Guh. Been doing loads of work with loosening up and not having tension be my go to reaction to stress/everyday life. And in that loose easy breezy state (for me) I got totally swiped into an overwhelmed stress response by being misunderstood in a costumer service situation. Had a cry on the tram home, just can't really handle being misunderstood and people being abrupt and rude with me. But, you know what? My shoulders, they are still loose. #audhd #ActuallyAutistc
#ActuallyAutistc
Unfortunately, the things I have to do (as an adult, worker, wife and mom) are so plentyful that it leaves almost no room (i.e. time) for the things I want to do. I've tried to schedule "me time" for self care (2 hrs on Wed). But it became just another item on my todo list and I couldn't get myself to actually relax and find the head space to even start exploring what I WANTED to do. But always being painfully aware of all the things I HAD to do. 2/3
@roknrol dang my friend. could you please write my biography also? LOL
In seriousness, this is a constant problem I have had!
Stress plus random demand (meaning even light convo with friends) makes just existing impossible at times until I snap into "serving myself" finally.
Water and food get put last very quickly- I had lost 40lbs in about 2 months a coulle years back due to this same issue, it was extremely sketchy for a time.
Very glad you are ok from that one and identified it too.
#ActuallyAutistc #ActuallyAdhd #ActuallyAudhd
I think I just realised that through all the different phases in my life, adhd struggles (just got my diagnosis) autism symptoms (still waiting for official dx) Anxiety and social confusions and now the onset of perimenopause hormone fubars, the one thing that has consistently not helped is pushing through. And realising that has been quite nice.
Am I going out? No! Why? I don't want to!
#audhd #ActuallyAutistc #perimenopause
I wish 'selective mutism' had a different name. The selective part seems to imply that there is choice in the matter. There is a massive difference between choosing not to speak and wanting to speak but struggling to form words or say anything.
@lunchables Hey, I thought I'd chip in with some similar spins: like you I'm #ActuallyAutistc. I'm a late diagnosed late middle ager. I work part time doing windows and mobile device admin, but in my former career I was a pet Linux geek, and I still do quite a lot of Linux for my own projects, so you could say I also "like computers" a lot. I also love making both useful and useless things using raspberry pi's, arduinos (and related gadgets), 3d printing, laser cutting, and power tools. I help out at the local repair cafe and climate emergency centre too.
I'm less interested in computer games, but I do like to play a bit of "Shattered Pixel Dungeon" as a distraction. My main computer games off choice, though, it's Linux itself!
Happy to #infodump about any and all of those!
There are great articles coming out. Another example of the double empathy problem, and the issues with the current diagnostic criteria:
"Our results thus support a reframing of autism from a social communication disorder to a “description encompassing a broad range of developmental differences and experiences”
Schuster, B.A., Okamoto, Y., Takahashi, T. et al. A cross-cultural examination of bi-directional mentalising in autistic and non-autistic adults. Molecular Autism 16, 29 (2025). https://doi.org/10.1186/s13229-025-00659-z
RFK Jr is getting his database of autistics from Medicaid and Medicare.
1. Grateful, for now, not to be on either. He isn't (yet) getting it from insurance companies (but I do wonder if that is not far off).
2. Fuck everything about giving this dangerous deluded bastard PII from autistic people.
Found some preliminary science indicating that anti-inflammatory medication can treat autistic irritability:
https://pubmed.ncbi.nlm.nih.gov/22782459/
Second article/study is a bit gross in that children were being given risperidone (an anti-psychotic!) as well.
We're not fucking psychotics.
Human emotions (& facial expressions) are more complex than allistics give them credit for! I might need a few seconds to process this amount of complexity. My high sensitivity actually forbids to judge without proper process. Because I don't want to miss an important detail.
And THIS is why I hate being asked "how are you?" just as a phatic means. I am complex things. I feel multiple emotions. And sometimes they battle within me.
I refuse to oversimplify emotions!
So these facial expression recognition tests are supposed to tell me that I am unempathetic? Because I cannot tell you within a millisecond that she looks surprised!? Fuck this shit!
Within 60 seconds I can tell you that she is not just surprised. This is the face of a person who has just learned that her lover betrayed her. She IS surprised, yes. But she's also angry, disappointed, devastated and planning revenge at the same time.
I went quiet because it seemed like I had blown my data limit but I now think it was just the sheer number of people (= phones) in a small area. I have a lot more pics I couldn't send, but summary is that it was immense, we marched down to st James park and there were speeches. I bailed out about 1600 as being typical of my #ActuallyAutistc self, I felt kind of out of place, not able to "interact" and pretty exhausted too. I'm on the train back now, surprised I can even post this as I've been having trouble texting my wife to keep her updated on events....
Made my first change at Wolverhampton, now on a train to Southampton, got to get off at Banbury for the next connection. Hella crowded, got a seat at first but left it because not sure if it was free for long enough to settle down and was feeling penned in, so now I'm shacked out in the luggage compartment. #ActuallyAutistc travel is the best.
Net begonnen in 'Het Grote Autismeboek' van Erik Jan Harmens. Heerlijk! #Bookstodon #ActuallyAutistc
I've been thinking about how difficult it is for a lot of autistic folks to have an enjoyable time of the entire sphere of experiences in society which are "go somewhere and pay someone to do something caring for you", e.g. haircut, body piercing, getting your nails done, getting a massage
Mostly because of sensory issues or society being extremely bad at communicating expectations
And it's unfortunate because those are one of the most straightforward ways in this society for a person to just be vulnerable for a bit and feel taken care of
#JournalEverything My turn to make #dinner today. With limited fresh ingredients and various family members having certain "requirements" I opted for my old standby of "stir fry". Mixed veg - broccoli, carrots, sugar snap peas, red pepper, sweet potato and mushrooms. Wife's is with shallot, sweet potato, mushrooms, seaweed, but without noodles, young uns have fat noodles but no onions, sweet potato, seaweed or mushrooms, and I have all in with brown rice noodles and miso. #vegan #ActuallyAutistc #SensoryIssues
[Edit: added photos that I forgot] [edit 2 corrected #AutoCorrupt typos]
I'm really irritated that I can't find a satirical comic that I'd seen a couple years ago, about labelling kids.
The first panel is a group of adults talking about a child, referring to the child as negative labels like naughty, distractible, etc. One adult says "maybe the child is ADHD?" and then the next panel is the other adults shouting things like "no, you can't label children with something like that!" or something to that effect.
Anyone seen this one?? #ActuallyAutistc #ADHD
(1/3)
Those texts about #trauma-#informed beeing-#autistic I found resonating:
http://traumageek.com/blog/discovering-a-trauma-informed-positive-autisticnbspidentity
http://traumageek.com/blog/lost-in-translation-the-social-language-theory-of-neurodivergence
http://traumageek.com/blog/social-language-theory-part-2
(the third one not so much anymore, but it is the sequel to the second one).
Therein I find #educational value to bring #neurodiversity #awareness to groups wanting #diversity-#inclusion but are not aware of neurodiversity: Where there can be diversity too, and how can it look for example.
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