23andMe’s Genetic Data Trove Rests on Professor as Protector
https://news.bloomberglaw.com/privacy-and-data-security/23andmes-genetic-data-trove-rests-on-professor-as-protector
#biotech #bioethics #bankruptcy
'The May 19 announcement that Regeneron Pharmaceuticals Inc. will buy most of the assets of the bankrupt genetic testing provider started a countdown for Washington University School of Law professor Neil Richards, the court-appointed privacy ombudsman, to investigate the company’s privacy policies.
In a report due before June 10, he’ll recommend to the judge whether—and how—the sale of data should take place, highlight any necessary changes to mitigate consumer harm, and evaluate Regeneron’s cybersecurity controls.
Such roles have historically prioritized ensuring the seamless sale of assets. But the unusual sensitivity and security risks surrounding 23andMe’s customer data, coupled with stringent federal, state and, international regulatory oversight, may give new weight to the ombudsman’s recommendations.'