'm autistic. I stimmed. I would have stimmed, but I find the stimming helps with the paresthesia. It eventually went away.

After this talk, there were various stations at which people could experiment with different kinks. However, there were a lot of people there. A lot of them were absolute newbies. This made for a bad combination. I already know what I'm into. I'm a Dom. I've done some of what they were demonstrating. Not all of it, but those stations that were interesting to me insisted of explaining everything from a bottom's standpoint. I'm a top (most of the time). I'm also partially deaf. Due to the size of the crowd, it was hard to hear and to see.

I went around a few times, but at some point I figured my time would be better spent at home than there. It was getting close to bedtime anyway. (Again, I'm autistic. Schedules do matter.)

The next event I plan to attend is aimed at queer folks.

My ex-bf had been to a previous iteration of the queer event before and told me to bring earplugs. I did not need them last night, but I may need them in the future.

I received compliments about my pins (Daddy Dom, autism, pansexual, polyamorous), and my Panama hat.

#autistic #autism #BDSM #dungeon #paresthesia #anxiety

Part of the reason I’ve been quiet here is because I’ve been struggling with idiopathic #Neuropathy and #paresthesia for a while now.

Numb and sometimes painful hands and feet. After 2 MRIs, spinal tap, EMG, and at least 4 rounds of blood tests I can give long list of what it’s not. No MS, Lupus, Lyme, and neg for a lot of auto immune disorders. Never had COVID.

Now on Wahl’s Protocol which is kinda #LowFodmap meets #paleo. Not helping but never ate healthier in my life.

Anyone else?

@emsquared thank you. I have #cPTSD but this is... So far beyond any of my prior coping strategies. Just hoping I can find some help. I feel so alone, isolated by all of this. I'm not sure what help, for this. I never had a lot of luck with talk therapy, myself. Having some neurological sequelae, too. #tinnitus #paresthesia #neuralgia
Suspect something went wrong, but maybe it's just bad luck.
#rambling

When I was out earlier today. I did have some anxiety-induced paresthesia, and I did stim more than I have in the past, and it was not camouflaged by "stimming to music" or anything like that. It was more like a soft hand movement over the table. (Hard to describe.)

#ActuallyAutistic #stimming #paresthesia #anxiety