📢 FAIR Data, FAIR Future Symposium
📅 Sept 18, 2025 | 🕙 10:00–18:00
đź“Ť UMCG, Groningen
🔍 Keynotes & workshops on AI, Data Protection, Transparency & more!
Join the conversation on building a FAIR future in academia & healthcare 🌍
đź”— Register: https://umcgresearch.org/w/fair-data-fair-future-bridging-academia-and-healthcare
#FAIRData #OpenScienceNL #HealthData #FAIRFuture
Late-onset type 1 diabetes isn’t milder — it’s just as deadly if unmanaged. New research calls for urgent action. #Type1Diabetes #CardiovascularRisk #HealthData
https://geekoo.news/later-life-type-1-diabetes-carries-heavy-heart-risk/
California’s health insurance exchange sent sensitive user data to LinkedIn via ad trackers, including pregnancy and abuse info. The trackers were removed, and the site is under review.
California Health Site Data Sent to LinkedIn; Lawsuit, Probe Follow
#LinkedIn #DataPrivacy #CoveredCalifornia #HealthData #PrivacyBreach #California #PatientData #OnlineTracking #DataSecurity #HealthcareReg #ConsumerRights
California sent residents' personal health data to LinkedIn
#HackerNews #California #LinkedIn #Privacy #HealthData #DataBreach #TechNews
#WAHIS: World Animal Health Information System
"WAHIS is the global animal health reference database of the World Organisation for Animal Health (#WOAH). WAHIS data reflects the validated information since 2005 reported by the Veterinary Services from Member and non-Member Countries and Territories on terrestrial and aquatic Listed diseases in domestic animals and wildlife, as well as on emerging #diseases and #zoonoses.
"WAHIS includes interactive mapping tools and dashboards to support data consultation, visualization and extraction of officially validated animal health data."
#HPAINews #AvianInfluenza #H5N1 #Diseases #LPAI #HPAI #BirdFlu #HealthData #HealthInformation #Parasites #HPAIResources #DiseaseResources #CDCFundingCuts #WAHIS
Health3 believes your health data belongs to you. (Family) Sharing gives you the benefits of collaboration while maintaining complete privacy control. Share biomarkers securely with those who matter most—on your terms.
đź”— www.health3.app
Introducing Health3's (FAMILY) SHARING! You can securely share specific biomarker data with doctors or family members while maintaining complete privacy control. Here's how this game-changing feature helps you share smarter: 🧵
đź“ť New post: 'A year with Visible Long-Covid Tracking'
🦲 Tracking Long Covid with Visible app: 1 year of health data. Insights & pacing strategies.
đź“° The April newsletter is out at https://europa.eu/!xxPNx6
đź“š The draft topic texts for IHI call 11 are available and registration for the #IHICallDays is open
đź“… On events, we have a the #MedTechForum and a session on our #cancer projects coming up.
đź““ Read the report of our workshop on #HealthData and #DigitalHealth
âś… Discover project successes on #vaccines and #LiverDisease
đź‘‹ Meet new IHI projects READI and ENKORE
#IHITransformingHealth #HorizonEU #Health #Research #Funding
Health3's secure sharing uses advanced encryption and permissions systems. We never access your shared data, and neither can anyone you haven't explicitly authorized.
Your health information belongs to you—we just make it easier to share safely.
đź”— www.health3.app
The PHUSE Real World Evidence Working Group addresses key questions around RWE implementation, focusing on analysis requirements, integration with clinical trials, and regulatory submission best practices. Currently managing multiple projects exploring RWD technologies and methodologies. #RealWorldEvidence #ClinicalResearch #HealthData #PharmaceuticalResearch https://advance.hub.phuse.global/wiki/spaces/WEL/pages/26805467/Real+World+Evidence
A golden era for personalized medicine is approaching, but are we ready?
#Canada #Health #PersonalizedMedicine #Genomics #GeneticTesting #PrecisionHealth #Biobanks #HealthTech #MedicalResearch #HealthData #GenomeCanada #DNAResearch #BiomedicalInnovation
https://the-14.com/a-golden-era-for-personalized-medicine-is-approaching-but-are-we-ready/
Different labs use different units for the same measurements. What's normal in one report might look concerning in another—simply because of unit differences, not actual health changes.
Example: Glucose can be reported as mg/dL in one lab but mmol/L in another.
#LabResults #HealthData
Alarming: NIH launches autism registry led by RFK Jr., seeking a 'cause'. Plans tap sensitive data from wearables and insurance, raising huge privacy fears. Is this a backdoor attempt to push debunked vaccine theories? #HealthData #Privacy #Autism
Protect 'valuable' Canadian #healthdata from Trump's AI aspirations, experts urge https://www.ctvnews.ca/health/article/protect-valuable-canadian-health-data-from-trumps-ai-aspirations-experts-urge/ “Medical researchers and lawyers say our rocky relationship with the U.S. creates an urgent need to protect a critical Canadian resource: patient health information that can be used to train artificial intelligence.
“Our health data is the most valuable health data set in the world,” said Natalie Raffoul, an intellectual property lawyer in Ottawa. (1/3)
Gesundheitsdaten sind Ziel böser Menschen. Daher darf es keine Zweifel an der Sicherheit von Systemen geben, mit deren Hilfe die Daten erhoben, verarbeitet und gespeichert werden.
Zwei Nachrichten von heute.
Yale New Haven Health data breach affects 5.5 million patients: https://www.bleepingcomputer.com/news/security/yale-new-haven-health-data-breach-affects-55-million-patients/
Frederick Health data breach impacts nearly 1 million patients:
https://www.bleepingcomputer.com/news/security/frederick-health-data-breach-impacts-nearly-1-million-patients/
Imagine someone showing up at your bank or insurer demanding full access to your personal info, no warrant, just a vague claim of “waste, fraud, and abuse.” That’s what’s unfolding at #HHS. Privacy should never be optional.
#USPol #DOGE #PrivacyMatters #Accountability #HealthData
Here’s All the Health and Huma...
